There certainly is no secret how strongly I feel about the missed diagnosis of type 1 diabetes (T1D). Many long hours after work and at lunchtime I spend spreading the word so we can stop the seriousness of kids seeing a medical professional with flu/virus like symptoms and no testing being done resulting, many times, in disaster.
I even created a ‘town hall’ survey to collect what I call ‘unscientific numbers’ on what was happening in this world……but important numbers none-the-less. I was thrilled to announce recently that the folks at GLU/T1DExchange were creating a survey with an IRB (Institutional review board) approval to obtain REAL SCIENTIFIC DATA to show the world.
THAT SURVEY IS NOW READY.
Before I share that link, you need to know that you must become a member of GLU to take the survey and you will not be allowed to take it unless you do. You can ‘opt’ out of any contact from them if you like, but they will be updating us on the results of the survey so you may want to consider hearing from them, and I leave that to you. There has to be a control group according to the IRB regulations so you must join.
PLEASE KNOW HOW CRUCIAL IT IS FOR US ALL TO BE INVOLVED IN THIS STUDY/SURVEY ESPECIALLY IF YOU HAVE BEEN VICTIM TO THE MISSED DIAGNOSIS OF T1D. IF WE DO NOT HAVE OFFICIAL DATA THAT WE CAN POINT TO, NO ONE WILL HEAR US.
Speaking as a parent to a parent, or an advocate to a person with diabetes; PLEASE take the time it takes to do this survey and PLEASE SHARE THIS WHERE EVER YOU CAN. You all remember the faces of the kids I have posted today. They SHOULD HAVE NEVER died. You all read about them during and after each of the tragedies happened—-they died because their diagnosis was missed. You have a story also. Some of your kids also got very sick as well…..we MUST be able to show and tell those stories.
On THIS we can make a difference. On this we MUST make a difference. Please take the survey and share this story anywhere you can so we can capture the most amount of people possible. I’m so humbled and grateful to GLU/T1DExchange for hearing the Child’s Cry for Change from voices that can no longer speak for themselves.
I am a diabetes dad.
Please visit my Diabetes Dad FB Page and hit ‘like’.