Worse than Falling Off the Horse………I Missed CWD FFL

I have successfully landed in the land of physical therapy and am officially ‘post-op’.  At an eventual time in the not too distant future, I will land on my feet again….hopefully better than new; or at least better than my pre-op status.

I have learned that I’m not a good patient.

I find it hard that people have to do anything for me.  I was never good at it, and will never be.  I have always called myself a ‘give a gift’ type person, not a ‘receive a gift’.  The very idea of not being able to do for myself is worse than the operation itself.  Someone else cutting my toe nails makes me cringe beyond measure.

I was operated on Tuesday, June 25th.  It was my second operation in several months (I really did not fall off a horse, time just has worn away my knees leaving nothing but excruciating pain).  The first was pretty standard on the right knee, just minor. The pre-op MRI of the left knee showed that it was going to be a tad more difficult than one’s normal knee-replacement.  The standard 90 minute operation rounded out at just past 4 hours.  All is well but recovery would be long and I’m barred from airplane travel for months.   Easy for most, but I live in airports.  And LOVE doing what I do because all of it takes me to people who are doing wonderful things in our world of diabetes.  For my kids, for your kids, for you.  So being told I was grounded has been tough.  So saying, “stay off planes” is so much more than it sounds.

Originally I had the planning of the two operations perfectly planned leaving enough time to ‘get back in the saddle’ with plenty of time to spare.
The worst part was when it became clear to me that CWD’s Friends for Life (CWD FFL) would have to be missed.  No one will ever know how crushed I felt as that realization set in.  As honestly and plainly put as I can say it, my kids are alive today because of what we learned at CWD FFL over the many, many, many years we/I have attended.  It has been my lifeline for years and anyone who knows me, also knows that fact.

The only thing worse was making that connection to Jeff and Laura informing them that I would not be attending. That would be the facing the reality that I was not going to be there, real.  After I let them know, I stared out the window for a long, long time wiping the tears off my face.  It was made a tad easier once the conference began and it was great to hear from so many during that FFL Conference week.  From the conference perspective, my absence was surely nothing more than a blip, if even that.  But TO ME, a piece was knocked out of my heart to not be in attendance.

As I recover, I think of so many who are going through such worse things than my present position and it shuts my mouth and keeps me working harder on what I need to do to get past all of this.  My body was saying…….this is the time to get this done, so I listened.

I’m almost self-sufficient again being less of a pain-in-the-butt to Jill, who has been nothing short of an angel caring for what I could not do for the time I couldn’t. I get stronger each day and continue to work at what I need to work at pushing the envelope; just enough to move ahead quicker but not do more damage in the process. I thank the so many who sent such warm wishes over the last month or so.  Your encouragement and caring words truly carried me through this, and I honestly share with you how important it was to hear from so many. I tried to stay low-key about this whole thing, and if you are reading this and not knowing what I am talking about, good, it’s really how I wanted it.

There is so much to do and it’s good to be ‘at it’ again. Too many people need advocacy, education, and a cure.  So onward.  And again, thank you for caring so much.  Let’s get back to work.

I am a diabetes dad.
Please visit my Diabetes Dad FB Page and hit ‘like’.

Why Live Life in Fear When You Can Live it to the Fullest

CWD Smile Face quitters winnersI heard this statement from a person at the Children with Diabetes Friends for Life Conference in Orlando Florida this week.
“I refuse to let diabetes dictate what I do”.
I like that saying and I like it a lot.  It sort of summed up what thousands of people heard this week at this, the 18th Friends for Life Conference, sponsored by the Children with Diabetes.

When we first became active in diabetes causes after Kaitlyn’s diagnosis, I became the Executive Director of the JDF (now JDRF) Long Island Chapter.  At that time we were one of the handful of chapters chosen nationally to serve as an experiment for a new idea called a walkathon (that for years, was really only run by the March of Dimes) to help increase visibility AND revenue.  The JDF was doing walks before, but they were about to catapult to a whole new level of success.

When I became the Executive Director, the chapter was reeling from the death of a young man named Angelo Centano.   Apparently Angelo had many complications but he also had this incredible spirit, an incredible sense of humor, an incredible disposition, and an uncanny way to get things done despite his many physical limitations.  One day I found a note in my desk and it had a quote on it from Angelo.  It was a simple note, but a powerful note nonetheless:
Quitters Never Win, Winners Never Quit.

I’ll never forgot it.

There are many people who lost their battle against diabetes, many.   You have read about them and so have I, knew quite a few also.  Every single person, no matter their age, that I know who we lost to diabetes was ALSO living life to their fullest when they were taken.  They were not comfortable to just live life in a bubble or on eggshells, THEY LIVED!   I have also felt that the people who choose to believe that they can do ANYTHING with this disease do so and pay homage at the same time, in a way, to those who are no longer with us.

No matter what life throws at us (and make no mistake, we all have something), we cannot avoid how it hits us but WE CERTAINLY can get out there and make sure that we are not stopped…..and we shouldn’t be stopped, ever.  The only thing surpassing all of the incredible knowledge given this week at CWD, all of the wonderfully talented people who did the teaching this week, and all of the great times; is THAT sense of empowerment that even with this disease…….limitation is truly ONLY limited by your imagination.  It’s given to everyone…………………….by everyone.

Today many people said goodbye when they left Coronado Springs to the many, many new friends they all met, and the old friends they have known at this most incredible conference.  They inspire each other to do better.  The push each other to the limit to succeed.  They have instilled in each other the absolute belief that quitters never win and winners never quit………what are you doing to get back in the game?
I am a diabetes dad.
Please visit my Diabetes Dad FB Page and hit ‘like’.


This is Not a Story of Hillary Clinton…Well, Maybe a Little….Not Really.

HillaryDid I get your attention?  Good.   When I was involved in government, I worked for the highest ranking official in my town.  It was years ago of course but I remember that during an election, folks involved in air-tome (radio and television) were required to give opposing candidates equal tome.  If a story was done on Candidate A for 2 minutes and 49 seconds, one would do the same for Candidate B.

It is, sort of, with that thought process in my head that I follow-up yesterday’s story bearing Mr. Trump’s image, with a story today regarding Hillary Clinton.  (My disclaimer) I’m by no means implying nor endorsing either one as the presidential candidate for/of their party.

A while ago Mrs. Clinton gave a speech and used a phrase that I think is also very applicable to our community.  It garnered many conversations.  One part of it stated, “…..it takes all of us.  Yes, it takes a village….”.  Many people commented on my article yesterday about how; we all need to be involved, or how hard it is to be involved, or how just living with diabetes is enough to maintain; and all would be correct.

But furthering Mrs. Clinton statement of THAT village, I ask if not that village; than who?  You see a village is made up of many facets and aspects.  For those in the village who cannot maintain it, for whatever reason,  it ‘s up to the rest of the village to carry what is needed to get the job done.  Whatever that entails.  Because if the village does not help itself…..one needs to ask, who will?

So I first need to say thank you to all those who do so much.  YOU are the ones making our village work.  There are super-powers out there who give and do all the time, but there are also those who hang an education poster, because THAT IS ALL THEY CAN DO…..and you know what, that’s fine.

But we must continually ask ourselves, “…what more can I do….to help our village….”.  Because if we stop asking, the chances are that no one else will care like we do.  This diabetes world is OUR VILLAGE……we can do all we can to educate, empower, and thrive to make it work……and if it’s within our strength to ‘not do nothing’, well we need to do just that………but the only one who can answer that question honestly……is each of us.  Because at the end of the day NO ONE will take care of our ‘own village’…..more than us.  Thoughts?

I am a DiabetesDad.

Please visit my Diabetes Dad FB Page and hit ‘like’.



This is NOT a Story of Donald Trump….Well, Maybe a Little….Not Really.

Donald TrumpDid I get your attention?  Good. I do not want to get political here but to make a very interesting point……and to utilize that point in our diabetes community.  If you look around the media/public/online world as a whole, as a general rule, it’s safe to say that the majority of information and comments able to be read/seen/heard about Mr. Trump are not flattering—this statement is more of an observation than anything else.  If we agree to that point, we can continue.

Again, and bear with me, my comments today are not a reflection of Mr. Trump but rather to ask a question.  Let’s assume for this discussion, I’m just speaking of those reactions in his own political party: if it’s as I stated, why aren’t the election/polling numbers matching the number of adverse comments?  That’s not the questioned to be answered either.  Again, bear with me.  I’m NOT REALLY asking about Mr. Trump, but rather to make a point.

My point is, as my mother taught me, because something is important to you, does not stand to reason that it’s important to others.  Just as what people say and people are doing in Mr. Trump’s world do not match up as in Mr. Trump’s results (thus far), these thoughts make me ask; are the things we seek and believe we see as important in the diabetes community really NOT what everyone feels as important?  Are the feelings and/or actions, and/or lack of action taken, reflecting the feelings of the larger number of those interested in our situation?

As I watch elections and exit polls, and strategic polls, one after another, I keep asking myself; why do those numbers not match what we are seeing/reading/hearing about this man?  Is there a lesson for us as we all continue the efforts of education, inquiry, and even fund-raising in the diabetes community?

Here is a thought.  Let’s say that there are about 3 million people (JDRF’s number) people with T1D; and we say there are two parents who care about this child.  That means there are 9 million people out there who care greatly about what happens in the lives of these people, including themselves.  If you add just grandparents, that number swells to 21 million people.  Do you feel that there are 21 million people in this world pushing any/all agendas dealing with T1D?  The fund-raising, the education, the awareness……how many are ‘involved’?

THAT IS THE QUESTION I ask today.  My article is NOT ABOUT Donald Trump but rather, what we see in our everyday diabetes world may not be the consensus of how people really feel.  Maybe the majority of people who have T1D, or a loved one with T1D, just do not want to be involved but rather just live their lives as close to normal as possible.  And THAT NORMAL INCLUDES not being involved……….anywhere in diabetes’ causes, but just living.  Are they wrong to feel/act in such a way?

Are we a power of 21 million people……..or anywhere near that number?  Should we be?   What are your thoughts (just do not use this time for political comment—-that’s NOT the point)?

I am a DiabetesDad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

Save One Rose, Save One Life; We ALL CAN DO….For Those Who Cannot!!!!

Rose spare a roseA Rose is a Rose…….right?  Well not really.  Not when it can save a life.
Hard to believe it has been four years since this incredible program began but it is…..and it’s so simple….and YOU can do it.

Spare a Rose, Save a Child is an online effort that raises money and awareness for IDF’s (International Diabetes Federation) Life for a Child program, which provides life-saving diabetes supplies to children in developing countries.  There are plenty of ways to give here at home—-on this day—this is something that can help those who cannot.  (as little as $5.00 will help)

Initiated by a group of members from the Diabetes Online Community in 2013, the idea behind this effort is simple: people are encouraged take the typical “dozen roses,” so popular on Valentine’s Day, and donate the value of one rose to spare the life of a child.

Feel good about Valentines Day—-because you made a difference.  Really.

I am a DiabetesDad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

Your Child WILL GET SICK……It IS NOT Always Diabetes-Related!

sick-childI have written countless times on the missed diagnosis of T1D and will continue to do so.  I have warned that when someone is not used to diabetes, when it occurs, they may not know the signs including flu/virus-like symptoms.  But there is something very important that you, having a child with diabetes, should know as well.

In as much as diabetes plays such a role in your everyday life, know that the illness that your child may be feeling, may not be diabetes related at all.  Not everything is.  If your child is reaching adolescence know that their bodies will go through enormous changes.  The pains, the growing spurts, are all in the mix in this part of their lives.   If they have stomach pains, it very well may be the flu as well as keytones.

Until you could put a name or a label or most importantly; a diagnosis—-RULE NOTHING OUT.  Ear aches are not necessarily diabetes related nor is the tingling in their legs.  Headaches very well could be diabetes related as that blurry vision your child is complaining about.  It all may be temporary as well.

I don’t know how this happens but I can tell you from experience that Jill became an expert on knowing what was diabetes related and what was not.  She knew every breath that Kaitlyn took and also what Rob was going through when he was diagnosed as well.  She knew…..until she was wrong.

My point is that in my own biased manner, Jill was the best at knowing; more than anyone I have ever known.  But she was wrong at times also, so give yourself a break.  The self-blame game accomplishes nothing.  Be alert at all times and if you are fairly new in this diabetes world, trust me you will come to know quite a bit more than you do today.  Each time you will know more and more.

……….and at times you will be wrong as well…..and the sun will rise and set……onward.

I am a DiabetesDad.

Please visit my Diabetes Dad FB Page and hit ‘like’


I have a Diabetes Superbowl……..in Fact, I Have Many…..You?

SuperbowlThis weekend marks a ritual that is almost absurd in its definition of hype……the Superbowl……or since it is a trademarked name, should I say, ‘THE BIG GAME’.  Why on every commercial across this great land leading up to it, buying TVs, beer, chips, yada, yada, yada, you hear the announcer say…..”for the big game’ and not ‘for the Superbowl”.  Because in most cases, they are not allowed to use the phrase Superbowl, as it is owned by the NFL.  Today’s little tidbits with Tommy.

I love the Superbowl…..er…..the big game, I mean.  I love everything about it.  Huge sports fan.  Being a NY Jets fan, you get the wonderful opportunity to have just enough energy vested in the game to make it interesting but not enough to get your heart broken.  The price we pay because we have not been there since 1969.  Some have never been there.  So we get to enjoy the game on an entirely different level.  No matter the outcome, even if we have a favorite, just give us a GREAT game.

And of course…….the commercials.

The best part about Superbowl Sunday is the gathering of friends.  Having people over to enjoy the spectacle together.  People with the same interest.  Having a great time.  So much so that many municipalities across this country will see a drastic drop in water pressure come half time when the bathroom gets full use (go ahead, play with that one in your mind for a minute).

I, actually, also have my Superbowl in the diabetes world.  In actuality, I have many.  It is whenever I am among a group of people who are on the same page as me when it comes to diabetes.  That page, is trying to make a difference.  For the most part, don’t you just love being among people who have a common goal.  Maybe it’s a conference, a ride, a walk, a camp, an event, and even a black tie gala.  Diabetes Superbowl.  I get the same excitement.  Don’t you?

It does not have to be a big-ticket item….just being around a group of people who are trying to make a difference by gaining knowledge or supporting a cause regarding diabetes.  Excitement, fun, and a whole lot of great people in the same place at the same time.

Children with Diabetes Friends for Life in Orlando, each year, just thrills me to no end.  I have been volunteering with them for some time.  To see babies and all ages above, all in one place, to make their diabetes world better…..wow….even a Thursday Night Banquet each year as well.  The link above has been set up to take you directly to that page.  That’s just one of many Superbowls in my year.  Get there if you can.

Believe me. with two kids battling this disease…..I do not take lightly of what is being dealt with every day.  But I choose to find time to laugh,  I choose to find time to enjoy.  I choose to find the time to recharge and I choose to do it as often as I can because life is here on earth, but once,   I refuse to allow diabetes to rob us of anything I possibly can and surely diabetes tries very hard to ruin anything in our path….doesn’t it.  I will fight that as long as I have breath in me, and you should too.

This is an incredible weekend for me as I am on the west coast of Florida today with an incredible group trying to plan something fairly big for the Naples area for November, on to being a keynote speaker in Orlando tomorrow at the Florida Association of School Nurses, I shoot back to Miami Saturday night for the DRI’s Love and Hope Ball—all-in-all a Superbowl weekend of wonderful people in our diabetes world.

What is your diabetes Superbowl?  What do you LOVE to do?  Even if it is not about diabetes, what is your idea of a Superbowl……er….I mean…..The Big Game.

I am a DiabetesDad.

Please visit my Diabetes Dad FB Page and hit ‘like’.


Has Modern Technology Made ‘Diabetes Police’ Parents….uhm….Diabetes CIA? Want your Input?

cia badgeThere is a dilemma we face that could use the help of…….well……someone….perhaps you.  With ‘diabetes technology’ at an all time high (pun intended), there are increasing numbers of ways that we as parents can stay in touch with our children to keep an eye on their blood sugar via the cloud, cell phones etc etc to make sure they do not go too high, or too low.

When they are ‘under our roof’, that’s easy…..it’s our call.  As teenagers—they will balk at anything we say anyway….so this can be added to the mix.   They may get pissed at that, calling us the diabetes police…….but with this new technology….we could now be called…..Diabetes CIA.  But what about when they are sort of under our roof……but not really  under our roof?  Also but what about when they are in their dorms, or living alone in an apartment?  Would they not want the peace of mind knowing that someone ‘has their back’ when it comes to their blood sugar levels?

It’s certainly a two-way street.  Our kids do not want us to be calling them when they are just a little low and they do not want to be ‘mothered-to-eternity’, do they  (if saying ‘mothered’ offends you, feel free to interchange with ‘fathered’ or ‘parented’)?  As my dear friend, the great, late Richard Rubin stated, “it’s about balance….it’s about setting boundaries and respecting them.”

I cannot imagine that anyone WOULD NOT want a mechanism where someone could be watching for that ‘just-in-case’ situation.  But I also do not have T1 Diabetes and have not been listening to parents for 22 years either.  Many of the adults with T1 have shared many of their experiences on their blogs, not sure if I’ve seen THIS topic…..I would appeal to them to address this issue, and if anyone has already, please share the link.

Your parents, your spouse, your friends……who has your back?  I remember hearing over the years that many young adults have always feared that something drastic could happen during the night and they not wake up for it.  Okay……now there are ways to monitor that situation for, and with, you.  But how does that work; feeling ‘tethered’ to parents THAT MUCH MORE?????

What are the ground rules?  Where does one start?  How do we engage our children where they do not just ‘roll their eyes’ and tell us for the millionth time, “they got this.”
I know my kids ‘got this’, and I have been confident of that for the million times I have been told, but it’s the millionth-and-one time when they don’t answer that has me asking the question.

As new technology comes into our world, so do questions.  My two requests today…..if you are an adult with T1; are you utilizing something to share your blood sugars with someone else?  Who are you sharing it with?  If so, what is the understanding…..what have you agreed upon when they should step in and text, call, or do some sort of action-step?  Please share?

My second requests are for those parents where they have implemented this with their college kids and older teens in high school.   Share that information please.  We want to know blood sugars because we care…….but being part of the diabetes police….uhm….CIA…..won’t help anyone.  There has to be a medium line where we can help without burdening.  Kindly share your experiences.

I am a diabetes dad.
Please visit my Diabetes Dad FB Page and hit ‘like’.

Tired of the Undiagnosed T1 Entering DKA…….Roll Up Your Sleeves……Some Suggestions.

Roll up your sleeveThere certainly has been much activity surrounding DKA Awareness of late and that is a very good thing; the reason will always sting, but good that change could be coming.  If we are to make a dent in this awareness, work; a lot of work, needs to get done.  I have had conversations all weekend long and people are doing some pretty cool things

Tomorrow (hopefully) I will supply some in-depth info about some initiative’s that I have been working on with some immediate action steps that can be done in your community as well as some legislative action-steps, and if the info helps you, great; if not I, certainly wish you well as you do what you feel can to make a difference.

Some information we know already that may be of some help as you move forward.  In North Carolina, where there is pending legislation waiting to go to their State Senate floor for a vote, the proposed law states the following:

The General Assembly of North Carolina enacts:
SECTION 1. Chapter 130A of the General Statutes is amended by adding a new section to read:
130A-221.5. Diabetes education as part of well-child care.
Each physician, physician’s assistant, or certified nurse practitioner who provides well-child care is encouraged to educate and discuss the warning signs of Type 1 diabetes and symptoms are with each parent for each child under the care of physicians, physicians assistant, or certified nurse practitioner at least once at the following age intervals:
1. Birth
2. Twelve months of age
3. Twenty-four months of age
4. Thirty-six months
5. Forty-eight months
6. Sixty months. 
Section 2. This act becomes effective October 1, 2015

A few things: I share this with you because many have asked me about this law.  Reegan’s mom is the driving force behind this law and what she has accomplished is monumental.  the death of her daughter, by a missed diagnosis, has enrolled her into a club of which no one would ever ask to be in; but she has laid ‘it all out  there’ with determination, drive, and grace to make sure it NEVER happens again and she has started in her own state of North Carolina.

Many have asked about the process of  how this law came into being.  It is important to understand that there have been many discussions/revisions during the process of this proposed bill.  From entering committee for discussion (if ANY BILL does NOT get out of Committee—it never reaches the floor for a vote) to being voted upon in legislature chambers.  There was consideration/dialogue about all sorts of mandatory testing, checking, and yes, even education.  But when it comes to stating something is mandatory (and in the instance of ‘checking/testing’ it means insurance companies/Medicaid would have to pay for it), the opposition to that type of legislation ‘came out of the woodwork’ (as they used to say).  You are certainly free to pursue this law but attempting to make anything mandatory and/or invasive is going to be met with STIFF resistance.
Passing legislation is also extremely labor intensive and takes a good deal of time.  I say that so you know, NOT TO discourage you—-new laws are also VERY POWERFUL.  Should we be successful in North Carolina, it will be the first bill of its kind.  It’s progress.

Should you be making an appointment with your state representative (any federal branch, US Congress/US Senate will  usually ‘kick you back’ to your state level—-FYI) I suggest you go in there with a menu of choices like Debbie Healy did in Pennsylvania.  If they think they can get a blood/urine test passed——-GO FOR IT.

Here is just a partial menu to consider:
1)         Parental Education – Physicians provide this education to parents since parents are the “first responders.” Example: Proposed NC Bill that encourages parent education during well-child visits at specific intervals regarding Type 1 Diabetes.

2)         Require physicians to give either a finger prick blood test or a urine test to every/any child who enters the office showing flu/virus like symptoms. This would allow the doctor to know if the child has an elevated glucose level.  Although it cannot be a diagnostic tool for T1D, it will surely show that more testing is needed.

3)         Educating school children about Type 1 Diabetes at the elementary, middle school, and high school levels. Should this be part of the core curriculum? This may already be in our curriculum. However, to what extent is this covered in school? In what grades is this taught?

4)         Require Physicians to learn about Type 1 Diabetes (and Diabetic Ketoacidosis) as part of their initial and continuing professional education utilizing it for education credits awarded as is required.

5)         Screen populations for children who may go on to develop Type 1 Diabetes by testing for the auto-antibodies of T1D.

Ask your legislature what they think could/might/will work?

Another GREAT idea came from Leigh Szczur in Oregon who is looking into existing laws in her state regarding diabetes to see if it makes sense to ‘piggy-back’ on a law already on the books.  GREAT food for thought.

These are all fabulous ideas.  We will speak more about these efforts this week.  Whatever initiatives you are working on, and if you want me to relay it, I will gladly give you the space here.  A couple of stipulations.  It has to be an initiative, that could garner solid/real results.  I just do not have the time to investigate every initiative, do not just send me a link, send me info as well.  A petition as a stand alone, in actuality, does little.  If you have started one, and there are many, let me know how it is going, how you are getting signatures, how others can help beside ‘just pass it along’, or is that all you need?  What will you do with the petition when completed, send me an outline and pertinent links and I will try to find the space for you.  If you feel strongly about petitions, and have started one; just let us know HOW it will get something done; and I will gladly give you the space.

Sites and FB pages:  Same rule as above, if you merely add a link to my site, it usually will get removed if permission has not been given, this is just fair for everyone.  Many spammers and crawlers (products etc) will add links, so it’s a general rule. I need the content to stay ‘editorially clean’ as I receive no advertising dollars.  Also, if you have a closed FB page, I probably will not share your initiative unless it is highlighted for a specific group; Dads, People who lost a child, moms….etc.  PLEASE DO NOT misunderstand me, it’s YOUR CALL how you run your page and it’s just easier (for me) if wide-ranged initiatives are open for all.  For example, someone suggested a closed page last week and I could not see what it was about…..if I ‘put it out there’, I should know a little about the site and so should people who visit it…….make sense?  Again, it’s totally your call if it is ‘invite only’ and I have no issue with that whatsoever, but I cannot just ‘put it out there’ if I cannot see what it is about.

So email me at tkarlya@drif.org with a write-up on what you are doing and if my site can help at all in sharing where others can learn, I’m happy to share the word.  There truly is no need to reinvent the wheel……many initiatives offer great and powerful tools. www.getdiabetesright.org is just one of them.  All sorts of professionally made posters that you can download and share in right in your community.  Don’t be overwhelmed by ‘initiatives’.  If someone sees a poster posted in a Docs office or at the public library and they are educated and catch T1 before DKA when it looks like a virus or flu—-THAT IS HUGE and should NEVER be understated.

Education is education…..in the amount of time it takes legislation to pass, tens of thousands of posters could be hung in communities all around the world.  Think about it…..no initiative with ACTUAL IMPACT is TOO small.  One small meeting with the National Association of School Nurses has already resulted in programs that  have caught T1 DKA, when it was thought to be just a flu or virus……..how COOL IS THAT?????   “A lotta little makes a lot!!!!!”

We are presently working on a PSA and on reaching out with initiatives for medical groups (Pediatric, family physicians, school nurse ets.); I know that standards of care can be set by Medicare, the chief health officer of each state, and the Surgeon General of the United States—-want an initiative?….pick one and go for it.

So let me know how I can help?  And let others know what can be done?  There are SO MANY roadways we can all take…..pick one.  Again specific data that might be helpful is forth coming.  Please stay engaged.  This MUST BE FOUGHT on so many levels—pick the one that works for you.  Just ‘Don’t Do Nothing’.

I am a diabetes dad.
Please visit my Diabetes Dad FB Page and hit ‘like’.





Was Your Child DX via DKA???? Surely Could Use Your Help…..Need this Post Shared, Please.

DKA be sureTHIS NOTE ADDED ON 8/2/15:  I HAVE ENOUGH FOR NOW…..DO NOT NEED ANYMORE PICTURES/STORIES AT THIS TIME.  As many of you know, about 18 months ago I began the Child’s Cry for Change campaign which tackled the missed diagnosis of T1 diabetes head-on.  Shortly there after, Kim May (a mom from Texas) and I started Get Diabetes Right which is a site FULL of professionally made flyers that anyone can download and post.  There are many to choose from and many different phrases so you can choose the ones you like, download, and spread them all over town.

A few times I have requested stories and photos for different reasons surrounding this campaign.  Many people have asked for a copy of the almost 50 page report surrounding this entire DKA at diagnosis situation that I have created, especially in light of the past few months.

The stories that people sent in, I made it clear that the stories would be shared (with all pertinent particular information removed).  The few times I asked for photos, they were for different reasons but now I need them to add to this report.  So today I am asking for anyone who had a child who was diagnosed via the DKA (AND MISSED DIAGNOSIS), route and was hospitalized for ANY LENGTH of time, to send me a photo to be included in my “Child’s Cry for Change” report, if you sent it before, PLEASE send it again.

No names of anyone will be included, just the photo will be added to the report in a collage of photos to be added to the many stories/news items already collected.  The report will be available to others to use as we all work together to make changes across the country/world about the diagnosis of T1 diabetes being missed.  SO by submitting your child’s photo, you are agreeing for it to be included in the Child’s Cry for Change report knowing that it will be circulated to include elected officials, media sources, and elsewhere.  No matter where you live in this world….please send a photo.

Send your photo to tkarlya@drif.org and in the subject line just write DKA.
IF YOU HAVE A  PHOTO OF THEM IN THE HOSPITAL…..AND ARE WILLING….PLEASE SEND THAT ONE.  I will only use photos that COME IN VIA this email so please do not post them or add them in a reply.  I would need them by midnight Sunday night so please do ASAP.

Some incredible doors have opened and are continuing to be opened to many of us who are giving energy to change this paradigm; and trust me when I say much more will be following.  Any questions, I will surely answer, just email me.  Again, please do ASAP—you do not need to do include ANYTHING the photo, no stories, residence, age,……nothing is needed but the photo.

DKA—Be Sure!!!  (remember that phrase)

Thank you.
I am a diabetes dad.
Please visit my Diabetes Dad FB Page and hit ‘like’.