Child Diagnosed at Death; Thought it was the Flu….Now Let’s do Something about it….Need YOUR Help!!!!

Let's GoI need your help.

I am in discussions with someone who might help educate Family Physicians (Pediatricians would be next) on a fairly large-scale to administer a protocol for (at least) a urine sample when symptoms in any shape or form resemble a possible T1 diabetes diagnosis (whether it be flu, sever back aches etc etc).  At the very least it could/might be an education campaign; our discussions are in the very early stages but my contact is very interested in helping,

What I need from you.

I am trying to collect every media story I can for any child diagnosed with T1 diabetes upon their death.

Please send to karlya@optonline.net and in the subject line please write, “Media”.  Do not assume that it was so popular that I probably received already.  I need to create a case for the person I’m speaking to and I could use your help.  Do not send any stories/links prior to January 1, 2008.

Let;s start to change this once and for all.  No child should die upon diagnosis right after seeing their family doctor.  No Child.

Thank you.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

0 thoughts on “Child Diagnosed at Death; Thought it was the Flu….Now Let’s do Something about it….Need YOUR Help!!!!

  • Megan Hollinger says:

    Tom – If possible I think stories of a child almost being diagnosed in death are also valuable. I know they aren’t media worthy but I have pictures of what she looked like, the documented weight loss etc. I believe they would be great educational tools as well. I Maeve to the pediatrician 7 (6 times to regular ped and 1 time to urgent care) times in 22 days. They told me when I got her to the hospital she had less than 12 hours to live. A simple urine dip at any one of those visits could have prevented her diagnosis in crisis.

  • Wow, Tom. I hope you have a strong stomach — either that, or the noble purpose for which you’re doing this is strong enough to keep you going. If I asked for these types of stories (and received them!) I’d have to stop reading at one or two… just too depressing.

    • To say I did not cry at some of the ones I read, would be a lie. I am keenly aware that THIS MAY (MAY) do some good in the long run or I would have never begun the initiative. We’ll see. But you are correct, the impact as I read was overwhelming.

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