There Was a ‘Back Then’, Before……..Who Would Live Like That????????

Back in timeBefore.

Heavens; what did we do ‘before’?

When I was at dLife, Richard found his way into our forums and chats and once I became a regular in the online community Richard would always ‘pop in’ here and there adding his golden nuggets of incredible information.  You see Richard has been living with diabetes for 67 years.  That’s right, 67!

This week, while at the Children with DIabetes Friends for Life Conference he had a ‘first timers’ ribbon on.  Now being in his seventies, the man still looks to educate himself and be part of the diabetes community; doing something for the first time after having diabetes for 67 years.  If that doesn’t humble you, nothing will.

After meeting Richard, I was thinking on the plane ride home from Orlando; what it must have been like living with diabetes when Richard was a young boy.

I know all of the changes that have occurred since Kaitlyn was diagnosed 21 years ago and there have been so many more since Richard was diagnosed during the 1940s.  It makes me wonder what in heaven’s name we all did before……..before……..SO MUCH!

Imagine our world without devices like pumps, fast-reading glucometers, small needles, CGMs; Imagine our world without CWD, JDRF, DRI, The Diabetes Advocates, The Diabetes Hands Foundation, and so many other areas; Imagine our world without Twitter, Facebook, Instagram, and Pinterest; Imagine our world not connected and not being able to be with each other in the many ways available to us.


We now live in an instantaneous world which readily is available to supply and share information.  Our meters are the fastest they have ever been, and there is even discussions of things like the Bionic Pancreas and the BioHub; words that did not even exist 5 years ago, much less sixty-seven.

The world is forever changing and changing at a pace that on one hand does not seem fast enough but in another; faster than anyone could ever imagine.

When people like Richard were testing urine in a test tube 40 years ago, what would they have said when told that someday you will have something that will dispense insulin automatically?

We are now living in the fastest world of ‘now’ becoming ‘before’ than any other time in our history.  Just a shame that it is all not fast enough……isn’t it?

I am a diabetes dad.

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CGMs…a Few Points….Parents: We have NO Clue what Our Kids Feel About Nightime Lows!


CGMs.  Continuous Glucose Monitors (CGMs) are fabulous devices.  They not only remotely give you an idea on your blood glucose number they also indicate where one is trending (blood sugar rising and/or dropping).

The new Dexcom G4 Platinum looks to be a modern, thinner, easier to read, and more accurate CGM.  The Dexcom website states it is the lightest one out there at 2.4 ounces and also the signal can go three times further.

Kaitlyn had not heard that it was approved and from what I am looking at, it sure could be another great asset in Rob and Kaitlyn’s diabetes toolbox. 

I do believe that all CGMs should also have what Medtronic has created in their mySentry device.  This device can sit on your bed stand and alert you should your child’s blood glucose runs low.  It comes with bells and whistles to alert you in the middle of the night.  This device is an incredible asset and not just for the parents.  When Medtronic flew a bunch of us out to their HQ to see this device, it was a highlight for me to witness.  We were informed that people living with T1 as adults could plop this puppy right on their night stand to warn them as well.  What a godsend this device is to everyone.  I felt very naive when I learned from Kaitlyn just how much a low blood sugar during sleep plays on the minds of those with diabetes.  I asked  a million questions…..PARENTS: WE HAVE NO CLUE.  What we feel is NOTHING compared to what people with diabetes feel.  What a lesson she gave me–our fears pale in comparison to their fears. We just have no clue. 

All CGM companies need this type of device……get to work folks.  🙂

When dealing with CGMs–I still believe the best-selling point to our kids is that even though one should not dispense insulin based on the CGM readings (it is a technicality that is required for all companies to say as their accuracy is not as exact as the blood glucose meters that are not as exact as perfect as they should be if accuracy is to be exact….did you get all that?–in other words it is a disclaimer—Based on a comment from Tia–you can read her comment below–I need to add the following:  It is not ‘merely’ a disclaimer–it is a disclaimer for an absolute reason.  One should not dispense insulin based upon a CGM reading and I am not inferring anyone should…ever; until such time that they are as accurate as they need to be to dispense insulin–thank you Tia)–they will feel better in their day-to-day dealings. Mainly because of the incredible trending mechanism in CGMs that allow the individual to actually know they are running low or high BEFORE they actually feel it.

So when speaking to your kids—-let them know the CGM is an asset to make them feel better without the wide swings, THAT is the point to make.  Of course there are always exceptions to the rule.

CGMs are now a ‘must carry’ item for insurance coverage in NY State (thank you NY State Assmblyman Bob Sweeney—a POWERHOUSE in diabetes legislation) and check what this means in every state because there are restrictions how insurance coverage works for this device.

When Kaitlyn was diagnosed in 1992, these items were a pipe-dream.  Use them…..a dream becoming a reality is a good thing…..until we find that cure.

I’m a diabetesdad