November 14th I Get; Can We Make the 13th Diabetes Appreciation Day?????

BillboardGo get a piece of paper and a pen.
(I’ll wait.)
Are you back?   Good.

Now start to list everything you do in your day not having to do with diabetes, and not having to do with you, but what you did for someone else.   In other words, “I took a shower” does not count.

Now add to that list everything you do while dealing with diabetes.
(I’ll wait, write fast)

If you did this list you would realize how long it is.  What we do, as parents, is pretty detailed.  Add to the mix our diabetes world, it is truly amazing that it all gets done, don’t you think?  As we go through diabetes awareness month, realize the most important thing………you?

Take a $50 bill and paint it blue, or draw a blue circle on it, and take it and get your nails done or your hair done or go to the movies.  Take ‘something diabetes’ by making it blue and spend it…….on you.

The purpose? So we each realize that he most important thing to know in our diabetes world that with out……well……’us’……nothing would have ‘gotten’ done.  This month is about awareness, right?  Who better to be aware than ourselves.  You know, the forgotten one.  The ones who just truck along and get done what we have to because we love the person who battles this disease every day.

Perhaps on just one day, say the 13th the day before the ACTUAL diabetes Awareness Day of November 14th (which is also the birthday of Dr. Banting of Banting and Best who discovered Insulin) and make that Diabetes Appreciation Day where every person with diabetes sends a note to the parents or loved one who watches your back.

“Hey just a note to say how much I appreciate my guardian angel(s).  Thank you, I love you.”  Send it on November 13th…….Not such a bad idea……right?  Of course it will be on the 13th—-thirteen just makes sense too if you think about it.

Of course none of us do it for any thanks, we do it because we must.  We do it with love.  We’ll do it until the day a cure comes along.  We have to, it’s what we do.  So even if we do not receive any thanks on November 13th, let’s do something JUST FOR US like get a haircut with a blue bill, at least we will look good checking blood sugars at 3:00 am……we deserve that at least, I’m sure.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

The Best ‘Diabetes Blue’ has ALWAYS and in ALL WAYS Been With Us.

blue skiesLong before there were blue circles, blue nail polish, blue buildings, and/or blue…..well anything…….there was a blue that reminded me daily what this ‘diabetes thing’ is all about.  From the time Kaitlyn was diagnosed on September 26th, 1992 I have found peace in the blue skies above.

A dear friend once asked me how I can travel so much and do it so easily.  I have to do what I do, it’s so personal.  The people I fly to meet, do not.  They can give of their time and their money to a million other causes, they choose to support the efforts of the DRI (in my case; your case is just as valuable although it may be for a different organization—all just as vital.).  I totally respect every effort, one dollar or millions; they do because they want to see this disease end…….I LOVE that energy.  I need that energy.

Since that day over 22 years ago I have loved looking toward the heavens and seeing blue skies, it both represents and reminds me of the endless possibilities for Kaitlyn, now also Rob, and the millions others out there just like them who only want a life that allows them to be themselves.

Those same blue skies have shown me that tomorrow will always be better and that something great is happening in our diabetes world every day.  Is it easy?  No, it’s not but it’s surely worth it to try so hard to make their world better; to make better the world of others.  Who gets to do that every day?  Almost every waking hour.

There are other diseases that need help.  Many other causes.  A million other causes.  My dear friend and one of the founders of the Diabetes Research Institute is Barbara Singer, a woman who I love dearly.  Barbara taught me a lesson very early on in this battle, “Hit your own ball.”  Simple approach, yet it has served me so well.  I have too much to do with those who want to help, I have no time to spend idle energy on anything other than to work with those who want to make a difference.

It’s a big world out there, if you don’t agree with someone or some entity; wish them well because their heart is in what they do also just as yours is; and go about doing what you must for your energy to be well spent.  ‘Hit your own ball’ indeed.

So today, let your ‘diabetes blue’ be the blue sky around you.  Let it represent the endless possibilities out there for you and your family.  And when those clouds appear, as they do in life, know that a time will come when that sky will clear up and be blue again.  And those clear blue skies are the best representation of diabetes blue I could ever have in my life………crystal clear blue.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

A Generous Stranger, A Group of Cats, and a Question……What are You Doing?

cats and walter 2Ever wonder how you can do something REALLY REALLY big in our diabetes world??????   I can share with you that it really never starts out being something BIG; it has always been about starting something you believe in.  Whether it grows or not does not matter—-it only matters that it be impactful…..to even an audience of just one.

The picture attached today is Walter.  I was entering a store recently when I heard a car driving up and the horn blew in three distinct ‘honks’.  It was done enough times in a row that it caught my attention, and quite frankly, it boarded on annoying.  As I stood half-in/half-out the doorway to the store, I watched as cats came from every direction.

I may not have known what those annoying honks were, but those cats surely did and it was music to their ears.  As I stood their staring, the woman behind the counter said,
“The Cat Man.”
“Excuse me?”
“That’s Walter, the cat man.   Watch what happens.”

I was amazed when this little old man opened the back of his trunk and took out bottoms of boxes and dumped food on each and laid them down for the cats to eat.  Interesting that some of the cats did not eat, Walter reached back in and took a different food and put THAT food in another box top and laid it down further away and some cats ran to that box because it was different food.  They not only knew the horn, they knew they were getting what they liked.  Twelve cats in all, four groups of three.

I was amazed as Walter went about his business.  Each cat ran and rubbed up against his legs also, as if to say thank you.  My face was clearly showing amazement as the lady behind the counter spoke again.

“Every day……he does the same thing everyday.  In the winter he will have little huts for them to sleep in to get out of the elements also.  We are not his only stop either.”
“Does it bother you that he does it?”
“I’ll tell you something, we are probably the only strip of stores with food, and commercial areas that have not seen a mouse, rat, or even an insect inside our stores in over three years since he started……………does he bother me?  Not in the least.”

Now what Walter does may not seem like a big deal, but those cats think so.  Each of them did not look like your typical alley cat either, they all looked like house cats with beautiful coats and great dispositions.    That was because of Walter.

The take away is obvious here, and can never be overstated.  It’s not what you do, it’s that YOU DO; even for just one person.   Even if it is just one thing.  You have that choice.  At a loss at what to do this month for Diabetes Awareness Month, visit Project Blue November on their FB page—-they will give you something every day to learn and to do; or you can just pick something.  Either do something; or just pass along one of their diabetes facts to five people.  People who have nothing to do with our community.  Send to five docs’ offices, five schools, five forms of media…..do it all month…..it’s something and something simple, but could impact many.  Check it out.

Once you begin, might not be so bad to be known as the Diabetes Person; just as Walter is known as the Cat Man………a man, who by himself, without fanfare, makes a difference……………..and that’s not so bad, is it?

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

November is Blue…….YAY!!!!!……Wait…….Why; Tell Me Again?

Blue PaintWelcome to November.  If you have diabetes in your household, you should be fairly versed on what this month means.  In particular, November 14, as the birthday of
Dr. Banting  (of famed, Banting and Best) who discovered insulin; has also become THE Diabetes Day of Awareness.

I have no problem with the concept of a month for awareness for diabetes but I do have a question for all of us to think about, ‘why has it not caught on?”  Don’t get me wrong, many buildings will be lit in blue and there will be many initiatives surrounding diabetes this month, but outside of our diabetes-circle, who knows about it?

Every year, when this month comes around, I observe and wonder what it will take for the world to stand up and notice.   There was a woman on 60 Minutes last night who was talking about the disaster of what heroin addiction does to a family.  She further stated that these kids with problems end up in jail, when they need help.  She went on to say that people with diabetes do not get sent on jail, they get to sit on a couch at 300 pounds and eat bon-bons.

Wow.  Really?

That’s it folks.  That’s what people say about diabetes.  What campaign worked?  The ones where major industry pounds away that overweight people can get diabetes and THEY need to do something about it and the utilization of their product will help people avoid it.

Too bad isn’t it?

You see, there are too many messages out there about diabetes and for the life of me I never understood why there is not a meeting once a year where every diabetes organization has a representative and a discussion is had about an education initiative for the year, with one objective.  A very simple message.  Whatever is decided.  We MUST GET AWAY from the ‘we-did-not-think-of-it-so-we-are-not-being/taking-part’-syndrome.

Doing the same thing every single year and expecting a different result is lunacy…..yet, it’s done every year.  Those who live with diabetes do not need a 30 day refresher course each year…..believe me they know.   Do we do things for own edification or do we do things to let the world know that diabetes exists?  Do we do things so our own community thinks, ‘how cool is XYZ’, or do we take the steps to teach?  DO we just light buildings in blue or do we let the media know WHY that building is blue during this month as a teachable moment?

Diabetes awareness means just that……awareness.  We who live it, do not need an awareness reminder.  I love all that is done during this month.  I love the fund-raising, the avatars, the color blue, the buildings in blue; I love it all.   Love it-love it-love it.  But this month should also be used to get the word out……not the word in.  So do something about educating others this month, no matter how small you think it is.  You will feel better about your efforts and you will not feel……well……so blue.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

NEWSBREAK: Rep. Graham Presents Copy of New Law to Little Reegan’s Family.

Reegans Rule Law,  Representative Charles Graham visits with Little Reegan’s Family and presents them with a copy of the law that very well may change the face of the missed diagnosis of diabetes in this country.  It was signed into law on October 20th by the Governor of North Carolina.

In that binder is a copy of the law that underwent many changes to become law.  There is a movement in many states based on the premise that better education of the onset of T1D and that kids need to be checked before DKA takes over.  To accomplish the first step is always the hardest…….it is now; complete.

Virus-like symptoms do not mask the onset of diabetes, they should be treated AS POSSIBLE SYMPTOMS and treated accordingly.  I have come to love and fully respect the work of these people……thank you for changing our world.

If you played a role in this initiative in any shape or form, or are continuing those efforts in any way; take a bow—–you are a hero as well.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

The Clocks Being Turned Back IS NOT YOUR ONLY Job this Weekend.

clock syringeWell first of all……Happpppppy Halllloweeeen.  🙂  What a fun day, and when it’s on a weekend, perfection.  Enjoy.

You will go to bed tonight and you will turn your clocks back one hour; Fall…..behind;  Spring…..forward.  The fire department has utilized this occurrence twice a year to remind folks to change your batteries in all of your alarms in the house; fire, carbon dioxide etc., it is good advice.

A few years ago I started to take this occurrence, and use it as well, for a diabetes-reminder.  When you turn you clock back tonight, it should serve as a reminder for you, in your diabetes world, that you have a little bit of work to do tomorrow.

If you are, as we are, and you have diabetes supplies in many different places; today is the day to check everything.

-Check your current stock
-Visit every place you have spare supplies (DO NOT FORGET the cars)
-Relook at your stock pile
-Turn on the meters and make sure they work, test them once if you can.  If you are like us, you have different (brands) meters in different places–check that you know how to use them.
Check all expiration dates on boxes and get rid of them if they are expired.
check your glucagon kit and check expiration date. BUT DO NOT JUST THROW IT OUT.  Click and Read here to know what to do with it.
-Check your battery supply; it not uncommon for us to chuck them at some point and get new ones….FALL out of their storage and into the garbage is a once-a-year reminder to do it in the Fall.
-Check expiration dates on all insulin pens, bottles, etc etc.
-Might not be such a bad idea to check the lancets as well (especially at school), you would be surprised how many people go longer than they should with changing those (like……ALL OF US).
-Alcohol swabs can dry up….open one and dig down, grab one from the middle or bottom of the box, and open another just to see that they are still moist when you open them.
-This is a good time to check your inventory and make sure anything that is coming up on expiring is moved to the top.  Infusion sets etc. should be rotated so the ones at the bottom are not the ones you received two shipments ago.
-On the Monday after you move your clock back, not a bad time to check your child’s supplies at the school, even though school may have just started (it didn’t—it was 2-3 months already).
-Check all of the supplies your child has; back packs, in the drawer, by the night stand; take a look-see and make sure all is up-to-date.
-If you have an emergency kit for disasters etc. (and if you don’t, you should) that you made to grab and go, check everything in there too.

If I missed anything——feel free to add your own ideas.

So when you turn your clock back tonight; let it serve as a reminder to check all of the supplies.  In the earlier days, before we thought of this, I cannot tell you how many ties we would look frantically for ‘the one that worked’.  Use today as a reminder……clock changing day is also check day in the diabetes world.

So if Halloween scares you, just wait to you reach for a diabetes supply that is broken, expired, or isn’t where you think; you will take scary to a new level.  “Boo’lieve me that this is something you should get in the habit of doing now.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

A Dog, A Caring Heart……and a Lesson for All of Us!!!!!

Black LabIt’s just a cute black dog.  But what happened with this black dog is a very important lesson for all of us to learn.  My son was home when our dogs starting barking like crazy.  When they did not stop shortly after they started, Rob went to investigate what was causing the commotion.

A  black lab was in front of our house, investigating our front porch.  Rob could have just opened the door and said “Scat”, or “Get out of here”, so our own dogs would stop barking; but he didn’t.  He question himself as to why the dog was in front of our house.  He opened the door and the dog ran to the driveway and turned around.  Rob watched and waited. The dog stared back at him.  He stepped back inside the house.

The dog came back to the porch.

Rob took down Dusty’s leash (to which Dusty thought he was going out, only to be disappointed).  He went out on the porch and the dog let him put the leash on him as he scratched the dog’s ear.   A friend.  To make him feel more comfortable, Rob walked the dog a little bit so the dog would sense Rob as a closer friend.  After a little bit, Rob found no id collar on the dog.  He did find a rabies shot tag containing some information.  He called the hospital, and the service answered as it was after closing hours, he told the service the story, and shortly there-after the vet from the hospital called.

The vet asked for the rabies shot id tag and asked if it was a black lab and was convinced shortly thereafter that it was the right dog as a match.  Rob left his cell phone number and in a very short time a man called and stated he was the owner.  In just a few minutes longer, the man was in front of our house and picked up his dog.  The dog was missing for a few hours and they were looking for him diligently.

A great end to a story that could have ended a million different ways.  This one was a good one.

The questions I kept asking myself that made me, actually, very proud of Rob was why would he go an extra step?  If the solution to our own dogs barking was just to get the dog off the porch, he could have easily done that by just chasing the dog away, couldn’t he?

Sometimes the short-term answer to a problem does not answer the real problem at all, does it?  Sometimes it takes a little more effort to say, “Ahhhhh, this is the real problem”, and follow-up by taking the steps to solve the bigger problem at hand.  Don’t leave it, don’t put it off, take care of it.

In the end, a man and his best friend went away newly united.  That might not have happened had Rob not looked at the bigger situation and only took care of the annoyance of two barking dogs.  It may seem like a little thing to some but……..the owner certainly did not think so, of this we are positive.

He was very happy and so was the dog.

When I asked Rob about it, he really thought it was no big deal. “How else should it have gone down?”  How it should, could, and do go down in these instances, do not always align.  I just loved it was just how Rob thought it should be resolved.  ‘How else’, indeed.

Sometimes it’s not a ‘big turn’ that’s important, it need only be a ‘big turn’ to the person (or dog) it impacts…….even if it’s only one.   Going the extra step is a lesson always worth reminding ourselves……don’t you think?  Nice job Rob.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

You Can’t Take it With You…….So Don’t!!!!! You May Kill Someone Otherwise.

You can't take it with youI had the pleasure to hear Dr. Jay Skyler tonight.  Dr. Skyler is not just a superstar in the diabetes world, he is a superstar of superstars.  He is a Professor of Medicine, Pediatrics and Psychology at the University of Miami Miller School of Medicine and Deputy Director for Clinical Research and Academic Programs at the Diabetes Research Institute (DRI).

He also is an Adjunct Professor of Pediatrics at the Barbara Davis Center for Childhood Diabetes, University of Colorado at Denver.  Dr. Skyler’s career in diabetes spans over four decades, where his research interests have concentrated in clinical aspects of diabetes, particularly improving the care of Type 1 diabetes through meticulous glycemic control, psychosocial and behavioral support, and immune intervention.

Being involved with eth DRI, I am also fortunate to call Dr. Skyler both a colleague and friend as well.  When it was time for Q&A tonight, the discussion centered around organ donation and the shortage there in; I made a promise to the room when Dr. Skyler threw me the challenge, that I would write about it in my next article.  And here it is.

According to the Center of Disease Control (CDC), almost 2,600,000 people died last year.  How many pancreas donors were utilized?  1200.

21 people die every day waiting for a transplant.  The question is not if you are a donor, the questions is, if you are not why aren’t you?

Every major religion allows you do donate your organs.  Yes you can have an open casket if you donate your organs.  One donation can save eight lives and impact 50 others.

Think about it this way……..
98% of Americans say they have heard of organ support donation, but only 30% know the essential steps to take to be a donor.

Seriously?

If there are about 30 million people with diabetes, and if each person had 4 loved ones—that is 150 million lives.  150 million lives…..how many are organ donors?  No where NEAR that amount.  How many of you are?  How you can you have a loved one with any disease whatsoever and not be an organ donor?   That is not a challenge, it is a question I seek.

Click here and sign up today.

So if you are not an organ donor, become one.   WHAT ARE YOU WAITING FOR?????? As they say, and truly meant, you can’t take it with you.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

Google + Dexcom??? Really???…..An Interview with Dexcom CEO, Kevin Sayer.

Google logoWhen I first heard that ‘something’ was happening between Google and Dexcom, my ears perked up immediately.  I’m such a firm believer that staying within your box, in anything diabetes, eventually leads to being confined to four sides, a bottom, and top flaps.  It’s crucial for any researchers, all researchers, whether for a cure or for technological advances; to open up the possibilities to investigate not just what you know; but to bring in people who may show you what you are not even thinking about.

So when given the opportunity to sit down, once again, and discuss some of the inside story with Kevin Sayer, CEO of Dexcom—I JUMPED at the opportunity.

It’s his kind of forward thinking that so many in the diabetes world need, dare I say must, learn; to truly bring so many ideas to completion.   Here is my interview with a true diabetes superstar, Kevin Sayer talking candidly about everything from FDA navigation to a recent deal with Google……yes, THAT Google.

DiabetesDad:
 How long did the process take with the FDA.
Kevin Sayer: There is a statutory 6 months review time. And in the middle of that process they can ask a bunch of questions which may or may not take you off the clock. And you have to answer the questions. For this process it took less than the six months, and that’s pretty record time. The FDA was very diligent in their review process of this watch thing.

DD: Is it Apple Phone first and the droid second–is that the FDA approval process or is that on Dexcom?
KS: No that is all on us. We have to get the software developed. And we submitted the receiver and the Apple app first. If we could do it all at the same time we would but honestly Tom, it’s our resources and we have to make sure each step is done right. It’s a learning process as well, we felt it better to learn the first platform, get it approved and move on to the second. I am not exactly sure but it may be a faster approval process because it is a software revision for the android, but I’m just not sure just yet how that will play out in the approval process. But I know our Android software development guys are working diligently.

DD: This question is actually from my daughter (who has T1D) “I am a Dexcom user and I do not have the Share System just yet, walk me through how I can use it in my iPhone, if I wanted to use it today.”
KS: Here is the process. We would love to be like a cell phone company and just give upgrades as fast as they do but we, truthfully, do not have that luxury due to the need for regulatory approval; so it’s a little tougher for us. So if someone does not have a Share system then the best route is to get a Dexcom G5 Mobile system. And so we have upgrade-programs for different patients who need different aspects within their warranty programs and most current users can go on-line and get involved in the upgrade program…..and go. The reason she has to buy a new receiver with the G5 Mobile is that the FDA wants each new patient to have a back-up device. The FDA is very cognizant of phone charging and people have their phones plugged in every day to charge, and they want that back up. Once she has the correct set-up, she does not have to actually use the receiver if she has the phone, but we are required to supply it for a back-up. She would go to the App Store and download the Dexcom G5 Mobile App to her phone and she would go from there.

DD: My daughter also asked “I am going to be nervous with just my phone, would my receiver still work and keep it if needed from her Share program, just in case?”
KS: For herself, yes; but the receiver will not share data by itself without the phone. We need the phone to send the data to the cloud for sharing with others. And that’s also the case with the Share receiver now. We understand the value of connectivity and the Share feature so we are working hard to improve those functions for future products. We are trying to cover every base as we move forward on connectivity.

DD: Could you explain your news release as far as Google actually playing a role in the Dexcom platform?
KS: Do you have a couple of hours?
DD: I always do for you, but I know you don’t have that kind of time.
(we both laugh)
KS: Tom, we started talking to Google and they announced a first subsidiary in a health care group. And they have made that a formal business platform with its own CEO (Andy Conrad) with whom I have been talking. Google is extremely good at managing data and figuring things out from data-point-of-view and very good at the miniaturization of devices. They certainly know more about cellular radios, and chips etc. than we do. We are very good at what we do, I have the best engineers there are but when we started talking with them we realized that they could open doors to us on things we just don’t know. The vision for our partnership with Google is to take our core sensor technology and make the transmitter disposable, to be very low-cost, and to be the size of a dime—and about the height of maybe two dimes. You would put on this ‘Band-Aid’, wear it for a period of time and dispose of it and just put on another one. That’s our ambitious goal. We gave ourselves a five-year window to work on this together. To make this device so inviting that anyone can wear it. Google also gives us the opportunity to address Type 2 (T2) patients with our great sensor technology. Many of the benefits that I just mentioned, smaller, disposable and low-cost will likely apply to the Type 2 patients that need to understand their glucose on a continuous basis…information they can never get from doing just finger-sticks.

We have needed a vehicle to help us go there and Google really wants to focus a lot on those markets. And also analyzing the data from the patients. They asked me when we sat down, “Do you know when a T2 patient has to go on Insulin?” I answered, “No” and they asked me if I knew how to detect that, and I told them no to that as well. We want to use sensors to figure that out. SO we look at comments like that and what THEY want to contribute to health care and it could be creating a secondary market for us. We look at our core business and our core patients and everything I said about making it smaller and adding analytics, it’s applicable to all. So what I think you’ll see as our Google relationship evolves is we will have a series of CGM products. This is going to take a lot of thought and research to serve and benefit people across the diabetes space. Google will be a wonderful add as we continue on trying to better serve those in this space.

We discussed my family a bit and the use of a CGM and Kevin picks up the discussion.

KS: Tom think about this, and this was our thought in this Google deal, more than anything else. I will tell you this was a long discussion internally and I have GREAT engineers. GREAT. And now I have Google coming in and saying we should look at ‘miniaturizing’ these things to levels that we could not have fully grasped. If we could put a Band-Aid on your son doing the job of our present transmitter….it’s all over. ………
DD: It’s definitely all over………
KK: ……..And when we looked at that if they can speed us up in getting us there and we can get there with them and their expertise, this is exactly what the community needs. So let’s just go for it……and we did and we are very exciting about all of this.

DD: How did this relationship come about, it’s not as if you run across each in the cafeteria.
KS: We were introduced, they have been studying diabetes for a long time. We did not know how seriously the meeting would go and talks started to go very quickly. And here we are, looking for a really good future.

DD: Thank you again for giving us some time.
KS: My pleasure.

Bravo Dexcom and Google.  Anything to help us deal with this disease, THAT much better, is a HUGE win for everyone.  These wins could never happen without two CEOs looking to at least try to find a synergy.  Listen up diabetes community: Take a page from Mr. Sayer and Mr.Conrad’s playbook in moving the dial forward.  We who live with this disease either ourselves, or through the eyes of loved ones; deserve nothing less.
I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

A Letter of Thanks from Little Reegan’s Mommy!

reegan sun glassesBefore there was a “Reegan’s Rule”, there was a family.  A family, who had all of the dreams any family does.  They are a family of faith.  They are a family of love.  I have never been through anything like what they have been through, and am not sure how I would handle such a tragedy.  I am not so sure I would be as full of love as they are, and have been, through everything they have been through.

In the time that I have worked with Reegan’s mom, the discussion started out as her needing help, it surely ended up differently; for Reegan’s Family helped us.  They taught us.  They taught us that grace by no means reflects weakness. They taught us that faith in what you believe is so much more powerful than defeat.  They taught us that pain can be used to drive an initiative as much as, or even more so, than knowledge.  They taught us that the word ‘no’ is not an option.  They chose to ‘not do nothing’.

Reegan’s mommy sent me the following which I humbly share with you.  I’m not sure if she visits the websites where this will be posted so please, and I hope you do, let them know your feelings by replying on this site so they can be sure to read all of your feelings in one location.  Here is the letter, to the diabetes community, from Little Reegan’s Mommy.

He Kept His Promise
Now that Reegan’s Rule has passed we have had a chance to think back over the past two years and are humbled at what God has done. Reegan was the joy of our family. Anywhere she went she lit up the room. You just couldn’t help but smile when she smiled. We prayed and fasted for two years and God sent her. Our family was complete. Before she became noticeably sick, she was playing around the house opening and closing doors. One of the doors on a cabinet closed on her finger leaving a bruise.

A couple of weeks later is when we had to take her to the hospital.

She was flown to Chapel Hill and we found out her sugar was over 1200. She aspirated that night and was placed on Life Support.

We cried out to God, please Lord we need to know you are in this situation. Send us a sign that you’re in the midst and that’s when we noticed it. The bruise she received earlier which was under her fingernail had turned into a winky-face.


At the time we accepted it as God saying; “I’m here and I am in control.”   Little did we know that this winky -face would be a symbol of things to come. Reegan fought through over 20 procedures for 6 weeks when God decided to call her to Heaven.

At Reegan’s fair-well, a dear friend of mine whispered in my ear, “We will start Reegan’s Rule to make sure this doesn’t happen again.”

In my brokenness I heard what she said and those words started haunting me about 6 months later. All I could think to myself was, “God, if this has happened to us, it has had to have happened to someone else.”  We did not want anyone else to ‘walk through this”, so we started Reegan’s Rule Petition on Change.org and her page on Facebook.

We were amazed at all of the contacts from parents that had diabetic children that had the same story as us or very similar to it. God gave us that wink and it was a semi colon; which means something comes after this. This is not the end! And two years and 9 days after the day she passed. Her law was passed. Who but God?

As her parents, and family we want to say Thank you. Thank you to every parent who is fighting against diabetes. Thank you to each child who’s bravery continues as you fight. Thank you to those who are fighting for a law like Reegan’s Rule in your state. Thank you to every person who has signed her petition. Thank you to everyone who has prayed for us and given encouraging words. Without God and you we couldn’t have done it. We love each of you and pray blessings over you.
-Reegan’s Family

I am a diabetes dad.Please visit my Diabetes Dad FB Page and hit ‘like’.