NEWSBREAK: No One was Better for Diabetes Causes than Mary….RIP

MaryI wish I could say I was a friend of Mary Tyler Moore’s, she surely made you feel that way.  There was a time when she, or her beloved husband Robert, and I would pass and a ‘hello’ was stated.  We knew of each other in the same battle.  She wrote a wonderful inscription in her book when she sent it to me to thank me on a specific project we worked on together and I will cherish it forever.

She THANKED me. Really?  Like I could ever be on par with what she had done over the years.  We worked together on fundraising, Washington DC advocating, and when it came to ANYTHING diabetes…..rest assured Mary was there in full force……how lucky was I to have just a little piece of life with this incredible woman.

It’s not often one gets to work with an icon, with a person who has her character-genetic pool somewhere in almost every comedic character to appear on TV—she was not the best—she was the best of the best and she did it—-while battling diabetes.

I have stated it before, and will always feel the same, no one in the celebrity world came close to do for the world of diabetes than what Mary Tyler Moore accomplished with JDRF.  Her efforts were tireless over the years.  She would attend events, meet with elected officials, testify before congress and yet, it was when she met those who lived like her….with diabetes, that I will remember most.  The time she took to speak to them and relate to them, to tell them they would be okay…..that is the Mary I will remember most.

Every organization under the sun wishes they had a spokesperson the caliber of Mary Tyler Moore.  Her connection with JDRF (and what was then JDF) was, and is, legendary.  She loved the JDRF and the people involved with the organization.  How fortunate they are, and were, to have Mary as part of their family.   My heart goes out to the many who worked with her at the JDRF, especially Karen Brownlee, who worked with Mary for years as the Liaison between the JDRF and Mary’s ‘people’.

Mary had but one goal when it came to diabetes….to bring to the attention of the world the battle of diabetes and how important it is to one day cure it.  How important it is to handle it.  Perhaps if she meant something to you, you can give a donation to JDRF in her memory (or to YOUR favorite organization). Mary would want it done that way.  I did.  It’s the least I could do for the woman who taught me to fight diabetes with as much fierceness as possible and at the same time; try to turn the world on with a smile…..which no one did better than Mary Tyler Moore

Rest in Peace friend, and thank you.
I am a DiabetesDad.
Please visit my Diabetes Dad FB Page and hit ‘like’

Are You Marching on Saturday???…Some Caution; I Care-Come Back Safely

womens marchI care about you and do not want you hurt in any way—-so I offer the following if you plan on utilizing your right to peaceful assembly this weekend–share with others.

If you are marching on Saturday in Washington DC or in one of the other cities, I share this with you.  In addition to trusting no one you don’t know (that means sharing any information or lending your phone for even a second), staying to the outside of the line, wearing comfortable shoes, staying hydrated, when you see a bathroom-use a bathroom, confronting no one, and buddy system, buddy system, buddy system—- and remembering that not everyone around you is there for the same reason you are.

Also—-electronically—-very useful information is below (I have not created this—it is out there–I’m just sharing because it makes sense):

1. Enable full-disk encryption on your device
Full-disk encryption ensures that the files across your entire device are encrypted. This is a form of encryption that protects data at rest, as compared to in-transit encryption, which protects data that is transferred over the Internet. Full-disk encryption protects everything from your local database of text messages to the passwords you have stored in your browser. This is useful in case your device is confiscated by police, but also protects you in situations where the device is lost or stolen. Protest situations are often unpredictable, so losing your phone is a distinct possibility.

2. Remove fingerprint unlock
In the past, iOS and Android used the same password to both boot your phone and to unlock it. Recently, both iOS and Android introduced a mechanism to allow you to unlock your device with your fingerprint. This is a convenient way to ensure that you enjoy the benefits of full-disk encryption without sacrificing convenience. However, in protest situations we suggest you turn this functionality off. A police officer can physically force you to unlock your device with your fingerprint. And as a legal matter, while the state of the law is in flux, there is currently less protection against compelled fingerprint unlocking than compelled password disclosure. You can always add your fingerprint back to the device after you’ve left the protest.

In iOS, you can disable this by going into Settings -> Touch ID & Passcode and removing each of the fingerprints in this menu.

In Android, disabling this feature may depend on your device manufacturer. For Nexus devices, go into Settings -> Security -> Nexus Imprint and delete the fingerprints from this menu.

3. Take photos and videos without unlocking your device
Catching that perfect shot is something you want to be ready for, and powerful images can help bolster the cause. If you’ve chosen a strong password, entering it into the device takes precious time, and you risk the moment passing before you’re able to take the shot. Luckily, newer versions of iOS and Android allow you to take photos and videos without unlocking your device, giving you the time to capture the moment.

With Android Nexus devices, double-press the power button.

At the iOS lock screen, you can swipe to the left.

4.Install Signal
Signal is an app available on both iOS and Android that offers strong encryption to protect both text messages and voice calls. This type of protection is called end-to-end encryption, which secures your communications in transit (as discussed in tip #1). Other apps, such as WhatsApp, have implemented underlying cryptography. But we believe Signal is the better option because it implements best practices for secure messaging.

In addition to encrypting one-to-one communication, Signal enables encrypted group chats. The app also recently added the functionality of having messages disappear anywhere from 10 seconds to a week after they are first read. In contrast to some other services like SnapChat, these ephemeral messages will never be stored on any server, and are removed from your device after disappearing.

Recently, a grand jury in the Eastern District of Virginia issued a subpoena to Open Whisper Systems, the maintainers of Signal. Because of the architecture of Signal, which limits the user metadata stored on the company’s servers, the only data they were able to provide was “the date and time a user registered with Signal and the last date of a user’s connectivity to the Signal service.”

5. Use a prepaid, disposable phone
If you’re really concerned about the data stored on your device, don’t bring it at all and pick up a prepaid mobile phone. These lower-end devices can be purchased along with a SIM card at most large retail stores, and current federal regulation does not require you to show your ID (but your state may). Let your friends know your temporary number, and use this to coordinate activities. Remember that the location of mobile devices can be determined by the cell towers they connect to, so if you don’t want your identity known, turn off your prepaid device before going home or anywhere that might lead to your identity. Using GPS should be safe, since GPS is a receiver and does not transmit any information, but your device may store your coordinates. For this reason, we suggest you turn off location services. When you’re done with the phone, it can be safely recycled or discarded from a location that is not linked to you. Keep in mind that if you carry both your regular device and a prepaid one with you, the location of these devices can be correlated as a way to compromise your anonymity.

6. Back up your data
Take precautions to limit the possible costs that can be incurred by the loss of a device. Backing up your data regularly and storing that backup in a safe place can save you a headache later on.

7. Consider biking or walking to the protest
Automated License Plate Reader Systems (ALPRs) automatically record the license plates of cars driving through an area, along with the exact time, date, and location they were encountered. This technology is often used by law enforcement, or employed by private companies such as Vigilant and MVTrac who then share license plate data with law enforcement and other entities. Amassed in huge databases, this data is retained for an unknown period of time. These companies have lobbied and litigated vigorously against statutes that would ban the private collection of license plate data or otherwise regulate ALPRs. Effectively, your location can be tracked over time by your driving habits, with very few legal limits in place as to how this data can be collected and accessed.

Consider using alternative means of transportation if you would prefer that your movements and associations remain private.

8. Enable airplane mode
Airplane mode ensures that your device will not be transmitting for the duration of your time at the protest, and prevents your location from being tracked. Unfortunately, this also means that you won’t be able to message or call your friends, so plan accordingly. You may want to select a nearby meet-up spot where you and your friends can rendez-vous if you get separated. You may also want to turn off location services (as discussed in tip #6).

9. Consider alternatives to Facebook and Twitter
Facebook and Twitter provide a large user base for you to promote your cause, but these popular social media platforms also carry risks. Viewing an event page, commenting on the event, and stating your intention to attend are all actions viewable by law enforcement if the pages and posts are public, and sometimes even if the pages aren’t (subject to a court order). For actions that require a more cautious approach, consider forming a group chat via Signal as described above.

I know this is not diabetes, but many people I care about will be ‘doing their thing’ and letting their voice be heard, so I thought this information might be useful.
I am a DiabetesDad.
Please visit my Diabetes Dad FB Page and hit ‘like’

NEWSBREAK: CMS Says Yes to the Dexcom……WOW!

Dexcom G5In case you were distracted at the end of last week, a major development took place at CMS (Center for Medicare & Medicaid Services) when the decision was made and the agency stated that the Dexcom G5 Mobile was now determined to be classified in a benefit category as therapeutic; thus allowing the agency to cover the device for those people on Medicare or Medicaid.

HUGE!

Dexcom should be applauded for their tireless efforts in this area fighting for the approval of the device.  I get it, their stock soared upon the approval and hence, it could be said it was why they battled.  Dexcom is a business.  And in the world of diabetes, businesses that are run correctly, deserve whatever they are allowed.

Kevin Sayer, President and CEO, has run his Dexcom Company with diligence, integrity, they give back to the community, and if they benefit for fighting so hard so everyone wanting their CGM, even those on social services and not on commercial insurance, can get one…..more power to them.  Not to mention those turning 65 will now no longer lose their coverage for a CGM for merely getting older.

It’s no wonder that Dexcom seems to constantly show the business world of diabetes why their business objectives and business platform are second to none.  The diabetes community can only hope others take note and follow their lead.

You can read Dexcom’s press release by clicking here.

Bravo Dexcom…….Bravo!
I am a DiabetesDad.
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The World is a Little Vile Lately…….Yes?

VileThere is a line from the Dickens’ classic, A Christmas Carol, that I have always liked. It’s enough for a man to understand his own business, and not to interfere with other people’s. Mine occupies me constantly.

Now in the context that this statement was meant, Dickens’ is clearly showing how isolated Scrooge has made himself by cutting himself off from his fellow-man.  That said, In as much as I DO feel we all need to help others, I have found some solace in that statement of late.

If you see yourself in what I am about to say, think about it.  If it’s not you, than it’s not about you.  The reason I have taken solace in that phrase is that as I roam around and read various conversations, I’m absolutely floored at the absolute contempt people have been toward one another lately.

I believe, just me-DiabetesDad, that because someone very strongly is in favor (or not) of certain results, people, movements, etc.  should not allow people to say; “I know this is wrong to say but I just have to…….” and some long tirade ripping people apart follows.

Really?

The first amendment, again–to just me, also comes with serious responsibility.  It’s a huge responsibility and it needs to be taken very seriously by everyone.  The freedoms we express should be in check when it comes to the vile and poison so many are revealing—–ALL THE WAY ACROSS THE BOARD.

This hurts me so.

And because some do it, if we continue to believe that it gives everyone the right to do it; we could be in serious trouble.  I choose to focus on my family, my passions, and things which are important to me……”mine occupies me constantly”.

Friction and friction will only result in heat.  If more time was spent focusing on how to be part of the change, WHATEVER THAT BELIEF MAY BE, instead of contemptuously screaming at each other that it’s needed; might be a better use of our energy.  And if your inclination is to immediately respond to this article by blaming some entity and/or person; don’t give them that power over you.  That’s the easy thing to do

Teddy Roosevelt once said, “Do what you can, with what you have, where you are.”
The key word here is, “DO”.  Much energy is being spent in vile shouting, from ALL SIDES of this discussion, might we all be better off with more ‘doing’.

Be the CHANGE.  No one wrote a book about someone who was GOING to do something, they write books about those who fostered change.  How you get there, is your choice.

Just don’t do nothing.
I am a DiabetesDad.
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Good-Bye 2016….and Thank……YOU!!!!!!

calendar-page-offWell tear the page off the calender, 2016 is history.  Much has surely happened this year and as I reflect on it, I realize that so much good happened in the year.  I know many feel differently, and that is fine as they are entitled, but I’ve never been one to stay focused on one item or one event.

I survived being at 9/11, I survived my child being diagnosed with diabetes, I have survived losing a brother (in law), a father, a father and mother-in-law who I cherished, a second child being diagnosed and an entire list of items that will depress you to know end–and many people over the years have been in office who I did not want or who I wanted…..and I will be danged if whatever this year bought will make me react any differently.

The sun will rise tomorrow and with it a new day. And it is THAT way in which I live.

I will choose the GREAT things that happened over the year in the battle against undiagnosed Type 1 Diabetes.  I’ll cherish Beyond Type 1, Insulet, dPac, Susan Weiner, Kim May, Michelle Berman, Debbie Healy, Bennet Dunlap, Little Reegan’s Family, Kycie’s Family, Elizabeth Stein, DiaBEAT THIS!, and those who have stepped on the gas pedal and chose to share their lives to end these occurrences and, in some cases, when they were even victims themselves.  I’m grateful to the many who gave a platform to spread the word.  I’M GRATEFUL TO THOSE WHO EVEN HUNG A POSTER TO SPREAD THE WORD.

I’ll cherish those advancing the better treatment for those who live with diabetes every day.  I’ll cherish those organizations who continue to help people, advocate, and spread the word.    I’ll cherish those who despite great odds, continue in that search for a cure. I’ll, personally cherish, a new granddaughter, an engaged daughter, a move to a new home in a new state, and always my wonderful family.

And I will always and in all ways cherish you.  You who inform me, you who challenge me, you who teach me, you who believe in just ‘not doing nothing’, you who choose to make a difference, you who are my brothers/sisters-in-arms in a battle none of us want to be part.

If 2017 is not what you want it to be, MAKE IT what you want it to be.  We cannot do anything about what may come our way but we can certainly control how much it impacts us.  May 2017 be happy and healthy and may your inner wishes come true. Thank you for being part of my 2016, I look forward to what 2017 may hold for all of us.
I am a DiabetesDad.
Please visit my Diabetes Dad FB Page and hit ‘like’

Twas the Night Before D-Christmas 2016

santa-moonWith special apologies to Clement Moore.   I present a tradition……an updated, ‘Twas the Night Before D-Christmas for 2016

‘Twas the night before Christmas, when all through the house,
Not a creature was stirring, not even a mouse.
The stockings were hung by the chimney with prayer,
In hopes that Santa would bring the cure with him this year.

The children were nestled from head to their feeties,
While thoughts in their head were no more diabetes.
And mamma in her ‘kerchief, she prayed for the cure too,
A dad still wonders what else could he do.

Remembering this year; the so much good and fun,
Seems monthly there was news at Beyond Type1.
Away to the news to see who was a hero of fire,
It’s those who live with T1D who really inspire

As costs continue to rise on everyone’s supply,
So many wonder how they’ll get by.
D-bloggers continue to write of these capers,
It certainly can’t be left to all the newspapers.

While many wrote of Santa’s goodies in his sack
Many doing much more like those from dPac.
To those with diabetes these really are not funny,
You’re playing with lives; it’s not about money.

As parents search for the docs and schools that really do care,
So much about this disease just doesn’t seem fair.
But as we turn and realize the continual fear,
I have some wishes for so many during this year.

When you look outside at the fresh fallen snow,
Or out at the sea where cold you don’t know,
Think of those who inspire and soon you’ll see,
Those things have changed in the past and will continue to be.

Innovations like getting supplies to those in foreign lands,
There is Life of a Child, IDF, and a Foundation of Hands.
There were great ideas to help our kids remember,
Of those in the fight like Project Blue November.

We work very hard for a managed d-Life to be,
And there is much help like at CWD.
There was JDRF/Medtronic approved hybrid closing the loop,
And ADA’s Dancing Steps was really a scoop.

There are innovations and those like Tide Pool
And DRI’s BioHub news continue to gain fuel.
There are so many camps that continue to say,
Spend a week with us for an even better today.

From Faustman, ViaCyte an IRB survey from Glu,
Stopping missed diagnosis to end candles of blue.
So as the year ends and criticisms comes quick,
Good things will come, and not all from St. Nick.

So listen carefully as you think of all that is run,
There is so much more work that needs to be done.
Don’t leave it to others; it’ll be just a few,
“Don’t do nothing” is what you really must do.

And if you think you’re done, tired, and feeling sort of sore,
Think of your loved one with diabetes, it’ll make you do more.
And if not for you, it will be for their sake,
We will stop all when only they get a break.

And then, in a twinkling, one day we’ll hear on the roof,
The prancing and pawing of each little hoof.
And the only thing needed is Santa’s toy bag for sure,
When diabetes is gone because of a cure.

So we will all continue to work, the ‘where’ is up to you,
But you have to make the decision on something you’ll do.
And one day we’ll scream and exclaim, “diabetes is gone from sight,”
The Happiest Christmas ever, and to all a good-night!

I am a DiabetesDad.
Please visit my Diabetes Dad FB Page and hit ‘like’

Your Child can Receive a Personal Letter from Santa—-6th Annual Tradition Continues!

santa-from-videoSANTA CLAUS CAN PEN A PERSONAL NOTE TO YOUR CHILD THIS CHRISTMAS
Jolly holiday 6th Annual fundraiser benefits Diabetes Research Institute Foundation
NOTE: Your child does not have to have diabetes to receive a letter from Santa (cute video—click picture) 

Yes, Virginia (and Emma, and Maria, and Max, and Willie…), there is a Santa Claus. To prove it, Ol’ Saint Nick himself will send a personalized letter – complete with a North Pole stamp – to any child, in any part of the world for a minimum donation to the Diabetes Research Institute Foundation. This jolly holiday fundraiser is up and running and you can click this SANTA CLAUS to learn how to send a letter and make a donation. Your child receiving a personal letter from Santa is certain to light up faces brighter than the star on the tree.  And of course if you do not know of anyone who would want a letter from Santa….you can make a donation to just help the DRI continue their collaborative efforts to end diabetes once and for all.

Click here to learn more about the Diabetes Research Institute Foundation.

The personalized letters, which can be requested by parents, grandparents, aunts, uncles or any other family member or friend, can include all sorts of information; like a reference to any toy, game, iPad or techno-gadget on the child’s wish list or even mention something about their pet. Santa can even encourage them and that he knows how well they have been trying to manage their diabetes as well. The fundraising campaign is open to all families everywhere, not just those affected by diabetes.

To get theall of the letters out to children by Christmas day, a legion of Santa’s “elves” are standing by around the country, according to volunteer chairwoman Marie Jarcho.

“We had a tremendous response the last six years. This is a wonderful and easy way to brighten a child’s Christmas and they loved it. The more information that parents or others supply, the more personal Santa’s letter will be,” she said. “…… it is my sincere hope that people will give what they can to help the Diabetes Research Institute find a cure.”

After the debut event, one mother wrote that her child was so thrilled with the personalized letter that she slept with it every night until Christmas. The DRI Foundation is hoping for an even greater response this year.

To send a child a letter from Santa Claus, JUST CLICK HERE or you cn click the picture to see a really cute Santa Video about the personalized letters.   The deadline for participation is midnight on December 9th in the USA and December 6th for any area outside the USA.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

Yeah, But….But…They’re on Immunosuppression…..Let’s Just Take a Look….

butWhen it comes to research, there are so many occurrences simultaneously that it’s very difficult, at times, to keep one’s hand on the pulse of so much activity. When it comes to the notion of research in our diabetes world, there is something I have noticed that I want to address. It’s this notion of the immediate discounting of research projects because the patient is on some sort of immunosuppression regime. I get it. More than that, so do the research centers.

Let’s be clear, this is about diabetes research as a whole, and not specifically of the work being done at any one place. I have a very unique perspective because of my constant involvement in the research world, and when it comes to that, I have often shared my thoughts and surely welcome yours.*

The people who undergo clinical trials are, usually, in a very dire position with their diabetes. It’s not as if there is a protocol in place and volunteers are merely chosen because they live with type one diabetes; there is more consideration than just that point. In many cases, due to severe glycemic reactions, these patients are in dire need of intervention. For whatever the reason, people seem to believe that patients in these protocols are just like their loved ones at home but are now on immunosuppression. I know this because I constantly see the comment from the uninformed, “Yeah, but they are on immunosuppression drugs” as if to discount what is going on.

Hypoglycemia unawareness is a very dangerous complication to having diabetes and usually required in many of the diabetes protocols to be involved in clinical trials; dealing with having something placed inside the patient’s body. This is not a phenomena of just having a low blood sugar; hypoglycemia unawareness stops people from functioning in a normal surrounding.  Without warning, to collapse from a low blood sugar…….again, WITHOUT WARNING.  It can make driving, functioning, and in many cases from even living alone extremely difficult. It’s very serious. So is severe hyperglycemia allowing for almost a constant threat of DKA.  Imagine the impact of having high blood sugar and keytones almost always.

When applying for a clinical trial these patients, after an exhausting process, have come to the conclusion that living with the immunosuppression drugs outweighs the quality of life they are presently living. Immunosuppression drugs prevent the body from rejecting anything not recognized ‘as self’ and usually not used in children unless their life is in jeopardy.  Understanding that point; if someone needed a kidney transplant, they would be on immunosuppression drugs; a heart transplant results in the same regime and yet, no one states, “ah yes but they are on immunosuppression drugs” because the procedure outweighs where the patient’s physical status is at the time of the transplant.

All things Islet Cell come into mind here. Donated, porcine, stem-cell derived, implantable device, and other means of placing cells in a patient’s body and functioning is an amazing progression to the end game being sought.  For the present, it’s in patients that need a better quality of life than what they have, living with this diabetes complication every day. And it’s just that, a severe diabetes complication.

Now in as much as these protocols occurring around the world are what they are; they are also MAJOR STEPS in every research lab’s Holy Grail. To perfect the process and create a protocol that someday CAN be used in everyone with diabetes, without anything else that must be administered. Of course that is what each lab out there searches continuously to achieve.

I have shared with you all a million times that my regret is that I have been at this for over 23 years. I have learned a few things. I lived in a world before the everyday use of pumps, pork insulin (although people diagnosed after 2005 might be more familiar with the word ‘porcine’ than ‘pork’ or ‘pig’—-oh we have come so far), and when the letters CGM were mere letters that followed BFL. There was a time this world emphatically believed that islet cells COULD NOT EVER function in another human being. IT WOULD NEVER WORK under ANY circumstances was the belief. My question, of late, has always been with so many labs doing SO MUCH regarding the use of Islet Cells; why is not every penny of research money in this world going to perfect the hurdles to MAKE work what we know CAN work?

So the next time you find yourself saying the rhetoric phrase of, “Yeah but they are on immunosuppression drugs……..” perhaps we might all be better served to ask, “Okay, it needs to work for my child to use it, but it does work in some, how can I help to perfect it?”  Of course this is just my opinion and as always, I surely welcome yours.

If it was said that one day we will walk on the moon, and we did; is it not just as important for us as parents to say, one day my child will walk without diabetes.  As it stands now in our diabetes world, we have one small step for man……..it’s the next large leap for mankind that needs all of our attention.

I am a DiabetesDad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

* My disclaimer is, as always, that I have chosen to be an employee of the Diabetes Research Institute Foundation which supports the work of the Diabetes Research Institute at the University of Miami Miller School of Medicine.

A Line from an Award Winning Play…….Describes Life.

Our town“Do any human beings ever realize life while they live it?”   One of my favorite plays to both read and to have performed is Thornton WiIder’s Our Town.  Pictured above from over 35 years ago, this one line still resonates with me so many years after I played George, in a truly wonderful production.  How would you answer this question from the classic?

On this night my Brother-in-law, Jon, was joined by other Detectives in their retirement dinner.  For over 30 years he served a community and saw things that he will never talk about and did his job with dignity and honor.  In his ‘thank you’ speech, he emotionally mentioned his Mom, Dad, and brother (a Vietnam War Hero) who are all deceased; and how he wished they were with him on this night.  And perhaps because this is also the 7th anniversary of my dad’s world departure, well it’s a tad emotional.

The people who came before us.  They mean something, they really do.

Your kids are not wearing an insulin pump because it just appeared.  CGMs did not just come into being.  Anything you use today to manage your diabetes did not just magically happen.  Things came about because years ago someone had a vision.  Someone believed that our world could be ‘better’…….and they set out to make it that way.

I stopped counting how many times I picked up the phone to ‘talk baseball’ with my dad realizing that it could not happen.  His voice is silenced.  But I have learned to appreciate the many things he left for us to still enjoy; because they were his, and he gave them to us.

It is this appreciation that makes me realize the things we now have should never be taken for granted and should be understood for what they were/are.  Perhaps not perfect when they were first introduced, but progressed and have been perfected into something extremely useful.  Something that has changed our lives.

My dad loved science and medical advancement.  That interest was passed on to me………and I love learning all I can regarding what impacts my children and their living with type 1 diabetes.  I think of him with each new development in our diabetes world because he left that love to me and it has served me beyond measure……………..I only wish I could have one day to talk to him about all of this exciting stuff again.  Even an hour, I would take.   Even a minute.

The main character answers the question posed above, in the play, when he responds;
“No……………………………… Saints and poets maybe…they do some.”

Sigh
I miss you Doggie Daddy……….still.

I am a DiabetesDad.
Please visit my Diabetes Dad FB Page and hit ‘like’.

 

Please DEAR GOD, What Will it Take……UK Tribunal Hears of Death Due to Missed DX T1D.

Clair TaylorI AM SO ANGRY.  She is gone.  It happened in 2012.  Now a Medical Practitioners Tribunal Service in Manchester, UK, is hearing the case to see what can be done about it.  Claire Taylor was a talented dancer and baker who wanted a career as a dietitian as her older brother Andrew had Type 1 diabetes.  Even with this knowledge, her diagnosis was missed being sick for up to two months prior to her death.

Read the entire story here.

What will it take for us, here in America to realize THAT THIS IS A PROBLEM here as well?  On a day I read that d-mom Debbie George was hugely successful in California with a Resolution passed 38-0 for better diabetes education; I’m reminded that too many do not find this subject important enough to tackle.

I plead with you,  Be in contact with anyone and everyone you know in this diabetes world.  We have an ADA conference approaching and an AADE conference approaching……please organize a group of people in the same room to discuss, at least, the missed diagnosis of T1D.  Even if we do not come up with solutions……please let’s just not talk about it thinking it will just ‘go away’.   It will not.

I have hugged parents who have lost their child needlessly. I have talked to top professionals in this field who say that diagnosis of T1D upon DKA is rising.  We pride ourselves in America as being leaders——PLEASE TAKE A LEAD from our friends in the UK…..let’s open a dialogue on trying to stop diagnosing T1D by being diagnosed in DKA.  This is one wound we can, and should, take everything in our power to prevent before the knife cuts the flesh.

Please pass this along to anyone you know in these organizations……..a dialogue can surely continue what has started in ten different states already.

What will it take?  PLEASE let’s open a dialogue.  It’s getting so tiring.  Why MUST it always happen again, and again, and again.  Take action—-ask the organizers of these conferences to hold a discussion……a simple discussion on this topic.  We cannot begin if we do not talk about it……..I assure you it will not go away!!!!!…….and in the meantime it will cost more people their very lives……..needlessly.

I am a DiabetesDad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

 

 

 

http://www.mirror.co.uk/news/uk-news/seriously-ill-teen-diabetes-died-7556080