I have been pursuing the best possible in-roads to make changes when children visit their doctor’s office with flu-like symptoms and I had an in-depth discussion with someone recently who gave me valuable advice for action.
Our initial go round has been submitted for approval by the grants committee for a publicity campaign to doctor’s offices. This will take some time and at least there is movement in this state-wide initiative. I will keep you posted. We need to do more.
The next step is larger in scope and it is here where I MUST ask your help; for without your help this will go no where. I need official letters of YOUR experiences if the diagnosis of your child was missed at the doctor’s office and what ensued afterward
There are numerous families who suffered the missed diagnosis by their doctor of their child’s type 1 diabetes, resulting in hardships and even death. Under a project called A Child’s Cry for Change, an attempt is being made to change this trend. The goal is to amass a large number of these missed diagnosis stories and present them to leadership in medicine, health agencies and/or government in the hopes that change occurs; the very least being the administration of a urine test (ideally a blood test).
We are seeking families to send us their missed diagnosis stories without naming the physician or treating facility. Please send your email, including your name and address, to: Tom Karlya, (aka DiabetesDad) at email@example.com. In the subject line please write: My Diagnosis Story. Thank you; together we can make a difference.
I am tired of this happening and I will not sit still any longer; I said it a million times, just ‘don’t do nothing’. Will it work? I am not sure but doing nothing is unacceptable to me and we should certainly try. Will you join me?