$116,000,000,000 You Pay….What Comes Back?

moneyThe American Diabetes Association estimates that when it comes to diabetes 116 billion dollars (with a “b”) is spent on everything out of lost time which is an additional 58 billion dollars.

I believe there will be a solid advantage to the pharma world that is aligned with the place and/or organization that takes us closer to a cure, or is helping those in need on a larger scale–a thought occurred to me that I think needs addressing.

If you combined all—I mean all—of the money given to those focusing on research, you would come nowhere near the 300 million dollar mark annually.  That’s JDRF, DRI, ADA, Joslin, Barbara Davis, DECA, Columbia University, Minnesota, Harvard, and on and on and on; COMBINED. I believe my number of 300 million is very high for an annual amount.

For all that is given, spent, and utilized to care for all those with diabetes; all the fundraising combined is .25 of the total revenue spent on diabetes care annually; and almost all of that fund-raising is private philanthropy;  one-quarter of one percent!

Anyone else find that number to be slightly skewed? 

I get it.  Companies are in business to make a profit for their stock holders.  And many companies give a good deal; but are all of them giving even 1% back to the consumer in the form of a cure or helping those in need?

We now have many choices when it comes to diabetes supplies, maybe we should add,  “What are you doing to help?” to our decision process when choosing a company to purchase our supplies.  Maybe we should be asking more, what do you think? 

I am a diabetes dad.

 

Today is Giving Tuesday…..Did You Know That????? 3 GREAT Ways to Help.

Do you know what today is????

You had black friday; you had cyber Monday—-well now that you saved all that money–welcome to Giving Tuesday.  That is correct…..today is the day to show your support to the charity of your choice.

Now I have a few suggestions for you (well you know that was coming) just in case you are at a loss.

1. You can go to www.santaclausDRI2012.org and donate to either send a personalized letter from Santa to a child you know or even to just give a donation…..you’ll feel good about it.  All money supports the fabulous work of the Diabetes Research Institute….whatever you give will help.

 

 

 

 

 

 

 

2. Go to http://www.diabetesresearch.org/keep-calm-and-cure-diabetes and order a Keep Calm and Cure Diabetes t-shirt……very, very cool.

 

 

 

 

3. Send an e-Card https://www.diabetesresearch.org/send-an-ecard—very nice way to show you care.

 

 

 
 

So all of these great ways to help find a cure for diabetes and also to give on this day of Giving Tuesday….Thanks for caring.  You’ll feel good–even if it is just a little, everything helps.

I am a Diabetesdad

 

Santa Will Send Your Child a Personal Letter……..You’ll Help Find a Cure.

If if you do not have children for this incredible program…..it’s the holidays, help take us one step closer to a cure.  

SANTA CLAUS CAN PEN A PERSONAL NOTE TO YOUR CHILD THIS CHRISTMAS
Jolly holiday fundraiser benefits Diabetes Research Institute Foundation


New York, NY (November 23, 2012) – Yes, Virginia (and Emma, and Maria, and Max, and Willie…), there is a Santa Claus. To prove it, ‘Ole Saint Nick himself will send a personalized letter – complete with a North Pole stamp – to any child, in any part of the world for a minimum $15.00 donation to the Diabetes Research Institute Foundation. This jolly holiday fundraiser kicks off this year on Friday, November 23rd at www.SantaClausDRI2012.org and is certain to light up faces brighter than the star on the tree.   

(Kids from last year holding their letters)

The personalized letters, which can be sent by parents, grandparents, aunts, uncles or any other family member or friend, can include all kinds of information, like a reference to any toy, game, iPad or techno-gadget on the child’s wish list or whether he/she has been naughty or nice this year. Santa can even tell them that he knows how well they have been managing their diabetes. The fundraising campaign is open to all families everywhere, not just those affected by diabetes. However, with almost 26 million Americans affected by the devastating disease, it is likely that almost everyone knows someone with diabetes.

To get the hundreds, even thousands of letters out to children by Christmas day, a legion of Santa’s “elves” are standing by around the country, according to volunteer chairwoman Marie Jarcho.

“We had a tremendous response the first time last year. This is a wonderful and easy way to brighten a child’s Christmas and they loved it. The more information that parents or others supply on the website, the more personal Santa’s letter will be,” she said. “As a mother of a son with type 1 diabetes, it is my hope that people will give what they can to help the Diabetes Research Institute find a cure.”

After the event last year, one mother wrote that her child was so thrilled with the personalized letter that she slept with it every night until Christmas. The DRI Foundation is hoping for a greater response this year.

“This initiative is all about making children happy by receiving a personal letter from Santa Claus. We also know that during the holidays, millions of children and their families affected by diabetes wish for a cure. Our goal is to make that wish come true, and we’re grateful to be able to move a step closer with the funds raised through fun programs like this,” said Robert A. Pearlman, president and CEO of the Diabetes Research Institute Foundation.
To send a child a letter from Santa Claus, visit www.SantaClausDRI2012.org.  The deadline for participation is midnight on December 18th.

 

Dire Need of Diabetes Supplies Due to Hurricane Isaac

Hurricane Isaac slammed into the United States leaving behind a land of ruin and devastation.

A while ago I reached out to the LIONs Club International Foundation(a service organization that helps those in need and also has diabetes as a priority)(LCIF). The LIONs have boots-on-the-ground around the world and the idea was that if there was ever a need due to a natural disaster; we would work together in supplying diabetes supplies to the impacted area.

I called it the I.D.E.A. Plan. International Diabetes Emergency Action Plan.

NEVER, did I think a need would come so fast.

Hurricane Isaac ravaged the areas it hit and destruction was left in its wake. And the call came.

KaSondra L. Byrd, Manager, Humanitarian Programs for the LCIF reached out and there is a dire need for diabetes supplies.

I have listed the information below to ship diabetes supplies; you can help.

They are presently in need of:
Meters, Lancets, Strips, Alcohol Swabs, and Gloves (Medium size) (again no insulin is needed at this time)
Requested meters are those which require no coding—any brand will do.
PLEASE—ONLY SEND THE ITEMS LISTED
You should know that these supplies will be given at no charge to those in need.

They are attempting to give people a 30-60 day supply of items and as a starting point; figure for about 400 people (we will gauge again and reevaluate in about a week to ten days).

Send to:
Dr. Miriam J. Gray
Gulf Coast Health Educators
212 E, Second Street
Pass Christian, Mississippi 39571
Again, this is a 501 (c) 3 agency helping those with diabetes (both type 1 and type 2).

IMPORTANT: IT IS IMPORTANT TO KEEP AN INVENTORY OF WHAT IS BEING SENT.  VIA A COMMENT ON THIS BLOG, KINDLY INFORM ME WHAT YOU ARE SENDING AND I WILL NOT POST THE RESPONSE, I WILL USE THE REPLIES TO KNOW WHAT IS BEING SENT AND THEN DELETE. 

Any questions, let me know.

Anything that you can send will help someone in need and remember kindly ONLY SEND what is requested and please inform me of what is being sent. Thank you for caring. I am a Diabetedad.

Please God, with Everything that is Holy !!!!

We are the diabetes community. We are. We are not short for words. When we have an opinion, we speak. Today, I am asking you to have an opinion. In fact today I am asking you to scream. I am asking you to rally around one family.

Why this family? We all have problems; we all have to deal with what life throws at us; why this family? The answer is this: sometimes no matter what we go through, when you see someone going through absolute hell, you can step up to the plate in some way.  A way that will help no matter how small.  A way to show you care.

This is what Meri Schuhmacher wrote on her blog today. Meri has 4 boys (ages 16-14-10-8) and 3 of them—3 OF THEM–have type one diabetes. Her husband, a young man, passed away last weekend. Six months ago he was strong, vibrant and active; he was diagnosed with brain cancer; and his battle was lost last weekend.

Here is what Meri wrote today on her blog:
Aching
I wasn’t expecting it.
Looking back it should have been more clear to me what was happening, but in the moment…I was just coping with him. Loving him.

How everything happened last Sunday is so personal I can’t write it down here, but I can tell you that without a doubt…we received our miracle.

I sit here completely humbled, and shocked. How God got away with this without me cursing him is the monumental miracle itself. Each detail of the last week was carefully seeded so that on the other side I could not deny this timeline was always set. It just wasn’t for me to foresee.

My body is barely hanging on. I am so weak, and tired, and aching. I ache everywhere. But my brain is working overtime…leaning on the muscle mass it has gained the last few months.

I wish I could turn it off. I wish I could flip a switch and give my body a break from feeling it all.

I wish I could know exactly what to do for the boys, and what to say. I hate guessing my way through something so important. They are my number one priority right now.

He fought the fight so valiantly. Last night as I was staring at the wall trying to convince my brain to sleep, I realized that not once did Ryan ever complain. He never questioned why this was happening to him. He was only always positive. Hope was the only option in this house…it was how he lived. Finding the joy in the little things was his legacy, and looking back I do not regret one minute of our journey.

I hope one day to be able to follow his lead and live with the assurance that all will be well. Today that seems impossible. Nothing is well. Saying I miss him is not even close to the pain that I feel. He was my everything. My favorite. The love of my life. My best friend. He got my sense of humor. He never judged me. For the past 20 years we did everything together…our hobby was each other.

Writing things out is my best therapy. Letting it out and knowing my feelings are there to look back on help me get through. I don’t know how long it will take me to navigate this road I’m on…maybe forever…but I will continue to come here and lay it all out.

It is my way.

I hope that it will help me get through this day. And then tomorrow I’ll figure out a way to get through that one too.

Thank you for raining down love and support to me and my beautiful boys. Thank you for your tears, and for being my friend.

I don’t know that I can do this. I’m completely scared out of my mind. But I know that Ryan knows I can do this, and that gives me the hopeful inkling that maybe, just maybe…I will.

—MERI

Imagine the size of Meri’s ‘blue candle’; imagine her heart, imagine her life.

Is it enough to only hurt for her or can we do something?

What Meri does not do on her blog is ask for help.  It is why I copied what she wrote instead of just sending you to her site to read it.  With everything that the God of this earth may find holy I’m asking you to do one of two things (or both if you are so inclined)…….today!
This link:
http://www.giveforward.com/schuhmacherfamilymiracle2
1. Go to it and donate.
2. Go on Facebook and share this link with everyone including your own words how important it is to make a difference for this one family. Have your kids go on Facebook and share with everyone and anyone asking to help.

Really? 3 kids with T1 and now no husband, father, and/or best friend to help get through every day. How bad do we actually have it that we cannot, on this day, help a family from our very own community?

All of our collective causes will all be there tomorrow, I promise. Today, to actually have the power to touch a life; is the power to change a world. Let’s do it together…….thank you.  I’m a diabetesdad.