I ‘m not quite sure why? Perhaps it ‘s the culture or the climate of late, but does anyone else sense there is a different feeling among posts on social media dealing with diabetes, and the management therein for one’s self or for their child?
It’s as if the the number one rule of years ago, has been forgotten. What you read on social media is not fact, as much as it’s one’s opinion, albeit some really good opinions at times, and that diabetes is not a one-size-fits-all proposition. I’ve witnessed some pretty heated exchanges lately that derail even further as someone’s different opinion’s weigh in, and also from those who feel their opinion is enough for people to believe as a gospel-truth-attitude, sort of a “….that’s the way it is!”…… mentality.
This has always been a very complex disease. This has always been full of many different groups and organizations that are as different as night and day. But here’s the thing, it’s your choice who or what to believe in and support…..or not. The one thing I have always felt to be true is that the equalizer in all things diabetes is education. But it cannot be just the more you know, and that’s it. It truly needs to remain that the more you know, the more you want to know. And you seek those answers because the ever-changing world of diabetes is a constant, and will stay a constant.
This is an ever-changing world and the treatment of diabetes changes all the time. If someone feels the insulin available at Walmart works for them, and have figured out how to make it work, who am I to say other-wise? If someone feels that their child needs a diabetes-alert-dog, go for it. If change needs to happen in our country’s health care, so be it. If someone feels that walking, riding, or fund-raising for one of the many organizations in our diabetes community is something they choose to do, we should applaud their efforts. If you feel that because of pharma companies, a cure will never be found, that’s your choice.
The one question I have asked (as I write this) each day for the 10,412 days since Kaitlyn was diagnosed at age 2, and the 4,393 since Robb was diagnosed at age 13 is what can I do, today, on this day to make a difference in their world. I cannot, as I have stated a million times, just do nothing. What positive energy can I bring to this world that helps us all and does not waste a second on something that does not move us forward. I wish I had the energy for much more, but I don’t. I need to stay focused on what I can do.
I’ve learned many things over the years, made many mistakes (some real whoppers, too) in my children’s lives and in this community. But I also believe I’ve fought for change, have reached out to those in need, and supported those who I felt will bring us to that cure I one day hope for. Not tomorrow, no, but supporting those who will stay at it….because truthfully, if we don’t support these things and fight for these things……who will?
Let’s not waste one second of time tearing someone else down who is dealing with diabetes in their lives like we are. Diabetes gets enough…….it should not get that as well. I am a diabetes dad. Please visit my Diabetes Dad FB Page and hit ‘like’.
Okay my friends——this is about as easy as it gets to make a difference. You can help the Diabetes Research Institute (DRI) raise $50,000 and you do not have to give a dime out of your pocket, but just allow your opinions to be heard. ANYONE CAN BE PART.
Real simple, right on your phone: Text “DRIF” to 31996 You will get a step-by-step process to register——SUPER EASY You will then be given a menu to give your opinions on foods, films, entertainment, stores, and so much more. For each one you fill out, $2.00 will be donated to help the research of the DRI. You can do up to 150 surveys and each one takes NO MORE than 30 seconds and you have until the end of February to complete as many as you wish.
Your info is not stored and you will not be contacted by ANY OF THE companies in the Survey. I have been doing this and it is so simple. Spouses, moms, dads, in the same houselhold or not—-you just need to be over 18 andyou can all participate. Each survey completed; The DRI Foundation receives $2.00.
HERE IS ANOTHER REASON TO DO THIS—-WE ARE ALL INVOLVED IN CAUSES THAT ARE NEAR AND DEAR TO OUR HEARTS. WHEN YOU SEE HOW EASY THIS IS TO DO, I WILL PERSONALLY CONNECT YOU TO THE GROUP SO YOU TOO CAN DO IT FOR A NON-PROFIT CAUSE DEAR TO YOU AS WELL.
Thank for caring……..and PLEASE share this with someone. I am a diabetes dad. Please visit my Diabetes Dad FB Page and hit ‘like’.
As we head into the final week of 2020, do you find yourself saying, as so many are saying, 2020 owes us an apology? What a year.
We certainly have experienced loss in our circle from COVID, as so many have and it has not been an easy year for anyone. The impact of everything COVID; from health to economy, to one of the most brutal election years ever, has left so many in pain and questioning…….well…….everything.
One of the things that I have known since the day Kaitlyn was diagnosed in 1992, is that we cannot do anything about the things that enter our lives………but WHAT we do with it defines how we will end up on the other side.
I’m not speaking of some pie-in-the-sky-life-with-rose-colored-glasses, but I am speaking of trying to move forward at all costs. Sickness, isolation, pain, loss, death cannot merely be wiped away by just sayng ‘life is good’. But what might help is to try taking a few minutes to understand what we DO HAVE as being as important of what we have lost. Take that time. Daily if needed.
Outside of listening to the news to stay informed, I have avoided being sucked into the who is right and who is wrong trying to focus on how to play a role in doing good. Helping someone or a group who have less than you do, is a great way to nurse your spirit back to health. Trust me, there are others who have less and are doing with much less than what you have. If I have learned anything about life, as unfair as it is at times, it’s much more unfair to others. Find those people, and through your pain or anger, help them. In any way small or large, help someone else.
Call someone you have not talked with in a while. Hearing that voice can be heaven. Just hearing someone REALLY want to know how you are does wonders for your heart. So make that/a call. You will be glad you did.
Find someone who inspires you. An author. A writer. A friend. And read something they wrote. Mine came from a most unlikely choice. I came across, Actually, I Can, by Morgan Panzirer almost by accident. I saw it online and what caught my attention was the title; Actually, I Can. It seemed ike a pretty bold statement from any author much less one in her late teens. Almost from the first sentence you feel Ms. Panzirer pull up a chair and sitting across from you she figuratively challenges; “let’s talk”.
At her young age, she has incredible insight which she doles out to each reader as her self-advice she shares in her autobiographical account of dealing with her type 1 diabetes. She holds nothing back sharing her highs and lows (pun intended) regarding her life. She knows she comes from a family that has allotted her much, but she shares in neither a boastful or apolegetic manner. In speaking of living with diabetes she writes, “It has made me appreciate every hour, every minute, and every second I stand on this Earth.” In these most troubled times, her understanding that anything we have should be appreciated, is an important lesson, and in many ways it is taken for granted.
And Ms. Panzirer is correct. Whatever we have should be appreciated. 2020 has allowed me to meet incrdible colleagues who have joined the DRIF, where I work, as well as those with whom I have diligently worked side-by-side for years. People who I have yet to meet in person due to COVID, who have shared their knowledge and drive to indeed keep us focusing on a cure for diabetes. It WILL NOT be here tomorrow but we will stay at it, because someone must. 2020 has introduced me to our granddaughter, who is just the brightest light ever. 2020 has been cruel as much as it has given. 2020 showed an unyielding spirit of those who care (my kids being some of them) in the dragon’s den of fire, they persevere. These people are all heroes.
In 2021, things will not be ‘righted’ very quickly at all, it will take months. A teen-age author reminded me of how much we should appreciate what IS here……..for THAT, I know I am truly blessed and you my friends are part of what I most certainly do cherish in life. Happy New Year and may 2021 move us forward as in hindsght…………2020, becomes just that. I am a diabetes dad. Please visit my Diabetes Dad FB Page and hit ‘like’.
Been a long one, has it not? Quite frankly, before this year I do not remember using words like COVID, quarantined, and isolation so much. I also hope to never use them again, in the very near future, but we are not there yet.
I’m not so sure, either, how something could get so much out of hand without control. But here we are. There’s surely enough ‘blame’ to go around but I’m not so sure that will accomplish much anyway.
There’s something occurring which needs your attention. Something that may be under the radar. Something that is constant. I have written on more than one occasion that everything our kids do; they do with an asterisk. The graduations, the sports, the recitals, the dances, the successes, the failures, all of it; they do with an asterisk.
That asterisk represents a bear of a responsibility. A bear of attention that no child should have to muster. A bear of courage no child should be able to find. But they do.
This time, in addition to everything else the idea of COVID tries to stare our kids down, right behind their diabetes. It dares them to not take COVID seriously. It dares them as a disease that could surely be impacted by having COVID piled on top. But, as always, our loved ones with diabetes lift their chin and like that great motion in the Matrix……extend their hands and with their hand outstretched motion to, “bring it on”.
In fact, dare them, to bring it on.
Because that is what our loved ones do and with COVID is no exception. Our kids wake up in the morning not caring if it’s Saturday, or Monday; it’s just another day with diabetes. They muster up the strength to get through another day. It’s almost as if they are not giving their own diabetes another thought as they go to practice or live life to the fullest. They go on. But make no mistake, there is not a person living with diabetes who will not tell you that it is never OUT of their mind. It is always on their mind.
The difference is that our wonderful loved ones living with diabetes also know that they have diabetes, and diabetes does not have them. They arm themselves every day. They get ready. They plan for the unexpected. They are surely better than I could ever be. They know who they are and unlike those who do not live life with an asterisk, they extend their hand and motion, “bring it on”. I am a diabetes dad. Please visit my Diabetes Dad FB Page and hit ‘like’.
How long have you been at this diabetes thing? I mean, maybe you are not REALLY in this fight, but are on the sidelines, does that sound familiar? Perhaps it’s because your child has this disease and you do not really have to do the battles, could that be it? There are always many others to pick up and continue this fight?
This fight? What does that mean? Everyday is a fight. Everyday is a chance that diabetes will win. Fight for what? To only fight again on the tomorrows that will always come? To have to do battle with everything from a disease, to an insurance company, to doctor’s office, to a list of family memebers who still, after so many years, do not have a clue what is like to share a household with diabetes.
The fight to find a cure? You know the cure that’s only five years away. It’s why people choose not to get involved. Why should we? Pharma companies are only hiding the cure; what good is one voice? Pharma companies rule everything, we stand no chance, why bother? The pain is just so much when one fights a lost cause, why bother?
Why give of one’s time, money, resources, connections, and or another ounce of whatever we have left…….why bother?
Listen for a moment…….hear that……..that sound of nothing you hear is what happens when no one does anything.
Well I believe differently. I believe one should “never underestimate the power of a small group of committed people to change the world. In fact, it is the only thing that ever has.”
Think about that statement……..Margaret Mead’s words of “…..in fact it is the only thing that ever has.”
And the world changed. And it will again, and again, and again, but only as long as someone stands up and says that the norm will just not do. This is not easy. It’s hard. If it were easy, everyone would do it but everyone can’t. The don’t have a child with diabetes. How could they understand if they do not live it? They can’t! You can. You live it. If you do not make this world a better place for your child living with type 1 diabetes; I have a question for you, who will?
Be part of that small group. If you need inspiration, look at your child’s face while they sleep, many have lost their child to this disease while they slept. Yours will wake up tomorrow. What will you do to nake it a better place? Don’t asks someone what they think, look in the mirror and ask that person what they think? Don’t let that person in the mirror out of your sight until an answer is given. Let’s ride into hell together for that heavenly cause!
Never underestimate the power of a small group of committed people to change the world. In fact, it is the only thing that ever has. Think about it! I am a diabetes dad. Please visit my Diabetes Dad FB Page and hit ‘like’.
Hard to believe that on September 26th, we passed 28 years fighting this beast called tye 1 diabetes (t1d). On the day my daughter was diagnosed I promised her that we would not give up until the day that a biological cure was found.
When Barack Obama left the presidency, he was addressing congress when he said, “One of the few regrets of my presidency is that the rancor and suspicion between the parties has gotten worse, not better.” In an interview he expanded on that point stating that he promised he would reach across the aisle and bridge that gap. The reporter started to mention some of the reasons which might explain why it hadn’t happened, but the former President would have none of it stating that he did not say he would do it ‘if’ x-y-z happened, he said he would do it.
I bring that up because the more I’m in this world, the more I believe we will find a cure. I have come to understand what that actually means over these past years. I think it’s time we challenge the research world with a little more vigor. Either something is working, or it isn’t. It is either time to solve the barriers standing between a good research project and a great research project, or pull the plug and move on.
I did not promise my daughter we would get to ‘THAT’ cure if x-y-z happened, I said we would ge there. My patience is wearing thin. My tolerance for mumbo-jumbo is at an end. If you have something, lay it on the table……..if you don’t, stop wasting your time, others’ time, and boat load of money.
I always knew this search would not be easy. The cure is not in aisle 7B as in a supermarket. But it’s out there. I’ve heard so many who have been in this battle for as long as I or longer state, I just can’t do it anymore, it’s a lie, a cure doesn’t exist.
I say, if not us being vocal about it, the sound will soon dwindle out to a mere echo of a noise within a seashell. If not us, who? I cannot stop pursuing that cure. I will challenge those in the research world across the globe. I do not mean to be disrespectful to anyone doing the work needed but the lives of my children are on the line here. If you are wasting one ounce of your energy doing something other than what you have been charged to do, you’re playing with the precious minutes of my children’s lives and with millions of others living with t1d.
My children deserve better. Please, in everything that is holy, give them your complete dedication. I ask you as a……………….. Diabetesdad