I’m always surprised at one of the questions I receive, very frequently, in this journey. I do hear, “Do you really think there will be a cure?” often (and yes I do, with all my heart) but I hear one particular question from those who do know me that always strikes me with surprise. That question is; “Do I miss acting?”
For those who do not know, acting, the theatre and beyond, has always been my dream since junior year in high school when I appeared in my high school production of Godspell. It would be my first professional show (got paid) and would also be included in my first stint at Summer Stock in Salem, New Hampshire. I was, and still am, a member of the acting Unions (SAG-AFTRA; Actor’s Equity). For years, acting was pretty much my life.
Being part of the long-running NYC smash hit, Tony ‘N Tina’s Wedding ,was an incredible experience for me (13 years) and many with whom I was privileged to work with, I’m still in touch. Yes, theatre, television, movies, I was working in all of it and I LOVED every second. But being involved in that world is only important because I loved it. I know many people who were in many different professions when diabetes became the new normal. I know many people who gave up what they loved as well.
And here is the thing; miss it? Absolutely. Regret it? Not for one single second.
Perhaps I’m being naïve, and that’s okay because it’s my life and I can feel what I want; I also believe we will get to that goal I promised my daughter of a cure (and now my son as well) and the acting world will once again be in my life. The goal became bigger than a spotlight; it became the welfare of my child.
If not for our children, then for whom?
What did you give up when diabetes became the new normal? A Job? A Career? Sleep? Not to mention the people who actually have diabetes, what we may have given up, pales in that comparison. Share what changes you had to make. This world of diabetes was NEVER supposed to be a profession for me. One door opened, and another, and another, and another, and they keep opening all the time. And as much as I keep at it, I also spend a good deal of my own time advocating for various other important diabetes issues. This is our lives. And quite frankly, I love it.
I have met some incredible people on this journey, many I love and some are even like family to me. I think we have made a dent or two along the way as well in the battle. A battle I will continue as long as there is a breathe in me or until my kids can have some means of a biological replacement producing insulin and monitoring their glucose again. I have seen many management tools come, go, and even become much better; and I’m sure those efforts will continue with great successes; which is all good.
But I await until such time that this journey is complete….and I can return to my world which is…….to be, or not to be; that is the question? Until that time I’m in it to end it.
I am a diabetes dad.
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0 thoughts on “Don’t You Miss…….??????”
Betsy Ray says:
In my own life I gave up an award winning chocolate shop and a singing career… but here’s the thing… after my daughter was diagnosed I realized that I didn’t give up a single thing because every little skill and talent I gained along my own path with entrepreneurial success and diabetes paved the road for success with diabetes optimal health. Do I sometimes miss the feedback from my amazing customers and seeing John Elway or the local news anchors when they visited… absolutely… but I still get to do this on behalf of my family and others who need support. I was told once by Fritjoff Capra that I was destroying the box of status quo thinking about health… this is worth far more than any career and diabetes is now my career… one of immense love for those who live with it every day and carry the burden of the stigmas that render it silent. I love what I do and will as you… keep moving as long a I draw a breath… working to change the trench I live in. 🙂
Rick Phillips says:
I have given up very little for diabetes. I was DX’d at 17 so I really did not miss much. I do however know what you mean by who it is I do things for. I do not believe I will be cured. But I am convinced I can someday assure that my grandchildren or their children will not have to fear diabetes.
I referred your blog to the TUDiabetes web page for the week of May 2, 2016.
Thank you again for sharing in tudiabetes.
Xavier Amador says:
I think this is the best outlook to have. I don’t think there will be a cure anytime soon, but I don’t think a cure is impossible.
There’s nothing wrong with being optimistic, though.