Brittle Diabetes?…….and Other ‘Fun’ with Names

I have always found some of the terminology used in our diabetes world a bit…….odd.  How many of us have been in the company of strangers when our child, who is a good distance away, checks their blood sugar and shouts to us; “I’m high again!”  Funny to watch the strangers hearing this and shaking their heads in a ‘tsk-tsk’ shame on us and our drug addict kids.

Not a big fan of the Type 1/Type 2 naming club either.  Now I also think that we can waste millions of hours in trying to change it and many have certainly tried.  But I am not so sure I have ever heard of a Type 1/Type 2 Cancer, allergy, MS, cystic fibrosis, flu or anything else for that matter.  Type 1…..type 2…..really?  Nonfunctional Pancreas Diabetes……..or NFP………and Low-functional Pancreas Diabetes LPD….perhaps.  But truthfully Type 1 and Type 2 is surely better than Juvenile and Adult Onset Diabetes……what a mess THAT was…….right?

Another phrase I have always hated, never understood, and also lived with in one of our children is Brittle Diabetes.  Short version/definition is extremely hard to control diabetes.  Brittle sounds like if you drop it, it will break. Also interesting that it is the same name as a hugely high in sugar peanut-candy treat, don’t you think? It certainly does not describe what we went through.  Perhaps, ‘what-the-heck-is-going-on-we-never-sleep-she-has-no-idea-what-she-is-feeling-and-we-all-feel-out-of-control diabetes might be a better name although tad long I admit.

How about in your life? What diabetes phrases or words have had you scratching your head? Perhaps it keeps you up at night.  Or up in the early morning.  In the dawn….a dawn phenomena, oh wait………

I am a diabetes dad.
Please visit my Diabetes Dad FB Page and hit ‘like’.

Intuition……Ever Have It? A Very Powerful Tool.

trust“I had a feeling…..”

“My intuition made me check…..”

“My gut was telling me…..”

You know what that is about, right?   I have absolutely no scientific study to back today’s article but I have been around long enough to know that there is an additional tool in a parents’ diabetes tool box that should never be ignored.  Never.

It is intuition.

I have read so many stories of that feeling deep in the pit of one’s stomach, that sudden moment you wake up with a thought, and/or you do something ‘just one more time’ to make sure.

If you find that it was not correct, you move on; no foul.  But how many times have you acted upon it?  How many times have you read about a mom or a dad who ‘just had a feeling’ and acted on that feeling?  They found their child very low, very high, acting unresponsive, and on good days sleeping soundly with blood glucose in a normal range.

I’m here to tell you that you should never ‘poo-poo’ those feelings and you should act on them when they happen because what is the down side? You find out you are wrong.  And if you are wrong 32 times and right once—-well that is just fine, isn’t it?  Once is once enough when something could go so very wrong.

I do not know why these feelings occur, and I do not care either.  I’m not going to try to explain them and I don’t care what science says is possible or not possible when it comes to these feelings that no one would understand unless they are a parent.

Ever happen to you?  Intuition.  You did not buy it, find it, refine it, or even make it but it may very well be one of the most unrecognized tools in our diabetes tool box, and one of the most appreciated when proven correct.

And that’s a good feeling.

I am a diabetes dad.

Please visit my Diabetes Dad FB Page and hit ‘like’.


A Meeting……I Should Have Known……We Have Work To Do…….What Say You?

surprisedAstounding. Mind-blowing.  Revealing.  Frustrating.

We have some work to do.  If ever I was reminded of that fact, it was last night.

I belong to a small group in my hometown.  We raise money for local causes surrounding diabetes needs.  In the scheme of things it is significant enough to make a difference to those entities we fund.  Not earth shattering but a difference none-the-less.  We work hard at raising money to help.

So last night we invited hospitals to “pitch us” on a project that had to do with diabetes, kids, and a significant impact in the community.

Here is what I heard.
Not one thing having to do with type 1 education.
Not one thing in helping kids with type 1 in any way.
Not one thing in helping adults with type 1 in any way.
Each proposed dealing with the growing obesity problem leading to type 2 and not one included defining and educating differences between the two largest groups much less the other types of diabetes.
Two referred to the ‘juvenile’ diabetes within their families.

To their credit, they all addressed a growing problem.
To their credit they all agreed to type one initiatives when I mentioned it.

This was a representation of our community health care.

And there it is.

Here is my question……if this is a sample of what is out there, and I do believe it is, what do we do about it?


I look forward to hearing from you on this subject and please reply here at the site and not on the FB page so all can chime in.

I am a diabetes dad.


Do You Dance?


Every summer thousands of young ladies attempt to be part of the Rockettes Super Intensive (RSI) program.  “Super”–beyond the norm.  More intense than intense.

Those who are accepted are challenged to push beyond their limits of dance endurance.  Dare I say even ‘breathing endurance’.   And when they are finished…..they are challenged to push themselves even harder.  They push and push and maybe, perhaps, they might even be asked to audition for the actual Rockette line.

Their sweat pushes off their bodies and the unrelenting instructor pushes the timing, the quickness, and of course that world-famous precision.

Discipline and strength beyond human endurance just to get a feel what it is like to be ‘that’ precise; ‘that’ good, and full of ‘that’ much confidence…..all in one week to feel a little like a Rockette.   Thousands want it, few get the opportunity.

Would we ever take our (or our children’s) diabetes ‘that’ seriously?  Rockettes Super Intensive seriously?

And in this RSI session is a young lady named Lauren.  She wants to be a Rockette so badly she can taste the idea of becoming one.  And yet, she is part of RSI and she IS DOING it with type 1 diabetes.  How serious do you think she must be with her diabetes?  

Today I’m humbled.  Her story is an incredible one, she is a young lady but she is a child too.  People with diabetes are incredible; they do everything with the intensity of a Rockette; they have to–the kickline of their lives depend on it.

I’m a Diabetesdad.