I Would Not Tell You What To Do….no…No…NO!

 

Two friends are having lunch.  A third person joins them and says, “Hey, did you see the clown out front?” One friend responds, “Was it a real clown or one dressed as one?”

My point; people hear (or in this case, read) something but do not catch the full meaning.  I posted something two days ago which in many circles became a very healthy conversation.  In others…….not so much.  A few people posted what they thought my blog was about and the discussions took off from there. 

I, (I would like to say never but my folks taught me never say never) try to take the pathway that does not tell anyone how their diabetes should be managed.  It’s a very personal choice for people with diabetes and for parents managing their kids.

I certainly would not want it done to me, and I try VERY HARD not to do it to others.  Motivation?  Get Involved? Don’t do Nothing?  Yes that I do.  Management? NO.

My post two days ago entitled, My Child, When Low…Will Wake up…..Right?  Um…..Not Necessarily was in no way meant to; or suggest that one should or should not wake up in the middle of the night for night-time blood checks.  A few people commented in various places and it was ‘off to the races’.

Whether you do or don’t is up to you and your choice alone.  My purpose of the post was only to say that I always thought that a low blood sugar would wake up my kids as it has……..but relying on that; I needed to take another look.

If blood sugars are at a level that you are comfortable with at bedtime and you are okay with that; that is fine by me.  I have no right to say otherwise.  I was pointing out that I ALWAYS thought my kids woke up…..and I now question that IN OUR LIVES.

What you do is up to you.

I share this because the purpose of my blog is to make people think and inspire when possible by shining a light on the so much so many do every day with that asterisk called diabetes.

Never misunderstand or mis-communicate my words……….diabetes management is up to you.  MDI, Pumps, CGMs, insulin, meds, dogs, no dogs, —-it is not my place to tell you what to do—-and no one else should either. 

I have been astonished at the wonderful feedback which I thoroughly have enjoyed over the past few weeks since I started this blog as over 11,000 people have read what I have written.  I just wanted to set the record straight how I like to work/write and know that I’m an open book and I can be asked anything at any time.

Thanks.

I’m a Diabetesdad.

My Child, When Low….Will Wake up…..Right? Um…..Not Necessarily.

I had the opportunity to hear Jeff Hitchcock present this weekend and he addressed night-time testing and the ‘thought’ that our kids wake up when they feel low.

It is thought by many (us…..definitely) that should our kids start to feel low while they sleep they wake up.  I know for me it was a fore-gone conclusion because Kaitlyn has done it most of her life.

Does it turnout that we were merely fortunate?

A study from the University of Luebeck in Germany tested 16 nonT1 patients and 16 with T1 diabetes.  During the control time none of the patients awoke.  In the test of the two groups presented with hypoglycemia; 10 patient in the healthy group awoke when presented with hypoglycemia while only 1 in the group with T1…….

Conclusions: A fall in plasma glucose to 2.2 mmol/l (40 mg/dl) provokes an awakening response in most healthy control participants, but this response is impaired in T1DM patients. … Failure to awaken increases the risk for T1DM patients to suffer prolonged and potentially fatal hypoglycemia. ***

How conclusive is this study?

Well given it is not a huge sample; but it is enough for me to know that either by CGM or testing in the middle of the night is something we probably should all be doing more; and not merely depending on our child, and/or loved one, to merely awake on their own.

This is not written to scare anyone but numbers are numbers and it is a tool/guide/reference for us to consider as we work through the daily management of diabetes.

It has always been just accepted that Kaitlyn and Rob would just wake up when they are low…..this study paints a different picture albeit a small sample group.  That said; until such time that someone tells or shows me differently–we will no longer JUST ASSUME they will wake up when low.

Granted that other factors may play a role if we choose to wake up and test them in the middle of the night or not–but one of those factors, which will be removed in our house, is the 100% belief they will just wake up.  How about you?

I am a Diabetesdad.

Editor’s note: My point here is we probably should not merely 100% accept that every time PWDs go severely low in the middle of the night—they will just wake up. 

 

***Bernd Schultes, Hamila Jaich-Chara; Eva Reiprich; Werner Kern; Alchim Peters; Herst L. Fehm –Department of Internal Medicine University of Luebeck, Luebeck Germany
Steffan Gais; Manfred Hallschmig; Jan Born-Department of Neuroendocrinology; University of Luebeck, Luebeck Germany
Kerstin M. Oltmanns- Department of Psychiatry & Psychotherapy; University of Luebeck, Luebeck Germany
Emails may be directed to: Schultes@kfg.uni-luebeck.de