To Whom DO I Turn at 3 A.M.????……….Sometimes a Good Cry IS Not Such a Bad Thing…….Is It?

tear dropIt’s three in the morning, you had a bad day, nothing went right, now your child’s blood sugar is 46.  You treat the low and you wait.  “I’ll check again in a few minutes.”
You look around.

You aimlessly flip a few pages of a magazine.  You reach for the remote and realize THAT is something you do not want to do.

“I know, I’ll go on-line.  Someone will be up.”

And there usually is.  Someone to talk to.  Someone else somewhere in the world going through what you are going through.  You are on for a while, you realize you have been on too long, you re-check your child’s blood sugar; 145.  You decide to go to bed, it is now 4:10 am.

This is routine.

When there is no one else…….there is someone else at a flip of a button.  Online.

But such was not always the case and there is an alternative for ‘having to chat’ with someone and it is not wrong to take this road.  Not always; well I surely hope it is not always, but when needed, if needed; there is nothing wrong with a good cry.

Let it out.

Back when ‘going on-line’ meant driving on the yellow line in the middle of the road; there was no one to chat with, talk to, vet, or feel horrible with and the alternative was to do a wash, clean more, read something, or just have a good cry.

The ‘crying’ was good because after a while you would feel silly; realize it was time to move on, and one would move on until you needed to cy again.  A week or even a year; a good cry was good to get everything out of your system.

So in as much as the online escape is good to have, remember, a good cry is not such  a bad thing to do every now and again also.  Face to face with no one else; helps you focus on what you need to do to move forward; and letting out emotion in a good cry……well not so bad to do either.   Food for thought.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’

A Diabetes Bag by Any Other Name………What Do You Call Yours?

Diabetes bagI have noticed recently, that when people refer to their ‘diabetes bag’; you know that ‘quick-grab-and-get-and-take-with-you’ bag full of just enough diabetes supplies to help you in your travels, that they call it something.

You know, like a name.

I found that very interesting.  So today I would like to hear what you, in your household, call the diabetes bag.   This is a new phenomena to me as in our house we were very original and unique; we called it, “the diabetes beg’.

I wish we were more creative so please share by replying on this site—-what do you call the ‘diabetes bag’ in your home?

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’

Labels….Labels….Labels. A Public Service Announcement from your Local DiabetesDad.

LabelsI want to save you from some grief.  Whether you have been at this for a week or over twenty-three years, there is something you should do, and many do not.  Kind of hard to explain why people do not do this; but so many don’t.

Labels.

In this day and age it is so easy to make labels or you have labels (that you received from the American Diabetes Association with a nickel in a direct mail piece) from many organizations who make them and send them out.  Meters, diabetes bags, etc etc etc should have a label with your name and address; or whatever contact info you feel is appropriate.

This may surprise you but you are not alone.  I’m amazed when I attend the CWD FFL conference in Florida how many people DO NOT have any contact information on items of such importance.  YOU ARE NOT ALONE.

We become so used to having it and always “just think we do”.  THAT is a false sense of security.  You will leave it behind.  (And here is a tip—-when you go to someone’s house, leave your car keys with the bag, that way you can never forget it.)

What I know.  You WILL leave it somewhere, and it will probably be at the most inappropriate time to lose your ‘diabetes bag’.  (Translation, it is the one time you do not have a back-up).

So take 10 minutes now and make sure everything has your contact information on it, you will be glad you did.

That concludes today’s public service message.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’

 

 

 

Have You Ever Suffered from Diabetes Dropsies????? Welcome to My Week!!!!!

Dishes fallingHave you ever suffered with ‘Diabetes Dropsies’?  It’s a phrase I made up.  It is just those times that, even though I know I know, I drop the ball.  It just seems that there must be a full moon or something because when it comes to diabetes, I am having it a tad rough lately.

Insurance company stuff, I want to choke someone; when I usually have it a tad better in control.  I must have called into their ‘stupid line’ by mistake because I find myself having to explain Everything.
“No, not aspirin, INSULIN”.  You get the picture.

Becoming extremely annoyed that stuff has disappeared out of the kitchen and crumbs are everywhere.  Now I know that it is from lows, but this week I cannot seem to get above wanting to really let out a scream when I know it is not their fault.   I know it.

Other things also, but I know you have been there too. Feel free to share what you go through or have gone through during the ‘Diabetes Dropsies’..   Looking back next week, I’m sure I will find the humor in my actions and reactions; but nothing is quite like going through a period of the Diabetes Dropsies.  Feel free to share.

GGGGGGrrrrrrrrrrrrrrr!!!!!!!!!!

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

 

 

Houston, We Have a Problem. Energy Building is More Productive than Energy Knocking Down.

Apollo 13 If you click the photo you will see a very  short clip.  It is from the movie Apollo 13, a classic directed by Ron Howard.  What is very interesting about this clip, is something that you might think is standard operational procedure for people working at NASA.  The ‘takeaway’, perhaps, is one does not have to work at NASA to understand the lesson.

In the movie (based on actual events) something has gone bad on the ship.   There are many reasons to say why the ship has this particular problem.  What I find so interesting about this clip (and the movie for that matter) is that little, if any, energy is spent walking around griping about the problem and ‘all that is’ wrong with it..  They can’t afford to do that as 3 astronauts’ lives depend on them fixing the problem, NOW.  They collect what ’is good’ on the ship, what they have to work with, and they design a solution to the problem.

And they move forward.

I like the idea of just the right amount of energy going into what causes the problem or what is wrong and more energy going into fixing the problem.  My question is this; how much energy is spent in breaking something down when we see it, and how much energy is spent building something up?

You will clearly see more people jump on to the bandwagon to beat up someone who gets something wrong when it comes to diabetes, than commenting when a little cheerleader in the UK, with diabetes, wins a rack of awards, allows her self to be thrown 50 feet into the air, and has so much energy that you get tired just watching her; and she does it all while balancing and managing her diabetes.   THAT is something that deserves our energy and our comments.

Do not misunderstand me, when something is wrong it needs to be corrected.  Mama raised no fool and I understand that ‘outcry’ is what the media, and/or those in authority, need to hear loudly at times when they say or do something wrong.

But let me ask you a question; where did we leave Paula Deen,  Miss Manners, or any other person who may have ‘got it’ wrong?  I can tell you what happened that will last forever about a little boy who was encouraged; or a child who needed to hear that what he was doing was a good thing; when people took the time to build something/someone up, I can tell you that the ‘positive-ness’ had much more of a lasting impact. on those young lives.

There are two takeaways here.  One is to make sure when you read something about someone doing something cool, especially kids, stop and hit like; don’t be afraid to leave a comment congratulating them—-it WILL make a difference.

Takeaway number two is that we need to take what we have when someone does something and try to find the power behind the overall picture.  In the recent NY Times article, sure using a word like ‘gadget’ was not the correct choice for words; but there was a lot right in that article also.  I’m afraid the ‘right stuff’ was lost because the bandwagon left the station with the masses already deciding that the important part was only the parts that were wrong, wrongly stated, and not reported the way we felt it necessary to report.  Again, I cannot make the point any clearer–we must correct this when it happens.  But I ask this; how quick do you think THAT health reporter will be to write anything again about T1 Diabetes?  Is that REALLY what we want?

As I stated many times, getting something wrong is getting something wrong–our voices should be heard.  People should respond when there is an outcry and anyone who writes accepts that point and should welcome the opportunity to ‘get it right’ or even correct it when needed—-it comes with the territory, as they say.

As the clip stated (and to fit this example), “We have this, we need to get to this, using only what we have.”  Is it wrong to build something up with what was good, and find a better way to correct the wrong?   We should not have to ‘settle for anything’ BUT we have to work with what we have and sometimes, not every time, that means to work with something that can be built upon and not knocked down completely.  As my dear friend Dr. Richard Rubin used to say, “….find the balance…..’.

When doing an extension on a house, as any good builder will tell you, it is always better to leave what is good and build upon that foundation and not to knock it down to the ground and start over, unless it is completely rotted out.   What we read and hear, sometimes, is not always completely ‘rotted out’, and much good remains to build upon; let’s do that when we can. Think about it.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

It’s Easy To Make it About what they Got Wrong and Right………BUT ASK Yourself………

NY tImes logoThere has been much discussion about the recent NY Times article that included the writer’s opinion/research about devices, expenses surrounding diabetes, and more.  You can read the entire article by clicking here.

Someone asked me if I was going to chime in; and I AM going to chime in but perhaps not in the way that I am known to do.  Many people have stated their opinion and, for the most part, I agree with what has been written; but I noticed something else which I have been noticing more and more.

Will anyone EVER GET IT exactly right?

From stories of celebrities; events; initiatives and the list goes on and on and on; as soon as someone states “A”–someone else brings up “B”.  Someone was doing a fund-raising event to help people in less fortunate areas of the world outside of the United States be given insulin and other diabetes supplies; all good….right?  Nope.  Some people were stating that we should take care of those in this country before we help those in other countries.

I get it, I really do.  Everyone is entitled to an opinion.  They really are free to say what they want.

The media should take every step in getting the information correct.  And when they do not; IT SHOULD BE corrected.  But as I read the outcry regarding the NY Times, I was wondering if these outcries are taken from other aspects of our diabetes world and ever turned into actual actions?

When someone from the JDRF or the ADA state there is an action needed to oppose or pass a bill; do we, with the same muster discussing the NY Times-Paula Dean-Miss Manners issues-pick up a pen and write a letter?

When Bennet Dunlap states that he’s working on an initiative for strip safety and asks for an action step, do we, with the same muster, initiate the action he requests.

When there is an action step needed; is it talk–or is it backed with action?

If you do; fabulous.  This is article is not for you.

But if you find yourself one of those who readily jumps-in ONLY in times of crucifying someone who gets it wrong; I ask you to take a look and also LOOK TOWARD taking the plunge and ‘jump-in’ when others need help doing something right.

Opposing viewpoints to correct something ‘gotten-wrong’ is hugely needed and always encouraged.  But when there is much that needs to be done in this world of diabetes,  ask where is it that you fit in; ask where is that YOU DO something?  And if you do and you are comfortable right where you are doing what you can……..wonderful.

But ask yourself if there is something more that you can do; either by creating it or helping others accomplish their goals—goals that you share.  Those efforts need your help in this battle.  We all have a voice.  My big mouth is surely one of them.  But words without action are just dead.  Don’t ‘just do nothing’.  Think about it; and more than that—-do something.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

Did You Ever Have a Dream More Real than Not Real?

Richard RubinDid you ever have a dream that was so real, you could touch it?  The conversation being so real that you think you actually had the conversation with the person in your dream?  My dream was just like that and even though it seemed impossible, my friend was right next to me.

Many things that happen or I go through, well truthfully; I keep to myself.  It seems I share a lot with you but there are truly personal things that need to stay out of my written articles.  Such is the case with a few things presently and the one person who I could always call, relay my feelings, and talk about so freely, whatever was on my mind; was the extraordinary Dr. Richard Rubin.

I know a few times over the past few weeks I would have picked up the phone; and perhaps he knew that and hence why my dream seemed so real.  Richard never said, “don’t worry it will be okay”; in our conversations.  He did say, “it will work out the way it should and you will be able to work your way through it”.

In my dream, he was running and was in shorts and a shirt; he told me “…….to keep on running.”  When I told him that everyone else in the race was far ahead of me and I could not even see them anymore to know what path to follow; he told me to just trust my heart.  “It does not matter where they are, it matters where you are.”

It just seemed so damn real.

In my dream I got lost, not once but twice and found my way back to the pathway and I finished the race.  When I got to the finish line he was waiting there applauding as so many of ‘us stragglers’ finished.  He looked at me with those warm eyes of his, said nothing, and nodded the way he did so many times that YOU JUST KNEW what he said was spot-on truth.

Richard has been gone just over a year and he still finds a way to teach me, even today.  I miss my friend, oh so deeply.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

 

On Her Birthday, Even at 24………Her Daddy’s Eyes Only See This!!!!!!!

Kaitlyn Face CroppedToday she is 24.  Twenty four hours in a day twenty four years in a lifetime.  In as much as there is NO SECRET how much my kids mean to me, and how much Kaitlyn has meant in where I am today, I want to take this opportunity to relay something to any parent out there who has young kids dealing with diabetes.

Last night we were leaving the Nassau Coliseum where we attended a home show.  Nice to look at ’stuff’ and talk to people in the ’business’ of caring for homes.  As we left, people were attending a ‘Disney on Ice Show’.  This has a huge bad reminder in my memory; as when Kaitlyn was very young she had one of the most severe glycemic reactions right in the back seat of our car in the parking lot as we pulled into see a show.  I was quickly reminded how many wonderful memories of Disney Shows existed as well, but the bad one still haunts me.

We have dealt with diabetes since Kaitlyn was two.  As you look at your child battling this disease; I want you to know that the only thing that can hold them back is their own imagination.  I don’t tell you that as a wish but as a life-long observation.  As I continued to pray nightly by her crib, her tween bed, and her teen bed that she would not be taken from us; I could not help at marvel at the child she was, the woman she was becoming and now is.

I am sorry she inherited my ‘will’ because when we go at it…..we go at it good.  :)

That said, she was a wonder in high school and she got every bit of mileage in friendship and activities.  She came home once and said, ‘I don’t have my High School Letter, and I should…..in something.”  She tried-out for something and made the team.  “Me and my partner are absolutely horrible”, she would say; but a smile would quickly go across her face, “but I’m getting my letter.”

That’s Kaitlyn.  See it. Want it. Go for it. Get it.   Even if takes a step to the left and /or a step to the right; at the end of the day she gets what she sets her mind to achieve.  She amazes me daily.

To my weakness, being my only daughter, she pretty much gets what she wants from me as well; and Jill surely works to counter my actions that I don’t go overboard —-winning—-sometimes.

Kaitlyn works 1000% on whatever she does and yet, (and I have said this before) she is the type of person that genuinely gets excited at opening gifts; even the small ones in her stocking at Christmas time.  She just loves life and she enjoys it, truly, more than anyone I know.

There is nothing that she has wanted that diabetes stopped her.  Nothing.  And whatever she wanted to try, even cross country; we let her.  We found a way to make it work.  When she stopped something, it was her choice and her choice alone.

So I wish Kaitlyn Happy Birthday today.  And to you I say, look at your child and know that life has wonderful things in store for them and let them try whatever it is they want to try.  Our job is to find a way to make that happen for them.

Life is not for the ‘what I can’t do’; real living is to take on the challenge, and watch your child look back and say, “Yeah, I did that!!!!!!”

Nothing better than that, especially on their birthday.

I love you baby.  KKNN

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

A Burning Event that Serves as a Reminder to All of Us.

Toaster fireJust finishing getting dressed, the fire alarm in the house started.  I walked down stairs into a house full of smoke.  Alarms blaring.  Much scarier than it looked, the toaster did not pop-up the English Muffin for the person using it(do people in the UK call it an English Muffin also?).  It started to smoke—-and it smoked a lot.

It reminded me of a scarier time when I was a child.  The toast did not pop-up and the wall and curtains caught fire.  The fire burned fiercely and went right out.  We were all VERY lucky.

The toast was supposed to ‘pop-up’.  Planes are supposed to stay in the air.  Cars are not supposed to malfunction.  What is supposed to happen and what does happen, sometimes, directly opposes each other.

This incident did not talk to me like Moses’ burning bush but it did remind me of something that was as clear as a bell, which I share with you today.

Let this serve as a reminder as it did for me.  Machinery CAN go wrong.  It’s not supposed to and you should never live in that fear but also; you should not have a false sense of security either.  Even with front wheel and/or all-wheel drive; your car will most assuredly slide on ice.

Make sure the devices you use to manage diabetes are well maintained and up-to-date.  Nothing takes care of the management of diabetes better than you (PWD or the parents doing the care-taking).  I don’t tell you that so you fret over it; I tell you that as just a reminder that nothing gets done ‘all by itself’ and checking things every now and again; and/or checking supplies every now and again, checking expiration dates every now and again, are all good practices to maintain.

So if you have not checked in a while that the stocks are up-to-date; and that expiration dates–especially in the back-up supplies you keep in the car, school, and elsewhere (at relatives and babysitter’s houses)–are all accounted for, today is the day to do so.

Just checking the check-list every now and again is a good thing because no one wants to slide on the ice; and no one wants to go without a toasted English Muffin in the morning because it burned.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.

Could the CGM Ever Send Information to a Cell Phone?

glucometer cell phoneThis is more of a question than anything else but I thought I would ask you all.  Is there a reason or a thought behind the fact that if the CGM has a sensor and a receiver……could we not download software that would allow the same information to be ‘beamed’ to a cell phone; or more than one cell phone (for us parents  :)   )?

And before you download……there is a disclaimer that states the user is aware that the software is not a substitution for the ‘real deal’ which will allow the liability to be negated.  The software cannot be downloaded to your phone without this consent.

Just seems to me that we might be able to eliminate a device.  Most people carry cell phones anyway.  Is it out there and I missed it?

What do you think?

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’