When it comes to a movement of this type, I would never be the one to tell anyone to stop something if it’s important enough. I would never leave the impression that people should not attempt to rally around something that the masses feel is so crucial but I would like to lend a voice on a few suggestions to those trying to rally for change. From someone who has been at this for a while, has won some and lost some in this battle, and I hope my experiences can help expedite and focus efforts.
1. Do some homework. In as much as the first rallying cry is to ‘let’s get a petition signed’, I strongly suggest you do some leg work and find out what is exactly needed to change the name of a disease state. I know I don’t know. Once this is discovered, you can address the petition, or statement of intent, with a razor-sharp focus on what the exact ask will be.
2. Once you know what is involved, speak to those who will make the call. Get their opinion on the subject; make them your allies.
3. Because a large group may want something, it does not mean the majority does. With today’s internet there are free services like Survey Monkey where you can create a simple question about the change you want and obtain a yes or no answer. Distributing it throughout the social media may get a sample size that is significant. If 10,000 people answer the survey, and the results are examined, you may get an answer that will guide your next steps.
4. Create a steering committee of about 5 or 6 who can meet, discuss, and set up a plan. Do not just ‘get it out there’ to get it out there; plan accordingly
My attempt here is not to dissuade anyone but rather to give a few pointers so a whole lot of energy and work is completed that will have a net zero result. Know what you are asking, Know who you are addressing about the issue. Know how to accomplish changing the issues.
Do not start a petition for ‘starting a petition’ sake—-start a petition that will result in real changes. First know exactly what is needed before asking others to jump aboard. I commend you on the effort and wish you all the luck in the world. No change started without someone saying, “This needs to be changed.”
I am a diabetes dad.