I wear glasses for reading. I hate them. I hate that my age caught up with me and those letters became fuzzier and fuzzier until the inevitable became the reality…..I got glasses. I hate wearing something on my body that was not born with me into this world.
I’m sure you can see where this is going. For some time I have seen posts from people asking about insulin pumps and CGMs. Should we get one. We are thinking about…. We were discussing and we want to get Suzie a pump…..
Now understanding that age surely plays a role in who is involved in the decision process but on many occasion I hear nothing of the child’s input to the decision about attaching something to their body, moving forward. And two things if you count a CGM.
I just want to remind everyone that unless you know what this is like, do not make the decision with too much haste. When Kaitlyn was diagnosed, we wore the pump (with saline) for seven days. It’s a royal pain in the butt to be quite candid. I can only imagine what this is like FULL TIME.
I would love to tell you what to do here, I know what we did, but that may not be what you need, or want, to do. SO I ask all of you to chime in. Did you discuss with your child about the wearing of a CGM and/or an insulin pump before you went ahead and purchased one.
If, in any shape or form, you came to a conclusion on your child wearing a device; how much were they in the equation? It can be a decision that is agonized over for some time. Many people go through this….so this discussion could be a big help. And again, please reply to this post here and not on the FB page so everyone can read it here and follow it.
To recap: was/is your child with diabetes involved in making the decision on an insulin pump and/or a CGM? And to those who are on a pump and CGM; how would you have felt if your parents made that decision for you?
A dialogue begins………..now.
I am a diabetes dad.
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