Diabetes Awareness Day I Created Something You Can Share to People Without Diabetes

Star. CupSo here is something you can share with those people who do not have diabetes.  A simple cup…….with a message. It just seemed to me that instead of it being a controversy, it could be used for a simple message…..a message that could save the life of someone you know and love.   It’s ‘interesting enough’ that local newspaper and media outlets may share it also….share it with them.  Share this with other sites, any sites.  Place this on all social media.  Anywhere where people who know nothing about diabetes may see it.

GDR Warning jpg

If you received this post….kindly click the flyer above and print it out.  Hang it somewhere where people will see it.  Sometimes, at the onset, type 1 diabetes can seem like a flu/or virus; but it’s not.  If someone you know has the signs above, ask your doctor to test for type 1 diabetes immediately.

So if today is about getting a message out……this just may be a way to capture those who know nothing about diabetes, the message is surely there.

Have a GREAT November 14th.

I am a diabetes dad.
Please visit my Diabetes Dad FB Page and hit ‘like’.

Tomorrow is November 14th; Nothing Tops the Reason We Started…….and Nothing Ever Will.

Kaitlyn FlowerI’m all in favor of everything that will happen tomorrow, and for that matter, all this month regarding diabetes.  Happy Birthday tomorrow, Dr. Banting and thank you for creating insulin; it–more than anything else ever discovered, created, invented, researched, and/or implemented is still the single-best finding EVER in the world of diabetes…..and everything else pales in comparison.

But we surely are glad that everything else that has come along and will continue to come along on this journey……aren’t we?

I always find myself thinking many things during this month.  My thoughts come down to one thing each and every year during this month.  Why I got involved in the first place.  And that reason is still a little girl who asked me, in crib/bed at the hospital in 1992 when she said, ‘Daddy, fix.”

No matter what has happened in this journey, it all comes down to her.  And in 2009 her brother was added to that drive.  Two of my three kids having diabetes.  It’s still my single focus and all that matters to me at the end of the day.  It’s why I try not to get caught up in ‘stuff’ that does not interest me.  What interests me is helping others and seeing that one day this disease is cured.  For Kaitlyn.  For Rob.   For others.

Cured.

Nothing short of that is acceptable in my eyes.  Many things that come along are appreciated but I’m always reminded of the headline when insulin was discovered which stated that it had been cured……..hmmmmmm?…..greatly helped……but not cured.

I have a definition of cured in my mind, and you have what that means to you as well.  We may differ how we will get there.  We may differ on who, or what, will lead the way.  We may differ on what ‘word’ we want to get out to the masses.  We may differ what symbol and/or color should be used to represent us all.  We may differ on who has written what, and how we sometimes want to hug the person, and sometimes we may even want to punch them in the nose.  We may differ on organizations.  We may differ on the emphasis of what is important.

I have said it a million times, just ‘Don’t do Nothing’.  And yet, over the years people have informed me that all they choose to do is take care of what they need to and I have learned we may differ in that thought too.

But at the end of the day;  when we crawl into bed, sign that last letter, post that last comment, give that last dollar, undo that last black-tie, tie that last sneaker, pedal that last bike we need to stop and we should look upon the face that started it all for us.  No we do not need a reminder how we got involved, we will always remember the reason.  But as the thirteenth of November turns into the fourteenth of November, look upon the face of the one who got you here.  Either as they sleep, or by looking at a picture.

And say to yourself yet again: Nothing matters as much.

For me, nothing ever did matter more……and nothing ever will.  Keep that thought and realize just how wonderful you are…….and multiply that by a hundred to realize just how wonderful and special your kids are as well.  And how much their siblings and other relatives and friends have been there to help.

And remember this……..no matter WHAT has happened to you in this journey, that face still stands as the single most reason to continue what ever it is that you do. That is Diabetes Awareness Day to me; always has been….always will be….and it happens every day.   You?

I am a diabetes dad.
Please visit my Diabetes Dad FB Page and hit ‘like’.

HEADLINE: Diabetes Caught Twerking in NYC Night Club

twerkI have always found it fascinating how Realty Show Stars and other celebrities capture the headlines.  You know that at least three names jumped into your head as soon as you read the first line of today’s article.

Interesting isn’t it?

There’s always so much discussion how little people know about diabetes.  How much more diabetes needs to be in the media.  “People just do not know about it.”  Yet celebrities and/or pseudo-celebrities CAPTURE the headlines with ridiculous feats of activity that just boggles the mind.  Perhaps we should have diabetes pull a few stunts to get into the headlines.

Ever notice how some major announcements by some of these people coincide with the opening of a movie, book, or television show……..trust me, it is NO accident.  It got me to wondering……..

“Diabetes parties all night with Kim and Justin in NYC Nightclub.”
“Diabetes……pregnant?  Seen wearing outfit with obvious baby bump.”
“Could diabetes be engaged…..seen sporting huge rock at sporting event.”
“Diabetes’ girlfriend DLo pregnant, and he could no be happier.”
“Diabetes twerks and sends text by accident to 12 million fans.”
“Diabetes in car accident….and pays off lady’s mortgage.”
“Diabetes gives outrageous interview on Tonight Show….jumps up on desk.”

See how it works?  Many people have been attributed with saying, I don’t care what the newspapers say as long as they spell my name correctly. (Mae West, PT Barnum, WC Fields and more).  So as long as it is outrageous, they will print it.

Hmmmmmmmmmmmmmm……….
Impacting millions
Costing billions
Causing heartaches
Costing Lives
Tearing apart families
None of that worthy of headlines………that what we have here?

I’m at a loss then.

Think I’ll check-in and see what Khloe is doing tonight??????????

I am a diabetes dad.
Please visit my Diabetes Dad FB Page and hit ‘like’.

 

 

 

Hey, Yew Look’n at Me???…..Blue Bosses in Charge; Until…….

MOb face in Blue Circle

Here is a fun take/tale on the meeting between ‘bosses’.  Enjoy for Diabetes Awareness Month.  This is my guest blog for Diabetic Lifestyle.

http://www.diabeticlifestyle.com/blogs/diabetes-advocate/you-look-n-me

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

So Many Have Asked about Missed T1D Dx Legislation…..A Suggested “Here’s How To……”

two kidsAfter Pennsylvania became the second state in the Union yesterday to have some sort of Legislation or Resolution passed regarding education of DKA and  the missed diagnosis of T1D, many people wanted to know “How do I do this in my State?”

There is no ‘one way’ but I put together a little bit on what we have learned thus far.
Consider this an “A” how-to article; certainly not “THE” how-to article to get you started.  The reading below is long but it’s a map that can be used to get you started.

You have decided that the rules in your state need to be changed regarding ‘missed diagnosed’ T1 diabetes.  You want to change the paradigm of children entering diabetes ketoacidosis (DKA) and you want your state legislator to be involved.  Great.

Now what?

The only way ANYONE became GOOD AT THIS is by doing it……know that as you start.  Do not be afraid to make errors.  Relax.  You know this disease, you live with it every day.  Below are JUST SOME IDEAS.  Add, remove, use what helps and don’t use anything with which you are uncomfortable.

Keep the message straightforward and stay on message/point: Too many kids are being diagnosed in this country with T1 diabetes by going into DKA because flu/virus symptoms are masking the onset of T1 Diabetes DKA. It results in hardship, hospital stays, and even death. A few steps could help prevent it from EVER happening. Stats are not even kept on this phenomena, but we surely know it exists.

The next thing to do is be prepared.  Assume that your representative knows nothing.  Do your homework and see if you can find some statistics from your state about diabetes.  If not, there are plenty of sites that can supply information for you locally, nationally, and globally. Some links:
https://www.cdc.gov/diabetes/basics/quick-facts.html– National
http://apps.who.int/iris/bitstream/handle/10665/204871/9789241565257_eng.pdf;jsessionid=3FF45324056745D94FC9B19DA4009C36?sequence=1 – Global

You will try to arrange a meeting with your representative; when s/he is in the local office is best.  If they cannot meet personally with you, but one of their representatives will; take that meeting.  Get to know SOMEONE in that office. Arrange a sit-down; and discuss YOUR story.

Even if you have not experienced DKA at diagnosis but you have a loved one with T1D; that’s fine.  You are speaking of the rise in T1 in this country and why we need to do something about it. After your story, discuss facts about diabetes–share information. From Medicine.net type 1 diabetes: An autoimmune disease that occurs when T cells attack and destroy most of the beta cells in the pancreas that are needed to produce insulin, so that the pancreas makes too little insulin (or no insulin). Without the capacity to make adequate amounts of insulin, the body is not able to metabolize blood glucose (sugar), to use it efficiently for energy, and toxic acids (called ketoacidosis) build up in the body. There is a genetic predisposition to type 1 diabetes.

The disease tends to occur in childhood, adolescence or early adulthood (before age 30) but it may have its clinical onset at any age. The symptoms and signs of type 1 diabetes characteristically appear abruptly, although the damage to the beta cells may begin much earlier and progress slowly and silently.

The symptoms and signs include a great thirst, hunger, a need to urinate often, and loss of weight. Among the risks of the disease are serious complications, among them blindness, kidney failure, extensive nerve damage, and accelerated atherosclerosis. The long-term aim with treatment is to avoid these complications or, at the least, to slow their progression. There is no known cure.

From Mayoclinic.org Diabetic ketoacidosis is a serious complication of diabetes that occurs when your body produces high levels of blood acids called ketones. Diabetic ketoacidosis develops when your body is unable to produce enough insulin. Insulin normally plays a key role in helping sugar (glucose) — a major source of energy for your muscles and other tissues — enter your cells. Without enough insulin, your body begins to break down fat as an alternate fuel. This process produces a buildup of toxic acids in the bloodstream called ketones, eventually leading to diabetic ketoacidosis if untreated.

Explain the difference between T1 and T2. Share other pertinent facts/information. Now ask how s/he may help:
Here is just a partial menu to consider, go over it with your Representative: 1) Parental Education – Physicians provide this education to parents since parents are the “first responders.” Example: Proposed NC Bill that encourages parent education during well-child visits at specific intervals regarding Type 1 Diabetes.

2) Require physicians to give either a finger prick blood test or a urine test to every/any child who enters the office showing flu/virus like symptoms. This would allow the doctor to know if the child has an elevated glucose level.  Although it cannot be a diagnostic tool for T1D, it will surely show that more testing is needed.

3) Educating school children about Type 1 Diabetes at the elementary, middle school, and high school levels. Should this be part of the core curriculum? This may already be in our curriculum. However, to what extent is this covered in school? In what grades is this taught?

4)  Require Physicians to learn about Type 1 Diabetes (and Diabetic Ketoacidosis) as part of their initial and continuing professional education utilizing it for education credits awarded as is required.

5)  Screen populations for children who may go on to develop Type 1 Diabetes by testing for the auto-antibodies of T1D.

6) Seek laws already in existence where new laws may be ‘piggy-backed’.

Ask your legislature what they think could/might/will work? Enter the dialogue and leave with, “What happens next and when should I check back with you?”

You are on your way.

This is the wording that passed the house in NC; it stands ready to be presented to the NC Senate. A BILL TO BE ENTITLED REEGAN’s RULE AN ACT ENCOURAGING PARENT EDUCATION DURING WELL-CHILD VISITS AT SPECIFIC AGE INTERVALS REGARDING TYPE 1 DIABETES The General Assembly of North Carolina enacts: SECTION 1. Chapter 130A of the General Statutes is amended by adding a new section to read: 130A-221.5. Diabetes education as part of well-child care. Each physician, physician’s assistant, or certified nurse practitioner who provides well-child care is encouraged to educate and discuss the warning signs of Type 1 diabetes and symptoms are with each parent for each child under the care of physicians, physician’s assistant, or certified nurse practitioner at least once at the following age intervals: 1. Birth 2. Twelve months of age 3. Twenty-four months of age 4. Thirty-six months 5. Forty-eight months 6. Sixty months.  Section 2. This act becomes effective October 1, 2015 – See more at: http://diabetesdad.org/#sthash.GCSHKyh8.dpuf (We are well aware that his is a very ‘soft law’ but it is a start.  When this bill passes, we can encourage the State’s Health Commissioner to follow-up with educational material to the medical professionals in the State of North Carolina.  Hopefully son we can say, one down and forty-nine to go. Pediatrics; The Official Journal of the American Academy of Pediatrics wrote in the conclusion of their study on the subject matter of DKA in Youth upon Dx:

CONCLUSION: The frequency of DKA in youth with type 1 diabetes, although stable, remains high, indicating a persistent need for increased awareness of signs and symptoms of diabetes and better access to health care……… Cite:  1.   Published online March 31, 2014 Pediatrics Vol. 133 No. 4 April 1, 2014 pp. e938 -e945 (doi: 10.1542/peds.2013-2795)

A recent study to explore the pathway to diagnosis of type 1 diabetes (T1D) in children from the perspective of the child, family, and general practitioner (GP) concluded in their study, “… that the difficulties for parents and GPs in recognizing the early symptoms of T1D suggests that future interventions should be targeted at parents in the appraisal interval and include the importance of timely presentation to a healthcare professional and the differences between type1 and 2 diabetes.
PRIMARY CARE PHYSICIANS SHOULD ALSO TAKE PARENTAL CONCERNS SERIOUSLY AND DO URINE DIPSTICK TESTS DURING THE CONSULTATION FOR CHILDREN WITH SYMPTOMS OF T1D.”   Cite: (Full study can be found: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3855567/pdf/bmjopen-2013-004068.pdf ) SCIENCE DAILY: (in context) Type 1 diabetes….is estimated to affect around half a million children worldwide, increasing in incidence by an estimated 3% every year. Cite: Society of Endocrinology, Science Daily March 19, 2013 40,000 people are diagnosed each year in the United States Cite: CDC National Statistic Report, 2014

5 Million people in the United States are expected to have T1 Diabetes by 2015, including nearly 600,000 youth.
Cite: JAMA –2014–311: p. 1778-1786

Between 2001-2009 there was a 21% increase in the prevalence of T1 diabetes in people under the age of 20
Cite: JAMA –2014–311: p. 1778-1786

3 million Americans have T1 Diabetes Cite: JDRF.org

Okay: You do not want to go the legislation route, that’s fine.  How about letter writing campaigns to the hierarchy at these organizations painting the picture that something needs to be done.   And enlisting their help to make a difference. The American Association of Family Physicians: http://www.aafp.org/home.html
The American Academy of Pediatrics: www.aap.org
The Society of Pediatric Nurses: www.pedsnurses.org

All of these organizations have state level ‘chapters’ as well.

Do not be afraid to ask the major diabetes organizations that have advocacy departments to help.

Start a campaign today.

I hope this gives you a start.  I surely do not know all the answers and feel free to go in a completely different direction if you wish but ask yourself constantly: Will this accomplish something tangible.  Follow your heart. Follow your brain.

Saving one person is monumental.  My goal and thought process when I started was; “if we can just see one person’s flu/virus-like symptoms and intervene and see if it is T1–and it is—–I would deem the entire effort worth it.  Just a year into it we know of six children.   That does no help to little Reegan or Kycie; who lost their battle—-but in their names (and others) we can change this and we will change this because we choose to just ‘Not do Nothing.”

God bless you on this journey.  And thanks for caring.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

NEWSBREAK: PA House Passes Resolution Regarding Better Education For Missed T1D Diagnosis

Debbie Healy When Debbie Healy’s son had a blood sugar of 1400 and his diagnosis of T1D was missed, she realized later on in life just how lucky her family was.  She also grew to know others who were not so lucky.

Not taking ‘no’ for an answer she led the way for PA House Resolution 569 to pass today in the State Capitol in a whopping 196 Yay and O Nay vote encouraging better education of diabetes in the State of Pennsylvania so a diagnosis of T1D is not missed or mistaken because of flu-virus like symptoms.

Based on a similar process where a law was passed in North Carolina, Debbie felt the presence of little Reegan and her family today as she heard the vote; “I just kept thinking of Reegan and how her mother wanted something good to come out of something so senseless.  How we both wanted to do something to make sure it did not happen again.”

Indeed!!!!

Pennsylvania State Representative Ryan MacKenzie not only sponsored the bill, but gave Debbie 15 minutes on his TV station to spread diabetes awareness (see picture above).  “He is such a genuine, caring person; he was with us EVERY step of the way”, Debbie says of her new-found colleague in this crucial battle.  “He was brilliant.”

The passed resolution makes Pennsylvania the second state undertaking such action and other states are in line as well.  Debbie was quick to add, “I am very happy that this resolution passed, but there is still work to be done…..my eyes are on the PA State Senate next.”  You go, girl!!!!!

Hopefully it’s only a matter of time that this leaves being left to individuals and gets tackled by more powerful diabetes advocacy organizations seeing the need—-feel free to drop them a line with a copy of this story and ask them, ‘When are we getting involved organizationally?  When are we going to do this for the Kycies and the Reegans of this world.  How many more must die?” Ask them (and I mean it) and let me know what they say.

Pennsylvania learned today, as they did in North Carolina, Mama Bears set their minds on something, it will surely come to be.  Congratulations Debbie Healy and everyone else who helped this become a vote today, Resolution 569; passing 196 to 0.
The Resolution:
PA Res 569 pg 1
PA Res 569 pg 2

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

Share Your Child’s Fondest Rite of Passage.

rites of passageOur kids get older.  They grow up.  The experience so many things that are their rites of passage in this wonderful life.  Do you stop and take notice?  Do they pass you by?  Have you been too busy?

It is cool to have your ears pierced.  Some kids wait anxiously until the time that they are allowed an doff they go.  Some kids cannot wait until they can do something that their older brother or sister get to do, like get a driver’s license>

Rite of passage.

I find these type things very exciting and they happen everyday.  Today I ask a very simple question; what was the rite of passage that you so enjoyed when it was time for your child to experience?  Did you sigh and think you were getting older too quickly?  So share your child’s experience with their rites of passage………

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

Type 2 Diabetes Is Worse……..

t1 t2If you read that headline and stated, “I’m going to read what he has to say and then I’m going to blast him for saying it”……..well…….you ‘sort-a’ fell into the trap.  So welcome, pull up a chair, and let’s chat.

Since I can remember, from the time our journey started, which is over 22 years ago; more than this organization vs. ‘THAT’ organization, more than one form of modern technology vs. standard practice; and even more tired waiting for a cure—-there has been this notion that one form of diabetes is worse than the other.  “Don’t make us part of them, my child had no choice.”  Sound familiar?

I’m not here today to debate this point, and I surely know people will believe whatever they will believe, but from a sheer power-position of numbers and the strength therein, it may be time to re-think this whole entire T1D vs. T2D discussion.

Here’s why.

Disease is disease.  If we can, first and at least, get people to take notice; we just might be able to educate about the differences between the two types of diabetes (and more).  Think I’m crazy—-okay let me ask you this; ever heard of Stand Up To Cancer?   Sure you have.  Want to see what the very first thing that smacks you in the head when you look at their website homepage:
Stand Up To Cancer is a groundbreaking initiative created to accelerate innovative cancer research that will get new therapies to patients quickly and save lives now.

Now off the top of my head I can name 10 different forms of cancer and the person I know who has; had it, has it, and/or died from it.  With that notion in their head, someone at Stand Up To Cancer; or SU2C, figured there was strength in numbers.  They are right.

We want the media to ‘get it right’, we want the world to ‘get it right’, we want those we know to ‘get it right’, but somewhere before diabetes entered our households we were under the same ‘blindness’ about what diabetes is and all of a sudden one day, ‘poof’—-WHY DOES NO ONE KNOW WHAT I GO THROUGH AND HOW HORRIBLE THIS DISEASE IS?  The outside world is clueless for the same reason we didn’t know until it hit home……what makes us think the world would all of a sudden change?  What makes us think we have a right to downplay someone else’s battles as worse than ours? Add to the mix that WE CANNOT EVEN GET IT RIGHT that someone who lives with T2D has all the same emotions and fears as the rest of us do…..and so do their loved ones.

The complications, as oppose to the daily care, approach, and cause; CAN BE virtually identical.  The same pain, the same fears, the same end.  Yet, continually, so many feel obligated to let the world know about those “….fat people who do not take care of themselves so they ‘got’ T2D and THAT is not what MY CHILD goes through”.  I cannot list how many people I know at a size 8 or less or with a 36 waist or less who have T2D.  And yet, it is felt by adding the disclaimer, “Although there are exceptions people with T2D slam-slam-slam-slam-slam”, makes it all okay to say.  It also does not help bridge the gap when it is said, “I don’t care what people think whether I have the right to say it but type 2 is slam-slam-slam-slam again.”

To what end?

I’m merely suggesting that for over 22 years now I have heard these discussions.  Almost a quarter of a century.  I have also heard that we need more…….well everything….when it comes to diabetes.  With 1.5 (or 2, or 3, or .90–whoever you are reading) million people with T1 and almost 30 million total with diabetes might it be worthy of a discussion to see about joining together, albeit philosophically, about an approach with one voice to let the world know how devastating it is to live with diabetes?

Even if you do not agree completely, we have tried the one way so long and we are where we were 22 years ago, still……..even for that reason alone, might we want to at LEAST try a different approach?  Even try?

Is 1V2ED—–One Voice to End Diabetes—-such a dumb idea…..really?

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

 

 

NEWSBREAK: Don’t Think One Person Can Make a Difference??? BAM WOMAN!!!!!

Debbie Healy family  Debbie Healy is on a mission and watch the news link below to see how…….On Monday her resolution is entered into the State Capitol in Pennsylvania…….take THAT DIABETES.

Nice Job Debbie!!!!!!

http://m.wfmz.com/lehigh-county-mother-pushing-for-diabetes-awareness/36273208

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

 

November 14th I Get; Can We Make the 13th Diabetes Appreciation Day?????

BillboardGo get a piece of paper and a pen.
(I’ll wait.)
Are you back?   Good.

Now start to list everything you do in your day not having to do with diabetes, and not having to do with you, but what you did for someone else.   In other words, “I took a shower” does not count.

Now add to that list everything you do while dealing with diabetes.
(I’ll wait, write fast)

If you did this list you would realize how long it is.  What we do, as parents, is pretty detailed.  Add to the mix our diabetes world, it is truly amazing that it all gets done, don’t you think?  As we go through diabetes awareness month, realize the most important thing………you?

Take a $50 bill and paint it blue, or draw a blue circle on it, and take it and get your nails done or your hair done or go to the movies.  Take ‘something diabetes’ by making it blue and spend it…….on you.

The purpose? So we each realize that he most important thing to know in our diabetes world that with out……well……’us’……nothing would have ‘gotten’ done.  This month is about awareness, right?  Who better to be aware than ourselves.  You know, the forgotten one.  The ones who just truck along and get done what we have to because we love the person who battles this disease every day.

Perhaps on just one day, say the 13th the day before the ACTUAL diabetes Awareness Day of November 14th (which is also the birthday of Dr. Banting of Banting and Best who discovered Insulin) and make that Diabetes Appreciation Day where every person with diabetes sends a note to the parents or loved one who watches your back.

“Hey just a note to say how much I appreciate my guardian angel(s).  Thank you, I love you.”  Send it on November 13th…….Not such a bad idea……right?  Of course it will be on the 13th—-thirteen just makes sense too if you think about it.

Of course none of us do it for any thanks, we do it because we must.  We do it with love.  We’ll do it until the day a cure comes along.  We have to, it’s what we do.  So even if we do not receive any thanks on November 13th, let’s do something JUST FOR US like get a haircut with a blue bill, at least we will look good checking blood sugars at 3:00 am……we deserve that at least, I’m sure.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.