Those who know me well, know how Autism has impacted our family, as well as MS and other health issues. Diabetes is just one in a list that our family deals with on a daily basis. Close friends have stated to us in the past, that if we took everything that has impacted my brothers/sisters and families; we would give Job (biblical character who had a real tough life) a run for his money.
As people also know, none of this stops us and we all continue moving forward and doing what we can in the areas that impact us personally. Each of us has to deal with life. I share this (and will not go onto detail) because with the many things we deal with, I always have my antenna up as news comes across my desk.
Today there is news out there that Autism is now registered to impact 1 in 68. Autism is part of what is commonly called the Autism Spectrum Disorder (or ASD). According to Wikipedia: The autism spectrum or autistic spectrum describes a range of conditions classified as neurodevelopmental disorders in the fifth revision of the American Psychiatric Association’s Diagnostic and Statistical Manual of Mental Disorders 5th edition (DSM-5). The DSM-5, published in 2013, redefined the autism spectrum to encompass the previous (DSM-IV-TR) diagnoses of autism, Asperger syndrome, pervasive developmental disorder not otherwise specified (PDD-NOS), childhood disintegrative disorder, and Rett syndrome. These disorders are characterized by social deficits and communication difficulties, stereotyped or repetitive behaviors and interests, and in some cases, cognitive delays.
If you are on FB, type in the letters, ‘A-u-t-i-s-m’ and you’ll see how many pages there are dedicated to Autism efforts. I have a very interesting tidbit for you also: The origin of the now hugely popular Autism walks was also the brains behind the origins of the JDF(JDRF) Walk for the Cure now the Walk to Cure Diabetes. A man by the name of Steve Leonard—-another story for another time but the brilliance of charity walks, which solely rests on the wonderful volunteers being involved, was Steve’s design.
Autism Spectrum Disorders has a ton of blogs by parents, online support, and a huge amount of wonderful people making a difference as they battle what impacts them personally. Here is my thought and know that mine is just a question. It is not to stir a bee’s nest or anything like that but it was a question I had and I am very interested in your input.
There are many aspects of the Autism Spectrum Disorder. Do people who are involved with Asperger Syndrome think they should not be connected to (let’s say) someone involved with Rhett Syndrome. Will there come a time when the labeling of ASD will replace any individual names of diseases.
Type 1 (T1) and Type 2 (T2) diabetes used to have 2 different names as Juvenile Diabetes and Adult Onset. Not saying they were correct but they were the names nonetheless. Somewhere they became just T1 and T2. Will the names within the ASD eventual become T1 ASD, T2 ASD, etc? To be clear I want to add that neither of the two names of diabetes fit completely into the names they were labeled but I ask, with the new names; how’s that going?
There clearly has been grass-roots efforts to change the names of various aspects of diabetes. I sort of like the idea that Autism has undertaken in the word; ‘Spectrum’. Imagine creating The Diabetes Spectrum Diseases; where all of the various types of diabetes fall under one umbrella; but all with different names.
What the individual names would be? I have no idea. But it is the beginning of a thought process…..yes? What are your thoughts?
I am a diabetes dad.
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