Hi there. I’m Tom Karlya. I have been active in diabetes causes since my daughter, Kaitlyn, was diagnosed in 1992 at the age of two. My son Rob was also diagnosed in March of 2009 at the age of thirteen. My world is mostly about diabetes, but that is my choice. I made that choice when Kaitlyn was diagnosed and she looked up at me in the hospital after looking at all of the tubes and wires attached and said but two words that changed my life, and those two words were: “Daddy, Fix!” I made her a promise that I have kept to this day that we would not stop until we found a cure for her and millions more like her. We would also do everything we could to keep ourselves educated so she would know what the best management tools were to keep her healthy; and all of that was also added when her brother was also diagnosed. Our oldest son does not have diabetes and we are grateful for that and his name is Tom; well Thomas James, actually; but we’ve called him TJ since the day he was born. In October of 2013, we added a daughter as TJ married his best friend;
Ms. Joelle Wilk
We are proud of all of our kids. Our kids are as unique as they are special and talented; each in their own way.
For years at CWD conferences and elsewhere I have been introduced as Diabetes Dad–there are surely many more than just I, I do not own the phrase, but it seems to have just stuck on me over the years and I will accept that title until I can change it; when diabetes is no more and has been cured. What a day that will be.
I started this blog to help educate and inspire all those who are parents or who live with diabetes. You will see an entire gamut of emotion and stories on this blog, and they will not all be about diabetes. I’ve been blessed with an incredibly fortunate life and diabetes, nor anything else, will stop us from living as positive as we can. By choosing to ‘just not do nothing” we have been on one incredible journey and it is my hope that you might learn some things, along with us, as we move forward in life.
I’m not a medical professional and I want to be clear about that from the get-go. My stories are just that; mine. My opinions are just that; mine. And I welcome everyone to be involved. I hope to open dialogue because no one has made more mistakes at this ‘diabetes thing’ than I; I am, and will always, be learning also.
(This is the self-serving portion of the show but it might help to know how I got here.) I have lectured internationally and chaired many panels about being a Diabetes Dad, which is my pen name used virtually everywhere. Over the years I have been featured or quoted in numerous publications such as Newsday, USA Today, Diabetes Health, Parent Guide Weekly, and The Los Angeles Times, to name a few.
As a diabetes advocate, I have had the privilege to have been introduced to the New York State Capitol, testified in Washington, D.C., appeared at diabetes-related events at the United Nations, and have served as a panelist or keynote speaker at numerous diabetes events internationally.
I have been most fortunate to have written and/or produced public service announcements for diabetes causes featuring celebrities such as Ray Romano, Sugar Ray Leonard, Doris Roberts, Nicole Johnson (Miss America 1999), Sandra Oh, Patti LaBelle, Peter Boyle, Brett Michaels, and Jim Turner.
As an actor, for 12 years, I starred in the New York City Production of Tony ‘N Tina’s Wedding, working with the original NY Company and also at The Kennedy Center for the Performing Arts, Washington, D.C., in Summer of the 17th Doll. I appeared in the film, lbs., at the prestigious Sundance Film Festival and has also appeared in Unsolved Mysteries, Spin City, The Cosby Show, NYPD Blue, Law and Order, America’s Most Wanted, Entertainment Tonight, Access Hollywood, and other shows as well as numerous commercials. Acting is where my life was when Kaitlyn was diagnosed in 1992; I do hope to return after we find a cure.
(I am told that it make sense to add awards to your page—so here are a few that I have been fortunate to receive)
* Jeff Hitchcock Distinguish Service Award from The Children with Diabetes in 2008
* Man of the Year by The LI Advertising Club
* Diabetes Advocate of the Year by the American Association of Diabetes Educators.
* LIONs Club Robert Uplinger Award for Distinguished Service
* NYC Transit Police Award for Film: Diversity; All
* Emmy Award Nomination, Best Public Service Commercial Spot dLife “Test Don’t Guess”
*Winner 13 Telly (former Cable Ace) Awards
*4 nominations and The Best in Medical Media; The FREDDIE Award.
*Won FREDDIE Award “Sexual Intimacy and Diabetes”
*Commendation, The White House for work in the Katrina efforts organizing relief efforts to over 10,000 people with diabetes.
*The George Estabrook Award/Alma Mater Award of Hofstra University for his work in diabetes and television.
I am presently the Vice President of the Diabetes Research Institute Foundation in Florida because I believe they are the leaders in actual cure-focused research for my kids; there is no one better out there with a more collaborative effort than the DRI; and I am always looking to see if any one place is better. So far I have not found any other.
I’m married to Jill and we live on Long Island. I have worked for dLife and also the JDRF, have volunteered for the ADA and many other diabetes organizations; and proudly I serve on Long Island as a member of the Patchogue LIONs. I’m a Children with Diabetes (CWD) dad and credit them for keeping us as informed as we have been to this date.
I welcome ALL comments and feel free to always contact me at firstname.lastname@example.org. Thanks for stopping by to say hello.