No One Wins if No One Plays……Where Are YOU?

Clock nothingI had the opportunity, recently, to be in Washington DC.  I love Washington DC and it is one of the most exciting places on earth.  So much happens there and whether you love or hate whoever is in office does not change the fact how much occurs on any given day.

While I was there I had the opportunity to make an observation.  In just a matter of days, nurses, unions, fire-personnel, medical first responders, and students were “charging the hill” to have the opportunity to express to their elected official how important their issue was.  It was an attempt to make them hear about a certain legislation that needed to be voted upon one way or another.

There were thousands of people from each group I just mentioned.  Thousands.  All going up the hill at the same time.  Now just on those four days, whoever would be on the receiving end of whatever had to be said……..received an earful.  A BIG HUGE earful.  That was just those 4 days.  Now multiply all the days in session.  That is a  lot of meetings.   That is a lot of voices.  That is a lot of people.

So what makes you so sure your voice gets heard?

You get all ‘gussied-up’ to look your best.  You have your notes.  You have your heart-breaking story.  You have your photographs.  And you have the ask you want to ask.
Well so do hundreds, if not, thousands of other groups.  Different day.  Different group. You climb the ‘hill’, you meet, you take a nice picture, you may even get a memento to take back……..but what makes your story THE story that representative will remember? How do you know?

In truth, you don’t know.

We never know.  But doing nothing will get you just that…….nothing.   If you say nothing you most assuredly will get just that so when nothing happens because you did nothing you will never be surprised…..will you?

So when nothing gets done…..now you know.  So what will you do about it?  I leave that to you but it’s my guess that if you want a better future for your child, Just Don’t DO Nothing.

Yup, I’ve said it before and I most assuredly will say it again……..because so many movements could use……………………………….you!

I am a DiabetesDad.
Please visit my Diabetes Dad FB Page and hit ‘like’.

 

Do You Doubt Your Child’s Future with T1D? Read this and Share.

kaitlyn-jobDear Parent,

My name is diabetes and you may have just met me or you may have known me for years.  I am not welcome and I know that I’m not.

The young lady in the picture met me when she was two.  On this day, April 5th, she turns 27, old enough to know things but still young enough to say her age without a problem (women understand this more than men).  She is one of those young ladies I do not want to talk about because if you become like her, you make my life miserable. But I assure you that she will have a Happy Birthday today…..because she hates me more than I attack her.  In as much as I have tried, I stop her…….from nothing.

Her name is Kaitlyn.

Kaitlyn created a mantra for herself.  It was not given to her by her parents, she thought of it all on her own.  Kaitlyn stated, “I have diabetes, diabetes is NOT who I am.”  Wow, that hurts.  I like to own people.  I like to make people operate under fear.  I like people to doubt life, others, and their own-self.  If I had a middle name my name would be Diabetes Doubt……because I love havoc based upon doubt.

Kaitlyn is one of my failure stories.  She has not let diabetes stop her from anything from her days growing up, to high school, to where she is today. She danced, could ski, ran track, became a class officer, was in the prom and homecoming court, was a class officer, loved and enjoyed life and excelled in all she tried.  Please do not look at Kaitlyn or listen to her.  She is NOT A FRIEND to me, diabetes.

She has lectured, graduated school, taught, served as a first responder, become a nurse (in the diabetes field no less—-what a pain she is to me), and even got engaged…..diabetes does not like happiness.  She travels for fun and teaches many young people how to live with me; like she has.  She is so resistant to me.

Sure, every now and again I have a good day with her and make her feel bad either physically, emotionally, or both.  But I need to try real hard with her because she knows too much.  But if you ask her, she will tell you that she does not know enough yet and she is always trying to learn more….she is such a pain.

Her parents were like that too.  They even had the nerve to say, and tell others, that education is the equalizer for me.  I hate people who keep trying to learn.  I like people to feel sorry for themselves.  I like people to give up.  I like people to just learn the bare minimum and try to ‘skate by with me’…..I have a field day with those types of people. But not like Kaitlyn, nor her family.  I tried so hard that I even took residence with Kaitlyn’s younger brother……..but even then…….that family does not stop.  And I try really hard to ruin their lives.  And even with their ups and downs, they support each other, they have each other’s backs…….and boy I wish they would stop trying to learn more.  There are others like them out there and I don’t like them either…..those who say that I just will not do in their life.

She has had me for 25 of her 27 years.  I hate her, I hate her family. I hate those like them. They will not let me win.  Don’t be like them.  Please.

Sincerely,
Diabetes.

I am a DiabetesDad.
Please visit my Diabetes Dad FB Page and hit ‘like’.

 

NEWSBREAK: NEEDED Parent to a Child Playing Competitive Football Wearing Omnipod

football player on kneeIf your child played or is playing competitive football; high school or college level successfully, and is wearing (wore) an Omnipod—-kindly email me at tkarlya@drif.org.  I would like to speak with you as I am looking for advice how to play while wearing the device.  In the subject line please write ‘football’.

Thank you,

I am a DiabetesDad.
Please visit my Diabetes Dad FB Page and hit ‘like’.

 

 

Contact Your Representative: Take the Diabetes Challenge

Capitol ChambersHave you had enough?  Are you sick and tired of just……well….everything politics these days? And I mean on all sides of the aisle.  It’s just too much, isn’t it?

I have an idea.

You see, I’m under the belief that if any suggested legislation is ‘nay’ all one party and ‘yay’ all another party—-they have all failed.  I do not believe that everything is just as one party thinks and if it is not one part’s legislation….it should be voted down.  It just does not make sense to me………..and it never did.

I think we ask, no we confront, the members of the Congress and the Senate to take the Diabetes Challenge.  That is; one piece of legislation this session to better the lives of people with diabetes and pass it ACROSS THE BOARD……..non partisan.

Almost everyone knows a loved one with diabetes.  Our Members can search it out, write it, argue it, but at the end of the day, they pass it across both aisles.

No big 45-page deal….just call your representative and say, “We challenge you Congressperson (or Senator) so-and-so to take the Diabetes Challenge”.  Prove to the world that you can do something that you all agree on that will be for the betterment of everyone in a diabetes world.  WE challenge YOU!

Thoughts?
I am a DiabetesDad.
Please visit my Diabetes Dad FB Page and hit ‘like’.

 

NEWSBREAK: Casting a Person with Diabetes in the New York Area

casting-callIf you have diabetes—type 1 or type 2 and are willing to share your story on why and how you lead a positive life….click the link below for more information and you may be chosen for the world to hear your story.

There is some pay involved as well….click the link below for more information and you need to be in the New York area.

Diabetes Casting

Break-a-leg.

I am a DiabetesDad.
Please visit my Diabetes Dad FB Page and hit ‘like’.

This casting notice is being shared without full vetting process….makes sure you check out all details yourself before auditioning.

Stop Screaming at Yourself Over an A1C

ScreamingSomeday it will dawn on people, and I’m not sure when or how, that the blood glucose numbers one deals with are not numbers of judgment and if you allow them to be….well then you will have to deal with them.
“OMG….what a horrible number.”
“How did I let that A1C get so high…what kind of parent am I?”
“Just got a bad report, her A1C was 9.0……bot did I get an earful.”

Seriously?

Hear me and hear me loudly——there is a huge difference between a gauge and a report card.  We always and in all ways looked at A1C and other diabetes’ numbers as gauges to help us rectify whatever situation we were in.  We never got worked up about the numbers and I see no reason why that should change especially if there is such an incredible effort to do one’s best.

When an A1C number is high, figure out why it is, and adjust accordingly.  Not with a self-lashing or belittled approach by anyone else (including your Doc).  The number is 9.0 and that seems a bit high.  Why is it high?  What do we need to do to lower it?  Is there anything that can be done differently to lower it?

Nothing more……..nothing less.  A gauge.  Correct and move on.  Period.
’nuff said.
I am a DiabetesDad.
Please visit my Diabetes Dad FB Page and hit ‘like’.

NEWSBREAK: RYAN REED WINS IN DAYTONA…..Diabetes at 187 mph!!!!!

Ryan Daytona 2017I have no voice from screaming at the TV.
Car accident after car accident.
Two involving Ryan.
But still, he kept coming back.
And kept coming back.
In a race that went into overtime….
Ryan Reed won at Daytona tonight in one of the longest races ever on record.

BAM TAKE THAT DIABETES.

My heart was pounding through my chest as I screamed at the television watching this young man who not only has won over an entire diabetes community….today he beat three powerhouses with incredible driving to win….and win over the racing community with INCREDIBLE DRIVING………and won big in Daytona.

And yes he mentioned the wonderful folks at Lilly who sponsor him and yes, he mentioned that it is a big win for people like him with T1D.  He again showed poise, grace, and deflected all attention to his team.  Congratulations to his family, his team, and Lilly Diabetes for sticking with a winner.  Nice job, all.

But it’s Ryan at the wheel.  It’s Ryan on the gas.  It’s Ryan checking his blood sugars at 187 miles per hour.  It’s Ryan at the checkered flag.
LIVING with diabetes. DRIVE that home to your kids.

I am a diabetes dad.
Please visit my Diabetes Dad FB Page and hit ‘like’.

NEWSBREAK: CBS This Morning Reports on Insulin Costs, The Players, and the Lawsuit

CBS This MorningAs I wrote/reported recently on the story in Diabetes Daily, there is a lawsuit pending against the insulin companies regarding collusion on insulin pricing of late; and I also have stressed on how all parties need to react and must come together (read it here).  Today, on CBS This Morning, they report the story in more detail.

What I would like to stress about this story, is as I have also stated countless times, it is touched upon here in this report but do not just gloss over it.  At the end of the report, the reporters discuss how much finger-pointing there is going around—-THIS IS SO CRUCIAL because the finger-pointing will continue as long as ALL OF THE PLAYERS ARE NOT SITTING AT THE SAME TABLE AT THE SAME TIME to fix this problem.

It also will not matter what national health plan is in place, and do not be led off the path of what is important:  ALL PLAYERS MUST COME TOGETHER OR WE WILL BE IN A PERPETUAL, AND UNENDING, CIRCLE FOR YEARS TO COME.

THIS IS WHAT WE MUST ASK OF ALL THE PLAYERS……TO COME TOGETHER.

Here is the story on CBS This Morning.

I am a DiabetesDad.
Please visit my Diabetes Dad FB Page and hit ‘like’

A Year from Today I will Give her Away………But I Wonder One Thing……………….

kaitlyn-jobExactly one year from today I will do something and it will be the only time I will ever do it in my life.  I will walk my daughter to the front of where those closest to us will have gathered and I will shake a young man’s hand, and I will put her arm in his…..and I will take my seat, next to her mother.

And she will be married.

The one-year countdown begins today.

I probably won’t write about that often but lately, I have thought about it a lot.  If you know anything about the journey we have been on, it started when fate/life through us one nasty, nasty curveball.  At the age of 2 (2 years, 5 months and 21 days to be exact, but who was counting) she would be diagnosed with type 1 diabetes.

Our lives were shattered.

Our lives would never be the same.

Of these two statements, the first one, we decided, would be short-lived.  There was no room for ‘shattered’ in our lives.  We did not have the time, and we certainly did not have the energy, to live life as if we were a shattered pane of glass.  Shattered is just too hard to put back together again.  So we chose work over giving up or giving-in.  We chose that—-all of us; being the ‘we’.  As a family.  As one unit.  As a drive to never lay down to this disease.  We would do it together.  It would knock us….but we would move on, and move on stronger.  We would try never to stop.

And we never did.

There were so many things ahead to do in this ‘daddy’ thing.

There was silliness needed when tears came along; there was strength needed when fear came along; there were feet to stand upon when dancing was in order; there were daddy-daughter dances to go when the time was right; there were dance nights to attend when the recitals were due; there were accolades to attend when the merits were earned; there were 50 cents to give when deli pickles were bought; there were two-wheelers to do when the training wheels were off; there were Santa Claus and Easter Bunny pictures to take when the season was right; there were butterfly kisses to give and night-time prayers; there were butterfly kisses and a good night song.  There was just too much to do.

A year from today she will be walked down the aisle. We have been through a lot and we have walked together through many things her and me.  A real lot together, all of us.  And we will walk down the aisle together.  I will shake his hand and place her hand in his.  He’s a good man.  He’s a strong man.   A tear rolls down my cheek as I ask myself on this day, one year prior to her becoming his wife:  is it still okay if she always remains my little girl?
I am a DiabetesDad.
Please visit my Diabetes Dad FB Page and hit ‘like’

Don’t Let Diabetes WAG You!

dog wagMany times I am asked, “What’s the best way to handle this disease?”  Now many people will tell you that there is no wrong way or right way, but I disagree.  Sometimes I turn my head and cringe when I read things because I really do not engage in FB banter……about anything.

There seems to be, sometimes, this feeling that anything goes in the world of diabetes. If it works for my child then that makes it okay.
Now…….just hold on a minute.
I’m a firm believer in doing what is right, and I’m a firm believer in doing what works for your child.  My caution is what you base your decisions upon when you choose an approach to this disease.  If you do your due diligence in finding out as much as you can about a particular aspect of this disease; how to manage it, how to handle it…….then more power to you,

But know this—-you can not ‘skate’ with this disease.  It DOES NOT CARE what you ‘THINK’ you should do, it knows what it does.  Have you ever heard the phrase ‘WAG’ with your kids and their blood glucose levels?  Excuse my french but WAG means Wild Ass Guess.  Kids will just give a WAG when you ask…….the problem is that more and more, I am seeing people’s approach to this disease as a WAG.

YOU CANNOT AFFORD TO GUESS.

YOU MUST FIND OUT.

I can share story upon story about people who REALLY knew what they were doing and ended up with not the best results.  If you are not at your best when it comes to knowledge,  you might get along for a while but your child will pay the price.   Each issue should be dealt with as soon as feasible.  If you think you need to know more……find out.  Read.  Ask questions.  Ask more questions.  Things with t1d do not ‘just get better’ they get better because you work at it.  They get better because you learn.

They get better because you act.

So, no; I’m not going to tell you what you should do with YOUR child.  But I am going to tell you that I have learned that there are many, many, many parents waiting to help you, but you have to ask.  Learn what there is to know and keep learning.   Know.  Don’t let diabetes WAG the patient.  Knowledge is the equalizer….never forget that point.

I am a DiabetesDad.
Please visit my Diabetes Dad FB Page and hit ‘like’