Nice to meet you and we look forward to your arrival.
You may not know me fully but I’m pretty sure we both know of each other well enough from others, and I was told to contact you for the things that might be important during this upcoming year in my world; which is a world of diabetes.
I get it. You’ll have people with long lists regarding the state of affairs here and abroad. You will have people screaming on both sides of what is correct from their standpoint which they will insist is in the best interests of all…….sort of impossible, I know, but they will insist.
You will also have people asking for incredible mountainous requests for sick relatives and dire situations. All-in-all, I do not envy you your situation. Not only will you not make everyone happy, it’s my guess you will make only precious few as happy as they may want. Powerful is the individual who recognizes that they cannot do anything about what enters their world but it’s what they do with what comes along that creates the path they walk. We are each faced with that task. Life is life; and no matter where we are in this world…..we are given life to deal with and manage.
With all of this in mind, it’s also my understanding that you take requests. It has been made clear to me, 2018, that you are not Santa Claus but that request can be made and you will sort through and figure out what is best and that asking is completely encouraged.
Okay…….so here we go. This is my request for our diabetes world. Others may chime in as needed.
First and always, I want a cure. I’ve been asking this for some time and although I have not been one of those who point and say they have been promising it within the next five years (who are those people anyway?), I think it’s time. Or, at least, some REAL significant progress toward that end. Some clinical (human) trials in kids…..something promising please.
We also need some stability in the insulin world when it comes to pricing. Either allow some of the cases to come to trial that make/prove definitive and serious allegations to force lower costs, or have someone come up with a generic brand that will shake the foundations of those who think they control all costs—-the prices are too high, 2018, please look into this matter.
Please help us make a REAL dent in our journey to stop the missed diagnosis of T1D. No one should die or be missed diagnosis that in turn causes major havoc in people’s lives. IT’S JUST SO AVOIDABLE, 2018, it’s almost ridiculous. Thank you for the continued efforts of so many—-it’s MAKING a difference but we need to really make this a national initiative.
Health care costs. Okay here is the deal, us in the diabetes word ARE NOT THE ONLY ones asking about this 2018. YOU HAVE GOT TO KNOW BY NOW how important this issue is for so many causes, so many people, and so many reasons? A group of fat cats in our Nation’s Capitol can no longer be allowed to merely make changes without fully understanding of what the impact will be…..it’s a mess 2018, please both tend to, and fix, this situation.
Management tools. 2018, I am not just referring to a device that reads blood sugar and dispenses insulin; I’m talking about all management tools. There needs to be a healthy array of available equipment and not controlled by just one or two companies. This just makes no sense. Never before have people (patients, loved ones of patients) been so nervous that what is available today will not be available tomorrow. Medicare and Medicaid need to cover what is needed and we all need to know that what is needed will always be available. It’s just not fair.
2018, these are all practical and needed request and understood, they are all tall orders. But I have faith in you and believe in you. From the fiasco of diabetes issues 2017 left behind, my hope is that you are better, stronger, and more aware of how to navigate the waters-of-need for all those who do not want to just live with diabetes, but thrive with it.
Good luck 2018, we be in touch to see how you are doing.
I am a diabetes dad.
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