Thoughts on that ‘Walmart’ Insulin

I have been reading some VERY INTERESTING comments on social media regarding the “insulin sold at Walmart”.  Some even using actual scare tactics that I’m not so sure should be used by anyone, nor does anyone any good.  Still not so sure why THAT is even being done.

To be clear,  Buying these insulins IS NOT an alternative to the dilemma of the high insulin costs.  What IT IS, is an alternative to dying because one cannot afford insulin. 

There are many things I have read over the years that leaves me scratching my head.  But I have also learned that how one manage their diabetes, or their loved ones’ diabetes ……is……well……up to them. If you can find a way to make the insulins work that Walmart sells, more power to you.  When Kaitlyn was first diagnosed, those insulins were pretty much all there was to manage the disease.  In fact one was actually ‘pork insulin’.  Twenty-six years later, here we are.

It will take an adjustment and a doctor should surely be involved….as always.  And it will probably be a pain in the ass. These certainly are the older generation of insulins, and so they don’t provide quite the same coverage for blood sugars. They have a shorter half-life than name brand insulins and they do not come in pens. They can peak in two hours and may need a 30-60 minute lead time….like I said, a pain.

You will also be better served by finding a way to obtain the insulins that are available today.  But if you cannot afford it, if the cost-reduction programs that the companies offer do not work for you, if you have tried government programs, senior centers (if applicable), and community and social programs for help and if there are no options…..and the only option is NOT TAKING insulin, well THAT is not an option at all.

Now please do not come after me with pitchforks and torches.  TO BE CLEAR: NOTHING SHOULD STOP THE PRESSURE BEING MOUNTED AGAINST THESE HIGH COSTS.  But I would not want it on my conscience that someone read something that I wrote and did not at least try it because of what I said…..and died because they went without.  There is a difference between ‘stop-gap’ action and a substitute for.

I’m still unsure why the government cannot relax the restrictions for buying insulin abroad until such time that those who are so ‘piggy with greed’ can find a balance.  Because this dilemma is bad, stupid, and inhumane.  Like the air we breath when denied, will kill us; so too it is a death sentence to not have insulin affordable to those who cannot survive without it.  THAT THOUGHT HAS NOT CHANGED. Why some bright lawyer has not figured out a way to sue over that, is also beyond me.

WE WILL ALL KEEP FIGHTING.  YOU must find a way to stay alive.  My prayers will continue and my actions will stay in full force until we find this rectified.  And if there is something out there to try with your doctor’s help as oppose to doing without…..I choose trying.  That is my point today,
I’m a DiabetesDad
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Small Time Becoming BIG TIME…..Diabetes Community’s Perfect Song

There was a movie with Tom Hanks making the rounds a years ago entitled,
That Thing You Do.  Wikipedia describes the movie; A small-time rock band rides a big wave of success with the help of a savvy record-executive and a catchy single.

You? You’re the small time rock band.  The savvy record executive are the voices who started this outcry.  And the catchy single is the unfairness of insulin prices.

The movie is about this small town group, with just a small voice keeps pushing and riding and yelling from the mountain tops that they have a good song.  Finally, a company called PlayTone (starting out as fictitious record company for the movie and actually established in 1998 by Mr. Hank and friends) signs them and pushes them to the top.  Had the voices not been there early on, the success would not have occurred.

Now read this first line from a Reuters article two days ago, and read it carefully.
Powerful committees in the U.S. Congress held hearings on Tuesday on insulin affordability and high prescription drug prices, an issue both chambers have said is a top priority for the year.

You did that.   Yes, you!

Before all of the many large organized diabetes groups jumped on board; and just as in the movie, you need big time to take you to the big time and they are a welcome site, there was just you.  You who have diabetes or have a child with diabetes first said, This is unfair, the current costs are going to be hurtful.   You wrote letters, you protested (even by yourself), you posted on social media…..you…..the voices in the diabetes community….before anything that occurred, became organized, or became unified……it was just you….that one voice who cared enough to “just not do nothing”.

So there is surely much work to happen yet.  But before all the big guns jump out and send press releases telling you of their wonderful efforts…….and they surely were and are wonderful efforts……..I just want to add a word of thanks to all those who one will not read bout, see, or hear about.   But know this, with no uncertainty, without those voices to tell the stories of rationing, cutting insulin doses, and simply doing without when no one else thought it cool enough or news worthy enough; we would not be here today.

Like I said…….more to do…….but thank you diabetes community, your voices are about to turn into a roar.  A number one hit no matter how you look at it.

I’m a DiabetesDad
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Legislation on New Bill to Tax Air we Breathe

In a very discreet and without fanfare congressional move, both houses today passed legislation that states commencing on January 1, 2020 there will be a tax placed on each American citizen for the use of air which is part of the mainland United States.  Senator John Consigliere of Wyoming stated that the move was made to further be able to pay for the many means of purification now needed for breathable air……………….

…….okay……got your attention??????

Stupid isn’t it that something so needed would have any cost to use it?  Something we would die without.  So needed for us to live that it does not make any sense to think we would have to pay for something we have to use to stay alive.  There will be no tax, there is no such Senator from Wyoming.

BUT for goodness sake can someone, anyone, possibly explain to me that people who need insulin to live; in some cases cannot get it due to cost.  If you think about it, there are many, many medications you can take to make your life bearable and better.  Some could die, if the med was not  taken.  But every single person—–EVERY SINGLE ONE of those who live with type 1 diabetes would die if their insulin was not available.  Some sooner than others.  And here’s the story, some have died already.

One was too many–and why?
Because of GREED!!!!!!!!

What does the government need to see to step in here.  Until a solution is reached, let’s call on the government to relax any and all legislation that prevents people from using whatever means necessary to obtain affordable insulin.  If an executive action can get a wall built (well, ok, threaten to anyway)….cannot the same action open the boarders, ease the restrictions, open the floodgates to allow insulin to be purchased at an affordable price?????

Once we figure it all out, we can backtrack a little but until such time, an emergency act can save lives and surely……it will!

Send this everywhere you can.  Until such time that we have an answer, this is an emergency action, an executive action. to save lives.

This is not a favor to make life comfortable.  This is an act of government/congress/senate/executive to allow insulin to be purchased……..at the end of the day, to so many, it’s as important as air.

I’m a DiabetesDad
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NEWSBREAK: CBS This Morning Reports on Insulin Costs, The Players, and the Lawsuit

CBS This MorningAs I wrote/reported recently on the story in Diabetes Daily, there is a lawsuit pending against the insulin companies regarding collusion on insulin pricing of late; and I also have stressed on how all parties need to react and must come together (read it here).  Today, on CBS This Morning, they report the story in more detail.

What I would like to stress about this story, is as I have also stated countless times, it is touched upon here in this report but do not just gloss over it.  At the end of the report, the reporters discuss how much finger-pointing there is going around—-THIS IS SO CRUCIAL because the finger-pointing will continue as long as ALL OF THE PLAYERS ARE NOT SITTING AT THE SAME TABLE AT THE SAME TIME to fix this problem.

It also will not matter what national health plan is in place, and do not be led off the path of what is important:  ALL PLAYERS MUST COME TOGETHER OR WE WILL BE IN A PERPETUAL, AND UNENDING, CIRCLE FOR YEARS TO COME.

THIS IS WHAT WE MUST ASK OF ALL THE PLAYERS……TO COME TOGETHER.

Here is the story on CBS This Morning.

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NEWSBREAK: Law Suit Against Top 3 Insulin Manufacturers

scales-justice-statueI won’t even try to re-report this story—-go to my colleagues’ story at Diabetes Daily and read all about it:
https://www.diabetesdaily.com/blog/people-with-diabetes-are-suing-the-top-3-insulin-makers-349851/

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OPINION: If All Do Not Sit at the Table, at the Same Time, NOTHING will Get Done.

TableI received my mortgage bill recently from my bank.  There was an error in my amount of taxes.   So I called my municipal tax assessor’s office to confirm the error and they agreed.  I called my bank and informed them, they started a report (they always ‘start’ a report) and said they would look into it.  I called back in a few days and they stated they contacted the tax assessor’s office and that they were correct from the beginning and that I would be getting a letter…..from the report.

Uhhhhhhhmmmmm……I don’t think so.

After going around in a circle a few times, I got both the bank and the municipality on the call at the same time to stop the perpetual merry-go-round and we worked it through.  I will be getting the revised bill shortly.  Now those few sentences are about 6 hours worth of wasted time and energy, but when I got everyone together, at the table at the same time, as-it-were…..results.  Unless all the stakeholders are together at the same time it’s the gerbil in the never-ending spinning wheel.

Now hear me and hear me closely.  All of the government regulations, petitions, and meetings will not do anything substantial when it comes to the cost of insulin. Little will be done in tangible results.  At some point, the natural progression of the market and competition will do something to lower the costs and people will be jumping through hoops to take the credit….if that, indeed, ever happens.

Oh sure MANY, MANY really good things will happen that will REALLY, REALLY look good…..but it’s all for show to say to the world……”look what we did.”

But watch carefully….it’s all for naught.

But until such time as the stakeholders, the retailers, the producers, the manufacturers, all sit around the table at the same time to try to resolve this mess….and throw in a few elected officials to give a government perspective on the whole picture as well………..it won’t be resolved…….ever.  Please prove me wrong.  But if we want to see something significant happen with this insulin dilemma, get everyone involved at the same time at the same table and lock the door until a resolution comes into play….is really our only chance.

So either get everyone, EVERYONE, all together or, as I said, prove me wrong……..PLEASE…….prove me wrong.
I am a DiabetesDad.
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