The diabetes community is devastated lately with those who entered DKA and lost their lives recently; even before given the opportunity/chance to live with T1 Diabetes. Much has been both written and said.
Kycie’s Family, The Terry Family, chose to live their life ‘out there’ for everyone to see. They allowed us to see the pictures of their life before they were devastated by what has happened. They showed us pictures during Kycie’s tremendous fight. They shared their feelings. They wanted the world to see that something needs to be done. And, although in the early stages since that battle was lost, many are beginning to respond.
What I want to do today is thank the Terry Family. The anguish, I cannot imagine. The respect is beyond comprehension. Who lives their lives in such a way for us to see, and more importantly, for us to learn? I was not the least bit surprised to see that they even shared photos from Kycie’s Funeral.
The photos from the funeral, were/are tough……..but they gave us a chance to say goodbye as well, in our way, from where we live. That could not have been an easy decision and you can go and see on their Kisses for Kycie FB Page. In addition to the stark pictures of reality are the pictures of two of the boys smiling. I liked that. I liked that amidst this horrendous grief, a smile could be seen. From what I have learned of Kycie, she would like that too. Again, the Terry Family seems to understand how engaged so many have become. They have, once again, opened their lives so this time we may be able to grieve too. That takes an amount of courage, a large amount of courage. We thank them.
As I stated, I will be writing next week regarding some ideas people may engage themselves to get involved. Just ideas and many have started already. I have two points today. To our community, I share that this is not a new occurrence. This has happened before, and it surely (and sadly) will happen again. I’m not just saying that, I need that lesson to really resonate with all of us. The internet has allowed us to connect with Kycie and her family in Utah, Reegan’s family in North Carolina, and David in the UK. As we all move forward, I implore you NOT TO LET the feelings we all are feeling just fade away.
In speaking with Reegan’s mom this week, I mentioned that this unfortunate occurrence has happened before and that it is my hope that the feeling within our community does not just fade but, rather, that true actions come out of the emotions swirling around. Strong, tangible actions. Without even thinking she immediately responded with something that stopped me in my tracks; “It will never fade away for me.”
The last thing I want to say is thank you. To these families who are sharing their stories from a heartfelt grief of which I have never known; I say thank you. I pledged my willingness to fight for this to Kycie’s father the day I learned of her death. I pledged it over 18 months ago when I started “a Child’s Cry for Change” and will continue that pledge with, what I hope, will now be an army who also want to see real change.
As Kycie’s mom stated, “Love you mostest infinity”…..let’s prove it by changing the world as needed. As they would want. I think, think; we owe that to them, to their families.
I wrote the following to Kycie’s Family—–it seems the correct way to end today’s article:
You asked for Kisses for Kycie, but in fact; it was Kycie that Kissed this world—so gently, so kindly, so lively. I, no one, can take away one iota of pain. My continued prayers will be for some sort of peace to come into your pained lives. How do we thank you for allowing those gentle kisses to change the world…….those sweet gentle kisses will create a power of change unlike this world has ever seen before. God Bless all of you…….Much, much love.
—Tom ‘DiabetesDad’ Karlya