Wonderful and talented Wendy Rose shares today in her CANDY HEARTS blog that her child will be entering a research project regarding Ed Damiano’s Bionic Pancreas.
Do you know what that means?
I ask you that because as Wendy describes the excitement of what her child will experience, it is also a research project. And with that comes many unknowns. Adults that do this, and especially children who do this, are as about as much as a hero as one could ever be.
Is the risk minimum? In this trial, probably yes. But that does not mean that it is ‘a given’. Nothing in research is ever a given and that I can tell you as an absolute fact. Now in as much as Ed and his team have every base covered, I am sure, a trial is just that…..a trial. I think all families that allow this, or who get involved, are amazing.
Probably the Queen of all research projects is Monica Lanning who, I believe, at different times numbered 20+ research projects over the years. Is it at all surprising that research is the path she wants to follow in college and beyond? From first hand experience I can tell you that these projects are not always so pretty and tied in a bow.
So I think Monica, Wendy’s child, and those like them are all superheroes without a cape (maybe they DO have a cape—I’m not sure). There is not a device or a medical improvement that did not involve some sort of clinical trial to make sure it is ‘ok’ to bring to market.
Being involved in this ‘research’ world, I can tell you that many have no idea how long the roadway is to prove something feasible to help others. So I wish Wendy’s child, and her friend, the best on the journey they are about to undertake. I pray it is everything they want, and it is an experience of a lifetime……..to go, albeit briefly, with diabetes managed and controlled will be an astonishing feeling. She will be writing what she can about the trial I am sure. To all those who have offered themselves to advance the good for others…….we need to thank them.
Always remember, if you use anything regarding diabetes, it is a great chance that someone had to help get it in your hands; and in some of these cases……..children decided to get involved in a trial somewhere. We are humbled by their efforts.
I am a diabetes dad.
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