About me :)

Hi there.  I’m Tom Karlya. I have been active in diabetes causes since my daughter, Kaitlyn, was diagnosed in 1992 at the age of two.  My son Rob was also diagnosed in March of 2009 at the age of thirteen.  My world is mostly about diabetes, but that is my choice.  I made that choice when Kaitlyn was diagnosed and she looked up at me in the hospital after looking at all of the tubes and wires attached and said but two words that changed my life, and those two words were:  “Daddy, Fix!”

I made her a promise that I have kept to this day that we would not stop until we found a cure for her and millions more like her.   We would also do everything we could to keep ourselves educated so she would know what the best management tools were to keep her healthy; and all of that was also added when her brother was also diagnosed. Our oldest son does not have diabetes, and we are grateful for that, and his name is Tom; well Thomas James, actually; but we’ve called him TJ since the day he was born.

We are proud of all of our kids.  Our kids are as unique as they are special and talented; each in their own way.

For years at CWD conferences and elsewhere I have been introduced as Diabetes Dad–there are surely many more than just I, I do not own the phrase, but it seems to have just stuck on me over the years and I will accept that title until I can change it; when diabetes is no more and has been cured. What a day that will be.

I started this blog to help educate and inspire all those who are parents or who live with diabetes.  You will see an entire gamut of emotion and stories on this blog, and they will not all be about diabetes.  I’ve been blessed with an incredibly fortunate life and diabetes, nor anything else, will stop us from living as positive as we can.  By choosing to ‘just not do nothing” we have been on one incredible journey and it is my hope that you might learn some things, along with us, as we move forward in life.

I’m not a medical professional and I want to be clear about that from the get-go.  My stories are just that; mine.  My opinions are just that; mine.  I do not always write ‘to be safe’, I write what I feel.  Always taking ‘the safe’ route can be pretty boring sometimes so I believe in ‘putting it out there’, for the main reason to make people think.  I am probably as wrong as many times as I am right, BUT; I welcome everyone to be involved.  I hope to open dialogue because no one has made more mistakes at this ‘diabetes thing’ than I; I am, and will always, be learning also.

(This is the self-serving portion of the show but it might help to know how I got here.)  I have lectured internationally and chaired many panels about being a Diabetes Dad, which is my pen name used virtually everywhere. Over the years I have been featured or quoted in numerous publications such as Newsday, USA Today, Diabetes Health, Parent Guide Weekly, and The Los Angeles Times, to name a few.

As a diabetes advocate, I have had the privilege to have been introduced to the New York State Capitol, testified in Washington, D.C., appeared at diabetes-related events at the United Nations, and have served as a panelist or keynote speaker at numerous diabetes events internationally.

I created “Get Diabetes Right” with a d-Mom from Texas, Kim May.  This site is for people to download flyers and posters to help educate the public about getting diabetes, right. Kim volunteers her ad agency on the upkeep and continuation of much that happens on the site (in addition to FB, it will soon be its own website as well).  I am presently working on an inspirational video so newly diagnosed kids can be inspired, not just by celebrities, but by others who are ‘just like them’.  I am also working on an extensive education program (A Child’s Cry for Change) to try to prevent the ‘missing-the-diagnosis’ of T1.  One child is too many, and it certainly has happened too often, when a child’s T1 diagnosis is missed, a child can, and has, gone into DKA and gets very sick and in some cases, has died.  This is just unacceptable.  A Child’s Cry for Change is trying to change this occurrence.

I have been most fortunate to have written and/or produced public service announcements for diabetes causes featuring celebrities such as Ray Romano, Sugar Ray Leonard, Doris Roberts, Nicole Johnson (Miss America 1999), Sandra Oh, Patti LaBelle, Peter Boyle, Brett Michaels, Jim Turner and others.

As an actor, for 12 years, I starred in the New York City Production of Tony ‘N Tina’s Wedding, working with the original NY Company; and also appeared at The Kennedy Center for the Performing Arts, Washington, D.C., in Summer of the 17th Doll. I appeared in the film, lbs., at the prestigious Sundance Film Festival and have also appeared in Unsolved Mysteries, Spin City, The Cosby Show, NYPD Blue, Law and Order, America’s Most Wanted, Entertainment Tonight, Access Hollywood, and other shows as well as numerous commercials.  Acting is where my life was when Kaitlyn was diagnosed in 1992; I do hope to return after we find a cure.

(I am told that it make sense to add awards to your page—so here are a few that I have been fortunate to receive)
* Jeff Hitchcock Distinguish Service Award from The Children with Diabetes in 2008
* Man of the Year by The LI Advertising Club
* Diabetes Advocate of the Year by the American Association of Diabetes Educators.
* LIONs Club Robert Uplinger Award for Distinguished Service
* NYC Transit Police Award for Film: Diversity;
* Emmy Award Nomination, Best Public Service Commercial Spot dLife “Test Don’t Guess”
*Winner 13 Telly (former Cable Ace) Awards
*4 nominations and The Best in Medical Media; The FREDDIE Award.
*Won FREDDIE Award “Sexual Intimacy and Diabetes”
*Commendation, The White House  for work in the Katrina efforts organizing relief efforts to over 10,000 people with diabetes.
*The George Estabrook Award/Alma Mater Award of Hofstra University for his work in diabetes and television.

I’m presently the Vice President of the Diabetes Research Institute Foundation in Florida because I believe they are the leaders in actual cure-focused research for my kids; there is no one better out there with a more collaborative effort than the DRI; and I am always looking to see if any one place is better.  So far I have not found one so my ‘day job’ is with the DRI.  Considering where we came from, I count myself honored and blessed that ‘my job’ is also my passion.  Diabetes is a 24/7 aspect for me…….and I cherish that opportunity; it has been quite a journey.

I’m married to Jill and we live on Long Island.  I have worked for dLife and also the JDRF, have volunteered for the ADA and many other diabetes organizations; and proudly I serve on Long Island as a member of the Patchogue LIONs.  I’m a Children with Diabetes (CWD) dad and credit them for keeping us as informed as we have been to this date.

I welcome ALL comments and feel free to always contact me at tkarlya@drif.org. We are all in this together, and it is only together that we can change the paradigm of diabetes from care to cure.  Thanks for stopping by to say hello.

 

11 thoughts on “About me :)

  1. I have seen your website today for the 1st time. And you really inspired me with your commitment towards your children. My daughter (14) is a T1 diabetic since the age of 5 and yes it”s been a learning curve. But looking at others like yourselve, it gives me hope and inspiration. Thank you for this. Greetings from South Africa

    • Why thank you Lynn from across the world. Please stay in touch as we are all in this together. This is a marathon, not a sprint, As a community we can inspire each other to do great things. Out limitations are our own imaginations and certainly the same for our children with diabetes.

      If you go to my FB page –go to Diabetes Dad—hit ‘like’ and you will see each time I publish and of course always feel free to share with your friends. If ever you need anything—do not hesitate to call upon me.

      Thanks for writing.

  2. Hey great father, :)

    I’m impressed by your blog. I’m sure will come reading what you write. I had a late diabetic lovely dad. I grew up with a desire to help diabetic children and their families.
    I’m doing my graduate project on the sibling diet of the diabetic children. I’m looking for parents who have diabetic children and non diabetic siblings . Can you help me find information to get to them?
    Thank you,

    Samah

  3. I am a Diabetic Dad since 1989 when our son Barry was diagnosed as Type 1 at age 21 I have been searching the Internet since 1998 for information to post on our Diabetes websites and only recently discovered your Diabetic Dad blog. It is Awesome! I would like to post a link to your blog at our new Facebook page, Diabetes Fans Race with your permission.

    Thank you for all the good information you provide.

    Gary Buchan
    Diabetes Race Fans

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