What am I Doing Here?……..for Kycie, for Reegan……the Fight Goes On!

Kyce ReeganThis is the question I asked myself as I looked at the many attendees at the American Association of Diabetes Educators (AADE) Annual Meeting who stopped in to the presentation of the incredibly knowledgeable Susan Weiner and myself at our missed diagnosis of T1D.  People believe that speaking in front of a large crowd is easy for me, in reality it is not, for reason that those who are close to me understand.  It is even more daunting when the audience is full of professionals.  REALLY SHARP PROFESSIONALS.

The week before I was to speak I reached out to two parents who lost their child to this disease being misdiagnosed and to fill them in on what was happening. It is always a stark reminder to me that this work should not, and will not, stop for me until the paradigm is changed to a direction where each and every person showing stomach virus like symptoms (and more) are checked for elevated blood sugars.

What makes it easier for me to present is when I reflect on each and every person I have met in this battle who has a child who and is no longer here because a simple blood check was not done.  I also reflect on the many people who have joined this fight, and have been in this fight, long before we have arrived where we are today…….but make no mistake; the surface is barely scratched.

Presenting at AADE allowed a very unique opportunity.  Hopefully, and eventually, every state will hear the message and carry the banner.  The list keeps getting longer of those who help and when it comes to AADE, Susan has been my mentor and guide through the maze of people more educated than I could ever become and true community leaders.  My thanks to her are endless.

I also know I have a story to tell……..and as long as I have a breath in me, the story will continue to be told………it’s owed that much energy, and more, to Kycie, Reegan, and the so many more who can no longer fight for themselves.  Are you still in the fight? Because we surely need everyone willing to spread the word.  Let’s not wait for the next Kycie or Reegan to happen to say, ‘this is horrible’.  Let’s get rid of ‘horrible’.
I am a diabetes dad.
Please visit my Diabetes Dad FB Page and hit ‘like’.

Someone Dies……..it’s None of Our Business……..None. Period.

SunriseI find it absolutely astounding that when someone with T1D passes away…..from diabetes or something else, the questions begin about the cause as if someone has the right to know.  Here is the hard truth…..you don’t.  For whatever reason you think it is okay to soften;  the ask, the question, or the statement…..it’s not, it’s wrong.

Because when someone loses anyone in their family for whatever the reason, it’s their situation to deal with and theirs alone.  NOW HEAR ME PLEASE: If you think for one split second that you might learn anything by knowing the reason of another’s death then it is my strong suggestion that you educate yourself more for whatever the reason is that you think knowing about someone else’s death will help you.

There is just no soft way to present this but being straightforward honest about it.  It was wrong years ago, it’s wrong now, and it will stay wrong tomorrow.  Imagine dealing with something along these lines in your own home (God forbid) and someone asks, “I’m so sorry for your loss but is it okay to ask how they died, we are all so sorry.”  The answer comes across, “Well actually they committed suicide.”   Got your answer?  How proud of yourself are you right now?

Get it?

Anyone certainly has the means in today’s social-media world to relay to anyone, and for that matter, everyone; if they so choose.  But it’s their choice and we have no right to
ask.  Be there, offer a shoulder, a meal, offer to help in any way but when it comes to the specifics surrounding the death of anyone….online is the last place anyone should be asking anything about specifics.  Period.

I am a diabetes dad.
Please visit my Diabetes Dad FB Page and hit ‘like’.