A Message for You!!!!

Happy New Year 2016A really good friend wished me a happy New Year and stated that the hope was that all my wishes would come true in 2016.

Interesting concept.

I found myself asking if I had ‘all my desires’ as a bucketful of wishes or is my wish the same as it was on September 26th, 1992, and only to be doubled on March 20th, 2009.  The same wish every time I blow out my birthday candles.  The same wish anytime I wish upon a star.  The same wish I have every time I break a wish bone.  The same wish in my nightly prayers.

A cure, for my two children.

It’s a promise I gave my kids and it’s the foundation for everything I do.  I’m deeply involved in this diabetes world.  I wish I was not, but I am during almost every minute of every day in some shape or form.  I’m energized by this diabetes world around us.  And in as much as I believe in the efforts of the Diabetes Research Institute, being involved as I am, also allows me the privilege of seeing so many wonderful things out there which I see with an open mind with a drive to learn more.

I see what I see, through your eyes as well.

I thank you for that.  You teach me so much.  You have opened my eyes to so many worlds of research, initiatives, efforts, education, management tools and energy to make this diabetes world palatable that I, otherwise, would not have in my life.  Your energy drives me.  Your knowledge challenges me.  Your passion humbles me.

Thank you for allowing me to share in your life.  We are in this together and our one and only competition must always be; diabetes.  To make a difference in this diabetes world and to just ‘not do nothing’.

I wish all of you the best 2016, and may it take you one step closer to whatever it is you seek in your life; for you, for your family, and for those you love.

Happy New Year!

Much love, respect, and admiration always,
Tom

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

Tyson’s Family Shares a Story on Saving a Life……..Are you ANGRY ENOUGH…….to Help?

Tyson IrbyAs this year ends, I am still driven by how far this year has taken us in the battle against missing the diagnosis of T1D and the diagnosis while in DKA.  It’s a battle that can be won.  And THAT battle is a series of wars in every state.

What can you do?  I believe this battle can be fought on many fronts and with many, many, willing and eager participants.  If I start to list them, I will miss some and I DO NOT want to do that, but know they are out there.  They are out there advocating, spreading the word, and creating resources for others to use.  The question remains and will always remain, what will YOU do about it?

Now to be clear, if your plate is full and you have the initiatives you find important in this diabetes battle have ‘filled’ your plate ; fine.  Thank you for not doing nothing.  But if you are still looking for something to do; you have many approaches from which to choose to help solve this problem.  One approach is meeting with your legislator for possible action in the form of a law regarding this issue.  There will be some more tools about this upcoming and there are many out there already.   It’s a powerful means to try to make sure that no one else passes away from undiagnosed T1D ever again.  It will take time, like it took us time in North Carolina.  And it may only be a step, but any step is a good step to build upon.

Another approach is now.  Right Now.  There are many means to download posters and spread the word in any community.  Others have shared theirs (if you have any, please share as a reply to this post on this page so all have the information from which to choose) and I have discussed many times what is available at www.getdiabetesright.org that Kim May (a dMom) and I have made available.  But there can never be too many reminders

I have also shared a REALLY POWERFUL note that can be sent home from school nurses created by the National Association of School Nurses.  This has been sent out to 33,000 people in their data base……but we can help.   I wrote about it and you can read about it and download it here.    Enlist school groups for community service.  Boy Scouts, Girl Scouts, After-School service groups, Chamber of Commerce—-create an army to distribute the letters and/or posters which can be hung anywhere; and you can do it with little money (cost of poster to be copied), or have someone with a printer donate a hundred for you to distribute.

People are discussing many things on a larger scale from PSA’s to other initiatives; these are all good—-in fact they are better than good, they are GREAT.  Many will take some time.  But one person, can do something or start something now.

Tyson Irby recently lost his battle by not being diagnosed.   I have been in touch with Tyson’s Family and this was shared with me last night;
We heard a story today of a mother, who heard Tyson’s story,  that took her daughter in because she was going to the bathroom more than normal. Her sugar level was 600, and she is type one. Maybe Tyson’s story saved her life.

Maybe?  I think not…..I think absolutely.   Reegan’s family has shared the same stories. So has Kycie’s Family.  The word WILL IMPACT.  This is a one-story initiative.  One tells two, tells four, tells eight, and on and on and on.  While the BIG STUFF is all being worked on, let’s learn from Tyson’s Family , Reegan’s Family and others——GET THE WORD OUT THERE however it takes.  While the BIG STUFF is being worded on, the poster seen, the letter from the nurses office received CAN AND WILL change a life.

Much has been done, much will be done, BUT MUCH CAN BE DONE NOW.  Have you ever heard those commercials that end with a line that states something like, “…..someone’s life may depend on it” ?  In this initiative, that statement is absolutely true.

Please, for the new year, just “Don’t do Nothing, someone’s life may depend on it.”

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

Bye-Bye Bayer

BayerHaving two kids living with diabetes means I’m…..well the father of two children living with diabetes.  As such, all sorts of things come to our house, mostly via the US Mail.

We received a notice the other day that stated;
Bayer AG (“Bayer”) is pleased to announce that it intends to sell its diabetes care business to Panasonic Healthcare Holdings Co., Ltd. (Panasonic). a company which is backed by funds……blah…..blah…..blah….blah.
Panasonic will operate the Diabetes Care Business under the new name of Ascensia Diabetes Care……
There is also a highlighted blue box that states our information will be given over to Ascensia……and also information where to find press releases and further information….blah….blah……blah.

The sale of the company was for 1.13 billion dollars according to a June Wall Street Journal report.

June—–either I am late to the party or this got by me somehow, but I just received the letter this week (and I know others have written about this already).  Is this a good thing.  Does Bayer still care about us?  Will Panasonic?  Does anyone?  They are “pleased to announce……”…….are we?

I’m not a big fan of change, I also understand that Budweiser no longer owns Budweiser; meaning that I get that in the corporate world mergers and acquisitions are as natural as the sun rising and the sun setting.  But I also know that when we entered the diabetes world, our lives became unglued.  One would have thought that there was some consistency with the corporate world surrounding the so many who need care; medical care…….right?

But when so many things get tilted, changed and thrown around……whether Asante Snap closes their doors, certain insulins will no longer be made, or even Bayer will cease being……well Bayer…….does anyone else ask……where are we in the mix?  We being the people who either have or have loved ones with this disease…….where are we?

We are set adrift to find what we need to find to stay alive…….and we will.  I bet if we wanted something from a company…..and we all got together and said we will buy your product no more unless you listen……..they would take notice……….or not; they could easily just sell off that division so they did not have to hear anymore can’t they?

I think we should be, and need to be, more of a partner in this diabetes battle with diabetes companies and not merely ‘users of products’……..yes?

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

Our Diabetes World NEEDS a Smokey the Bear……..any Takers??????

Smokey the BearThere is this commercial presently running on television in the United States.  It’s a commercial warning that your child could be at a very high risk of a fatal disease by merely casual contact of their peers.  At first I thought it was a fairly decent commercial warning of a potential hazard.

Of course it was more.  It was actually a commercial to get you to have your child vaccinated with their drug.  There are other commercials out there like this.  Many have to do with flu shots as well.

This got me to thinking.  There are many other commercials created for the only reason……..they are needed.

Many great PSA (Public Service Announcements) commercials are actually products of the Ad Council.  The Ad Council, by their own mission statement; Identifies a select number of significant public issues and stimulate action on those issues through communication programs that make a measurable difference in our society.

Hundreds of Ad Agencies, Sponsors, Media Partners, Corporations all have joined forces and have been responsible for some of the greatest campaigns…….well…..EVER.  Their longest running campaign, lasting over 70 years, has been those surrounding Smokey the Bear.  Worldwide has been their success on relaying the truthful impact that “Only You, Can Prevent Forest Fires.”  Simple.  Hugely effective.  Fun.  A message worth gold.

There have been so many initiatives within our community of late.  Issues of importance that need public awareness.  Imagine if there was an Ad Council for our diabetes world?  If all the companies gave one or two individuals, along with a few other advocates, and joined together and became the ‘think-tank’ for messaging on issues pertaining to diabetes.

Once a year we would meet at….let’s say……the ADA Annual Scientific meeting……and decide two or three messages and an ad campaign would be created.  Maybe even create one PSA annually to benefit T1D, one to benefit T2D, and one generic for whatever else is needed.  Let’s call ourselves The Diabetes Initiative for Ads to Better Enlighten, Teach, and Engage Society; or The D.I.A.B.E.T.E.S Council.

Surely there are enough companies to be involved that would make this extremely worth while.  And who would win?  The millions out there who have diabetes.
How cool would it be to see PSAs running and at the end a logo is show and the voiceover says; “The preceding was made possible through the D.I.A.B.E.T.E.S. Council”?

Send this article to someone in a leadership position at a company you know.  Tell  them to reach out to me and we will get the wheels moving.  Anything good begins with just an idea……any takers?

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

Twas the Night Before d-Christmas 2015

Santa Claus And The MoonWith special apologies to Clement Moore.   I present a tradition……an updated, ‘Twas the Night Before D-Christmas

‘Twas the night before Christmas, when all through the house,
Not a creature was stirring, not even a mouse.
The stockings were hung by the chimney with  prayer,
In hopes that Santa would bring the cure with him this year.

The children were nestled from head to their feeties,
While thoughts in their head were no more diabetes.
And mamma in her ‘kerchief, she prayed for the cure too,
A dad still wonders what else could he do.

Remembering this year; the so much diabetes clatter,
So many were still wondering what was the matter.
Away to the news wires we ran in a flash,
Devices getting hacked might it all crash.

As costs continue to rise on everyone’s supply,
So many wonder how they’ll get by.
D-bloggers continue to write of these capers,
It certainly can’t be left to all the newspapers.

Why many wrote on test strips and accurate numbers,
Who made the decisions on these stupid blunders?
To those with diabetes these really are not funny,
You’re playing with lives; it’s not about money.

As parents search for the docs and schools that really do care,
So much about this disease just doesn’t seem fair.
But as we turn and realize the continual fear,
I have some wishes for so many this year.

When you look outside at the fresh fallen snow,
Or out at the sea where cold you don’t know,
Think of those who inspire and soon you’ll see,
Those things have changed in the past and will continue to be.

Innovations like getting supplies to those in foreign lands,
There is AADE, IDF, and a Foundation of Hands.
There were great ideas to help our kids grow,
Even promising news from Ed Damiano.

We work very hard for a managed d-life to be,
And there is much help like CWD.
There was JDRF continuing in closing the loop,
And the ADA’s Stop Diabetes is still really a scoop.

There was TCOYD and programs were pooled,
And DRI’s BioHub news became very fueled.
There are so many camps that continue to say,
Spend a week with us for an even better today.

From Faustman, ViaCyte more news than ever before,
And stopping missed diagnosis will be the next score.
So as the year ends and criticisms comes quick,
Good things will come, and not all from St. Nick.

So listen carefully as you think of all that is run,
There is so much more work that needs to be done.
Don’t leave it to others; it’ll be just a few,
“Don’t do nothing” is what you really must do.

And if you think you’re done, tired, and feeling sort of sore,
Think of your loved one with diabetes, it’ll make you do more.
And if not for you, it will be for their sake,
We will stop it all when they get a break.

And then, in a twinkling, one day we’ll hear on the roof,
The prancing and pawing of each little hoof.
And the only thing needed is Santa’s toy bag for sure,
When diabetes is gone because of a cure.

So we will all continue to work, the ‘where’ is up to you,
But you have to make the decision on something you’ll do.
And one day we’ll scream and exclaim, “diabetes is out of sight,”
The Happiest Christmas ever, and to all a good-night!

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’