NOTHING Against The “100” Club….BUT for Your Kids’ Sake Be Careful!

meterI debated with myself for some time to write about this subject because when something seems like it could be so good, I do not want to dampen anything.  But the more I thought about it, the more I thought that it was a discussion that needs to be had. It’s surely food for thought and surely your thoughts are always welcome.  I believe that we should celebrate any and all of our kids’ accomplishments…..diabetes or not.  If there is an opportunity to bolster them up and make them feel good about themselves…………….I say; let’s do it.

But sometimes caution has to be used on ‘not’ necessarily what is, but when it ‘isn’t’ present; that needs the discussion.

There is an ongoing idea out there to celebrate when a reading comes up at ‘100’; and my discussion today is not to take issue, necessarily, with the idea but to have you consider thinking that out a little further than just the idea of posting the ‘100’; that is becoming more and more popular.

Here is my thought, and feel free to push back on me–it’s just that; a thought.  It is not so much the ‘100’ that concerns me, it is the 287 that follows on the next day.  Hitting a ‘100’, obviously, only happens sometimes.  And if one makes a big deal at getting ‘100’ and the child thinks that the number is terrific, and wonderful, and mommy posts a picture of me holding my meter showing a ‘100’……well what happens when mommy does not do it at 86, or 118, or even 165…….not in your mind; but in the child’s mind? When it does NOT happen, it does two things: the first is equivocate it to the test being hung on the refrigerator, and the second thing is from a child’s point of view, when they do not reach ‘100’ and a fuss is not made——they have failed.

I have said it a thousand times.  Growing up, and from the time Kaitlyn was diagnosed (and we were advised by the brilliant, late, Dr. Richard Rubin) and every time we checked her blood sugar, all we said was ‘thank you’.  The number was nothing more than a gauge to decide what to do next.

Because it’s not the making of the fuss over anything that is the point to consider, it is when you DON’T make a fuss; what is your child to think? What is THAT message.  And with diabetes, even when they try their hardest, that number should not ‘reflect’ their (nor your) efforts.  The only thought is that whatever it is, it’s not as good as when mommy and/or daddy made a fuss over it the last time.  This goes even more-so for an A1C.

These numbers are there to help guide us on a map of this journey with the new normal.  Just be careful when celebrating things diabetes…..building up a child a little, only to disappoint them that much more when not celebrated, is something to be avoided.

And in diabetes, those non-optimum numbers come too often to make anything more out of them than what they are……road signs on what to do, and not a measure of accomplishment.  Don’t measure their efforts by a number.  Celebrate what they do, living life to the fullest while managing this monster!

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

An Airport Diabetes Disaster….I was Scared….DO They REALLY ‘Got This’?

Bear I got  thisGood Morning,
Dad here.
Again.  :)

I was on my way home yesterday and as I was in the airport I noticed a commotion going on.  As you know, I’m not really a ‘gawker’, and there was surely enough first responders on the scene that any help I might have provided was not needed.  But as I kept walking the ‘patient’s’ insulin pump caught my eye.

I slowly moved closer and watched as the paramedics were working frantically on the patient who visually had sweat dripping off his face.  He was in his early twenties; not too unlike you both.  My observations were that they were surely interested in getting him off the chair and onto a gurney; but little reaction dealing much with his diabetes.  There was a young woman also on the scene who answered my questions about glucose numbers, pump suspension, glucagon, and treatment.

She informed me his blood glucose number was 24.

Barely conscious and clearly completely out-of-it; I asked why the glucagon kit was still sitting here.  “The paramedics did not want to use it, he was not passed out; and they were unsure how much to give.”

Seriously?

Passed out is a very relative term.

They told the woman who was there, that she could meet them at the hospital.  The plane would be missed, the next few hours would be a blur.  Clearly as I watched her pick up his cell phone and tablet, all still turned on which means this young man was in the middle of what anyone would do while waiting for a plane when he was struck down where HE HAD NO CONTROL, she said in a quiet voice; “He always says he ‘has this’ and that there is nothing to worry about, I had no idea what to do.”

She gathered the belongings and I watched her walk down the hall.

I have not been able to stop thinking of this woman all night; and also thinking of both of you.  Now clearly mom and I ARE versed enough to know what to do.  But the young lady with this young man…..did not.  THAT is what I cannot get out of my mind.

I know.  I know everything you are thinking but when she said the words “he always says he ‘has this’…….well those were words I have heard many times.

But, my dear children, IT IS NOT enough that you ‘have this’ because you only have it until you no longer do.  This young man dropped like a rock.  Do the people around you ‘have it’ also?  Do people with whom you interact know what to do when/if you go low; and surely as the sun rises……you will.  The question is how low will it be on that day?

You are on your own.  I get it.  The ‘policing’ we do has surely diminished.  But today, I got scared. Really, REALLY scared.  I trust your judgment.  I know you say you ‘got this’.  I also saw a group of people who were working on a young man’s medical needs and as they left; the vial of insulin in his pump was no longer in the insulin pump and dangled from the gurney as he was pushed into a waiting ambulance—-this was how they turned off the pump.

This might have all been avoided.  The woman with him, did not know.

Please tell me the people in your lives do.  And if those who do not, they will soon.

I saw your faces today, and I got scared.  Please assure me, and mean it, that you AND ALL those around you…..’got this’?

I love you,
Dad

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

Why Does it Still Hurt So Much After SO MANY Years???

Broken heartSeptember 26th, 1992 was a long time ago.  So was March 20th, 2009.  These dates are burned in my head when the youngest two of our three kids were diagnosed.  You know your dates too.  It wasn’t fair then……and it has not become any fairer over the years….in fact, the complete opposite.

I consider myself a very positive person.  We have done everything within our power to instill in all three of our kids to look for the positive side of things and also that it is within our own power to change whatever is thrown in at us.  We can’t control what comes our way sometimes; but what happens with it when it arrives is completely up to us.

Those are not just words to us.  We all live by them.  But make no mistake about it, there are moments that I absolutely want to scream my head off.  That never goes way.  The aching in my heart is actually more-so now than when we first were at the hospital dealing with the initial shock of the news.

The pain still hurts.  The pain still exists.  The pain did not go away after time.  I still ache, I still cry, and I still ask why?

How about you?…….The same?

But here’s the thing.  In as much as I feel these things, I know that Kaitlyn and Rob must feel so much more.  My kids are as different as three children could ever be.  They thrive.  They give back.  They just don’t do nothing.  They are my inspiration each and everyday and what our youngest two do, while dealing with diabetes, well that amazes me even more.

But the pain is still there.  It will not go away until their diabetes does.  So I am in it for the duration.

The pain.  As they heard from me all of their lives, you cannot do anything about what happens but you can do something when it takes up residence.  It can beat you or you can beat it.  It’s just that simple.  Now many can, and will, tell you that it is not THAT simple; and the putting into action is surely not simple.  But the first step, looking at yourself in the mirror and saying you will not be beat…..are just words.  And when you first say them, they will start out that way……just words.  But repeating them everyday until they start to take root is what the goal is, and that is where the pain and the action meet.  Where the rubber hits the road as they say.

Because every single time I hurt, or I ache thinking of my kids, as I think of what they go through; as I think of all the ‘what-ifs’ in their lives; it reminds me to push on.  When I feel the pain, EVERY time I ask myself—“What are you doing Tom, at this second to change anything…..change everything?”  Every single time.

Because by doing that it reminds me of all the work that needs to get done.  It reminds me that I cannot stop because of what people say or do.  It reminds me that what I am in is bigger than any other aspect in my life.  That no matter what shape my life may be in, my kids are doing it with diabetes…..and THAT is just not acceptable.

I have taught myself.  As a marathon athlete teaches themselves to push on…….NO MATTER WHAT; I have taught myself.  The athlete calls it ‘pushing through the pain’, no matter what the pain is, push through it—-it will subside.

I push through the pain.  It becomes a reminder to me as it does the distant runner—-the finish line is worthy of the trip.

So whatever the pain is in your life; what you are going through, what someone said, what some did; let the pain serve as a reminder.  You have to keep going.  The pain is nothing compared to what your kids think, do, or even feel.  Push through the pain, for them; because the finish line that awaits, however you define that finish line to yourself, is worth every single tear………….I mean step.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

A President Shot: A Defining Moment…a D-Mom/D-Dad: When was Yours?

Reagan_assassination_wall 2 photos combinedThe picture on the left is the day, in fact the moment, that President Reagan was shot in 1981.  The picture on the right was taken by me yesterday.  With the exception of the flowers that have been added, the area outside the hotel is about the same.  If the walls could talk.

This spot represents a defining moment in our history.  In addition to the shooting of a president, there were others shot on that day also.  One was the White House Press Secretary, James Brady.  And although there was strong reaction to handguns when John Lennon was shot in 1980, and there were organizations already in existence advocating gun legislation, it was the catapulting of James Brady into a situation that he never saw himself as a gun shooting survivor, that moved gun control into a direction that no one could have ever predicted.

James Brady and his wife, Sarah, made it their life’s mission.

Now I’m not here to discuss the pros and cons of gun control, I have neither the expertise nor the knowledge to say one way or another.  I am, as many know, a lover of history and historic events.  And there is much to take away from this incident that has a direct relation to you and me and yes, believe it or not; diabetes.  That ‘take-away’ is the defining moment.

As I stood today in the very same spot that would grip headlines all around the world, and would cause havoc in four people’s lives and worry a nation for days while the President recovered, I was struck by the complete lack of knowledge of everyone coming and going through these doors today.  Did they know?  Do they realize?  If you are a gun control advocate, to you, this would be sacred ground—-not only because of what happened but because of what it represents.  It was here that two people were thrust into a life they wanted no part of, had no plans to be part of until fate stepped in and changed their lives, and yet they made a decision that the life they knew “would just not do”.

And it is that very thing that relates THIS place to us.  Everyone of us who either have  a child with diabetes, or has diabetes, has had to deal with a moment, THE moment,  when fate stepped in.  A defining moment.  A moment where once the grief subsides, we are left with a decision on what happens next.

My ‘entrance to a hotel’ was Stony Brook Hospital where my daughter was in a crib-like bed when I saw her for the first time after she was diagnosed with T1D and I pledged to my daughter that we would ‘fix’ this diabetes.  Diabetes may never be given the platform of becoming such an event in our everyday lives which garners national headlines to ‘start a movement’, but it will always be a defining moment to each one of us as individuals.  Will you take the moment, remember it, and do something about it?  Will you just ‘don’t do nothing’, as I have stated a million times?

The day impacted all of those involved.  From becoming a pastor, to retiring, to becoming a chief of police, to possibly redefining a man’s presidency, to becoming advocates for a cause as James and Sarah Brady did.  Some twelve years later, President Clinton signed a bill that the Bradys had fought for bearing his name.  Their defining moment had been realized.

Although some things take time, remember that when fighting for things that we feel is important, the things we fight for WILL come to pass.  They must.  Because a defining moment in our lives gave us the power to succeed in whatever it is that we decide is important.  From making sure our kids will get back as close to a normal life as possible, to changing the laws in our land; it comes down to each of us making a decision at a moment in time that defines us.  What was yours and what did you decide to do about it?  What will you decide to do about it………today?!?!?!

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

Is There a Great DIABETES Divide with Us and the World Around Us???

two mountainsDo you ever feel like there is a ‘great divide’ between those of us in the diabetes community and the rest of the world?   It’s not just a matter that there is much misunderstanding, there is this kind of ‘hill’, or maybe ‘mountain’, that we cannot seem to get over for the world to understand what it is like to be a parent of a child, much less a person, with diabetes.  To get the ‘outside’ world to understand what we go through seems to be just that——a GREAT DIVIDE.

So my question is, what are we doing about it?  To me, I would much rather reach five people a day who knew nothing about this disease than reach much more than that who already know.  I think it’s a practice that could serve all of us very well.

Everyone thinks there should be a huge grandiose movement to change the tide in diabetes.  Let’s do XYZ……really?  The day after XYZ is accomplished, we go right back to the way things were.  Now don’t get me wrong, seeing structures all around the world in blue is a wonderful thing,  But as my dear colleague, Lori, always states, “what is the follow-up.”  We know these structures are blue….does the world?  Do we do anything to let the local people know why something is blue?

Again, we think it’s wonderful when we see these structures blue in November; but if we do nothing to spread the word outside of our world, well our world is the only one who will know and outside of a warm fuzzy feeling inside, it really accomplishes little.

There is a woman I know.  She does not have tons of money; I have never seen her at a black tie event, she is not ‘out there’ in front of the diabetes world telling everyone what is happening in her life yet she spends a great deal of time going to school after school doing diabetes education.  No fund-raising component to what she does…..just education.  One child at a time.  No fanfare, no recognition by elected officials-just systematically, building-by-building, classroom-by-classroom, child-by-child.  Imagine if just a thousand of us did that yearly.

Her efforts are humbling.

We have all of these initiatives (walks, rides, galas, events), days (World Diabetes Day, Diabetes Awareness Day, Wear Blue on Friday Day), hundreds of the world’s best known structures lit up in blue; and millions of writings happening every day—-how much of these efforts REALLY WORK TOWARD educating the outside world?  All of these incredible happenings and I ask, how’s that all going for us?  How much has the world learned about diabetes?

That’s my point.

Not to be misunderstood, all of the grandiose ideas and huge events are wonderful and they help a great deal.  But are these events occurring; and we as a community are missing an opportunity?  What is the follow-up to the world-at-large?

The next time you want to do something and you think that whatever you are doing is ‘insignificant’–remember my friend; that if you find a way to educate a handful of people who know nothing about diabetes——that may have much more impact than talking to a hundred people who do.  Food for thought.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

In the Mirror; What your Child Sees……..Is Up to YOU!!!!!!!

mirror babyThere is a video that just started making the rounds online.  It was created by the people of Dove.  In a few places around the world, they built two doorways.  They both are clearly marked; one-beautiful, two-average.  The exercise was done to show what people think of themselves.  The majority of the people went through the ‘average door’.  It said a lot.  I did not like that it was so female oriented, but Dove made it-I did not; so it’s their call I guess.  It’s also a tad longer than it should be at over 3 1/2 minutes but you can look at here after reading the rest of this article. The video got me to thinking about our kids.

Whether we know it or not or even like it or not, there is a psyche side of diabetes that must ‘play on their heads’ with ‘the contraptions’ they all wear.  There has to be a side of them that plays on their minds when they think of being intimate.  I know it’s hard to think of our children as sexually active but the truth is that you need to get over that thought.

When I was in college I took a course called human sexuality.  Dr. Hittleman was actually an expert in the field and he taught us well on many aspects of sexual behavior.  He was very good at breaking down barriers about sex being this dirty little thing that needed to be kept under lock and key. He taught us how beautiful it is.  “The absolute closeness of two human beings, and yet, no one ever talks about it.”  I remember that statement well.  So in that spirit I bring it up today because all of our kids, at some point, will become and stay active.

Ever look at yourself naked in the mirror?  We have all done it.  Ever look and say “good God, I need to…….whatever (lose a few pounds, work out a little etc etc).  Now imagine our kids and they have a cgm stuck in them and/or a pump and/or a million tiny dots from years of testing and injecting and changing sites…………….what goes through their heads?

It’s important that we do all we can to make sure they accept themselves as they are.  I don’t mean just that parent ‘mushy’ kind of stuff.  I mean really instilling them with self-confidence.  This is not, necessarily, just for your child(ren) with diabetes either.  Self image is taking a hit in this country….and it starts at home.

Encourage your child at every opportunity.  Even when they fail, it’s our job to build them up.  My dad was a very tough disciplinarian.  If my five brothers and sisters and I ever spoke in ANY manner of disrespect, we paid a price.  My brother was once on the phone and he said something along the lines of, “Let me ask the old lady about XYZ (whatever it was).”  My dad heard him and he paid a price when he hung up the phone.  Name calling was just not done in our house growing up and we have done the same with our kids.  Name calling is the first way to chip away at self-image.

I have heard some kids with diabetes refer to themselves as ‘damaged property’ which just kills me to write but you need to know that IT is out there.  Your kids are very self conscious about how they look.  And don’t think because your child has diabetes……well….forever that the thought does not ‘pop’ into their head and that they have ‘learned to live with it’.

Everywhere we look these days, the media defines what ‘they think’ perfection is and there have been some pretty significant means to try to turn that tide.  The smallest percentage of people ‘look like that’ and it’s important that not only we don’t fall into that trap, but to make sure our kids don’t either.

Perfection is who we are; just as we were made and just as we should live day-to-day. The more confidence you instill in your child(ren), the better they will hold themselves up as they grow up.  There is nothing more attractive than confidence, and the best place our children can find that, is in the mirror.  Help them get there.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

Diabetes Shark Tank—–An Idea Whose Time has Come…..Yes?

Shark TanklTo say I am a huge fan of the TV show Shark Tank would be an understatement.  At this point, in my watching, I usually can tell who is going to be ‘eaten alive’ and who has a shot at getting funding.

In case you do not know, Shark Tank consists of 5 people from varying degrees of business and financial success (but all hugely successful), who sit on 5 chairs as potential entrepreneurs walk in and give a ‘pitch’.  They are seeking funding to help them grow their business.

The entrepreneurs present, and the five decide if any one of them thinks it is a good idea to become a partner.  They can ‘make an offer’ or say ‘I’m out’.  All can drop out–and they get no funding and leave, or one can want to become a partner, or some can even ‘partner up’ if they think it is a good idea and the presenter could end up with 2-3-4….and hugely rare–even all 5 sharks investing in their idea; many have become millionaires themselves when a ‘shark’ becomes a partner.

Shark Tank is an engaging show.  People who have started small businesses and want to expand their product line can become hugely successful…….if you have a “Scrub Daddy’ in your house; Shark Tank is the reason why.

There is also much you may not know about the research world.  People have no idea of the difficulty in obtaining funding for scientific research’ diabetes or for any disease-state.  Proposal, upon proposal, must be created and sometimes they are one-two-three hundred pages in length.  These proposals are submitted by researchers to obtain funding.  Almost any funding source, whether it be government, private, or from organizations will require this arduous process.  It kills me when I see all of this time being spent on proposals.  I get it.  There needs to be some sort of mechanism in place to know what is good or not; I really get it.   BUT (you knew there was a but) when I read about business deals ‘done on a handshake’ for millions of dollars, I ask myself why do researchers have to take so much time out of their schedules and exhaust themselves in this process; and then I read that company XYZ is partnering with ABC to the tune of millions–basically—-on a hand shake (okay I get that too, there are discussions regarding the product but I also know some of these deals, and they are done on a lot less than what a researcher must go through)?  It’s just not fair.

Then it hit me.

We need a Shark Tank approach.  Five of the biggest funding sources, or richest people in the world; imagine Bill Gates, Warren Buffet, Larry Ellison, Christy Walton and Michael Bloomberg sitting on chairs, okay–very comfortable couches; all set up to listen to those who need funding in our diabetes research world…..Imagine?

No hundreds of pages, no boxes and boxes of grant writing material, just someone in front of the five money sources hearing the pitch.  Of course everything would be contingent on scientific data, but that can all be validated after the verbal pitch for funding…….wouldn’t that be cool?

You may have no idea how much time is spent in ‘grant writing’—-I can share that it is a lot.  That translates to time out of the lab, and focus being shared….and not looking for a cure.   In addition, if it was a television show…..imagine the exposure for different disease-states?  Imagine if they decided to fund something with the contingent that their money gets matched by Americans, or by anyone who watches around the world.  XYZ will give 5 million dollars but viewers have to donate the same amount via 5-10-15 (or more) dollar donations.

Hmmmmmmmmmmmmmmmmm………..this could be a real hit series.

Hey Hollywood…………..do I have an offer?

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

Are You Asking…or Do You Want to be Told What You Want to Hear…CAREFUL!!!!

Danger Bad Advice AheadThis was a hard article to write but I have never shied away from a discussion that should be had.  I’m also shocked when, undoubtedly, someone writes me privately and says, “……are you referring to ‘such-and-such?”  Interesting thing is that I will get numerous such emails and I will not be referring to any specific story or comment whatsoever.  When I am referring to something specific I will let you know.

Today I ask; have we come to the point that ‘correct diabetes care’ is pushed aside to the; “this is my family and you cannot tell me what to do”—-syndrome?  No one need to listen to me and I’m very careful about giving direct personal advice to anyone; and that includes avoiding.

I try to respect that we are all on the journey, albeit our  own journey.  Years ago, when at a support group meeting, we would seek the advice of many.  We would listen what people would tell us, confer with our medical team, and decide what made sense medically.  “WE” were taken out of the equation on what we felt was appropriate…..we wanted what was medically sound.

Is that still the case?

If, medically, we are told that we should be careful of XYZ and not do XYZ; and someone asks if they should do XYZ….so many walk so carefully and comment; “….. well you need to make the decision for you and yourself and do what is right for your family.  My doctor told me know not to do XYZ and I did anyway and nothing happened so they were wrong….make your own choices honey.”

Does that sound familiar?

Now I’m not out to start a world war here in saying what we should do or what would should not do in our world of diabetes.  Or seek input wherever and whenever we can.  I am saying, “be careful”.  KNOW THIS: Someone else’s advice was only right for them; it does not make it necessarily right for you.  Conversely, if someone tells you that something was a wrong choice, know that it was only wrong for them.

Advice?  Ask away.  Just make sure you weigh everything in what you hear and what you are being told.  And just as you ask a million people their opinions, your medical team–or members of the medical community—-must be in the mix as you weigh what to do and when to do it.

I am not saying medical professionals do not make errors….they do——and so do we.  My warning is this, and this is the question to ask yourself: “Am I looking for an answer, or am I looking until find someone to tell me what I want to hear”.  I’ll say it again; Are you looking for an actual answer, or are you looking until you find someone who will say what you want to hear.  The difference is huge and KNOW the difference. And as in anything that we choose for our kids, or ourselves, the decision is yours to make——just don’t fool yourself as you search for knowledge.  The loudest and/or pushy answers/conversations, may have nothing to do with you at all……..don’t fall into that trap.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

Diabetes Language….Blah Blah to Others; Is Understood by Us!!!!

Diabetes languageA while back, Rob and Kaitlyn were discussing something about their diabetes.  The conversation was theirs, and I will not reveal it, but I will say that what Kaitlyn said I could never say.  I have often wondered if people who have diabetes have a language all their own.  Or, at least, a ‘pass’ to say certain things to each other that unless you have it also, you could never say; or WOULD never say.

I guess in any ‘community’ there is language that can be shared that if you are not in that community; you either don’t know, or have no right to speak in a certain way.

We, as parents, have the same inferences I’m sure.  Terminology such as shots, injections, site changes, ‘high’, and so on would mean things completely different said in…….say….. a supermarket rather than said within a group of parents.

With parents, I believe, there is also an entire unsaid dialogue.  A set of understanding events that only we know, feel, and worry about.  These are the pitfalls of diabetes.  The things we do not address out loud and know in our hearts.  The things that ‘could happen’.   But don’t fool yourself for one second…….not one……if you have a child that is allowed to ‘go online’……they have already checked it out.

Your child knows those things too.  Don’t think they are not FULLY AWARE of the things that WE don’t say out loud.  Yeah, THOSE things.  Complications.  Death.  Life expectancy.  Future.  Yeah, I’ll say them…….because they know too.  They have known for a long time.

Did I just put a pit in your stomach?

But what should excite you, and make you smile, is that despite all of those things your child, or kids, who have T1 catapult forward in this life.  They are not beaten down with the things that could happen, they live with the things that will happen.  As I have quoted my daughter a million times; “I have diabetes, diabetes is not who I am.”

One of my favorite sayings ever.

Diabetes is not who they are and MAKE SURE you have given them every bit of education possible.  Make sure they are ready.

After one our performances in NYC, we had a high school theatre group at the show who had a Q&A with the cast afterwards.  While everyone was speaking ‘pie-in-the-sky’ about the ‘business'; my friend and wonderful actor Glenn Taranto (Gomez-The New Addams Family etc.) hit them right between the eyes by telling them that they should not come to NY until they are ready.  Until they have done their homework.  Until they have everything they needed to move forward.  And if they have not done it yet, they don’t belong in a place where everyone else HAD done their due diligence.  It was the brutal truth.  I never forgot his words and his delivery…….he was 1000% correct.

WE don’t belong in a place where everyone else HAS done their due diligence.

And the brutal truth is that we MUST keep teaching ourselves so our kids keep teaching themselves.  We MUST do our due diligence in diabetes education. We MUST pass it on to our kids.  They MUST learn to do it for themselves as they get older.  Make sure they are ready.  If you are NOT READY…..do you really expect them to be?  Because if you don’t know, they never will.  SO LEARN.  TEACH.

You cannot BEAT something unless you know it inside and out.  Diabetes cannot win and you must do everything in your power to make that come to pass.  And that is a dialogue we can all understand; should understand.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

The Impossible Dream……If Not for our Kids…….for Whom??????

 

Man of La ManchaTo fight for the right, without question or pause …
To be willing to march into Hell, for a Heavenly cause …
—–Man of La Mancha
Sometimes, it feels like Don Quixote trying to fight windmills all day with very little results (you can read the story sometime to understand that reference).  I was in my fourth bariatric center over the weekend.  Each attached to a major hospital.  Never with an appointment.  I introduce myself.  Ask to speak to the Doctor in charge.  I now have a new-found feeling for Pharma Sales Reps.

The front desk people try to dismiss me, that’s their job I guess, and I state that I am a writer, and when I ask, “Should I just write that your Doctor has no comment in my article?”  That, at least, makes the person find the doctor and ask what to do with me?

I tell them I need only two minutes.

So far, the Doctor has come out each time.  So far.

I choose large centers because all of them have advertising budgets.  I have heard all of their commercials.  Their commercial spots are clearly focused on the T2 market, that is their call–it is their advertising dollars, but they do not specify anything in their spots.  My request is simple.  Kindly put the words Type 2 in the diabetes spots they run.  I do not want to get into a long discussion.  I explain why.  I probably should try to accomplish more but why make it so complicated.  I choose the battle I want to have.  On this day, these are my windmills.

Four out of four agree.  One doctor literally gasps; “I NEVER even thought about it that way until you said it.  That kids with T1 would hear the spot.”  I emphasis and drive home the final point.  No surgery will make their diabetes ‘go away’.  Not yet, anyway.  She assures me that their spots will be changed and so will their literature.  While there, I hang a few posters in the hospital cafeteria from Get Diabetes Right, might as well get double the effort in one visit.

Last week I’m in my car with the radio on.  A commercial plays between songs.  It’s a bariatric center commercial.  One of MY windmills.  I know enough time has not gone by yet, but it has.  The diabetes, was replaced with Type 2 diabetes.  No one in the car but me……I smile.

You do not have the resources to raise money so you stay away from events, your call. Point taken.  But if we agree that there are 2 million people with T1 (depending on what number you want o believe) and add 4 million parents and if each just tried one education attempt a month; 72 million education outreach ‘touch points’ would happen every year.  You do not even have to create anything……go to www.GetDiabetesRight.org or the same name on FB and download posters on diabetes education and post them around your neighborhood.

Changing the world is not hard if many do just one thing.  One.  A lot of a little makes a lot.  Period.  I see a world with better diabetes education and THAT we can all do.  That way people will know a little more about diabetes.  Everyone THINKS of these HUGE GRANDIOSO IDEAS…..and yet, we have things right at our fingertips—-and we choose to do nothing.  Just don’t do nothing.

This is my quest, to follow that star …
No matter how hopeless, no matter how far …
Better education can be a reality if we get started; I know I’m not dreaming the impossible dream.  Join in.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.