Twenty years are a long time to be committed to something. I have been involved with so many aspects of diabetes but I have been extremely upfront everywhere I speak that my truest dedication is in finding a cure.
It was a promise I gave Kaitlyn on September 26th, 1992 and added Rob to that promise on March 20th, 2009. Nothing has derailed my efforts to that end.
I have given the majority of my time to the Diabetes Research Institute (DRI), not because the Foundation hired me; not because they have a huge amount of nice people. What they have had, and always had, is the same vision that we as a family have strived to achieve; to turn out the lights because the cure was found.
Now, it seems that the light switch may be just an outstretched arm’s length away.
The principal mission of the DRI has never changed. Not one iota. Not to make us more appealing to the masses, not to make us seem like we were everything to everybody, it has ALWAYS and ALL WAYS been about one thing; a cure.
Tomorrow on March 5, 2013 (USA Eastern Standard Time) the DRI will announce a major step towards that end. It is the most exciting thing I have heard since the day Kaitlyn was diagnosed over 20 years ago. It is not pie-in-sky; it is not broken promises; it is real……very, very real.
It has some steps to go, and of that we will be clear. Some of the many components will be in clinical (human) trials within the next 12 months or so and some components are ever-changing. But conceptually, you will see, it is the most comprehensive plan and initiative that addresses each key piece of the puzzle that I have ever seen; and working together we will arrive at the end of what has sometimes seemed like a never-ending tunnel. It is real.
After 2 kids diagnosed, 7457 days, 53,502 finger pricks and a million tears; we are now grasping to the end we have sought for all of this time: to turn out the lights forever.
Tomorrow, March 5th, I will post the actual link; or tomorrow morning you can go to www.diabetesresearch.org and there will be the links on where you can see the information you need first hand. BUT PLEASE KNOW IT WILL NOT BE POSTED (and in fact for much of today our site will be under ‘final construction’) until that time as we prepare the site for launch of the information.
Tomorrow you will find out what I have been dying to share with you for a little while now. This very well could be our final turn.
Once you see tomorrow, email me at firstname.lastname@example.org and ask me what you can do……we have some work to do, but never before have I felt so close. The promise of restoring natural insulin production to millions of children and adults living with diabetes will be outlined.
I am a diabetes dad……….but it very well may be, for not too much longer.
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